Re: lamictal wean-Connie-

[Guest guest]

Actually, I had to talk the neuro into the weaning idea. He would never have

suggested it himself. So toxicity wasn't really discussed. I simply argued

that since my son has been on lamictal for two years and his grand mals and

myoclonics have become worse during this time the lamictal is obviously not

of any benefit and taking it away would at least remove the side effects of

the drug and possibly give the diet a better chance. has been on the

diet for 2 months now and we have seen no change in seizure activity. 4:1

ratio. Dietician wants to drive him into deeper ketosis by lowering calorie

intake from 1980/day to 1880/day. He weighs 31 kilos and has gained 0.2

kilos in a months time.

Interesting point about percent reduction.....hmmm???

What to do.

A couple of other responses from this list (and I thank all you wonderful

people, the support is so comforting) lean towards less is better. I think

I'm going to reduce slowly

too and hope all goes well.

Thanks again to everyone.

Connie ('s mom)

Re: lamictal wean-Connie

> Connie,

> If toxicity is suspected, sometimes the reduction has to be a bit quicker

> than the norm, is this what your Dr is saying do you think?

> Our experience with the lamictal wean has been that the higher reductions

> earlier on, (we did a couple of 50 mg ones) seemed to affect him the same

as

> the smaller ones now he is at a lower level.

> If you take say a 10% reduction, (decremental) which I prefer rather than

a

> set mg amount each time, off 400 mgs would equate to 40 mgs, so it's maybe

> not as bad as it sounds.

> is at 75 mgs per day now, so his next one will be about 7 or 8 mgs.

> I guess it depends how sure you are that the high dose of lamictal is

> potentially interfering with seizure control, a tricky decison to make,

and

> one sometimes you have to take a guess with, and see what the effect is.

> Don't agree with the idea that lamictal has less potential for withdrawl

> seizures - I wish!!!

>

> Hill in NZ

> ----- Original Message -----

>

> > Hi all

> >

> > I finally was able to get my keto team to wean my son's meds but am a

> little

> > worried regarding the decrease. He wants me to decrease 50 mg every

week.

> > is at 400mg per day right now. I told him I thought it was too

much

> > too fast but he disagreed. He also said there was very little chance of

> > withdrawal seizures with Lamictal compared to other medications.I just

> kept

> > seeing red flags with every sentence he spoke so I'm hoping some of you

> have

> > experienced a lamictal wean and can tell me if decreasing 50mg per week

> > sounds right.

>

>

>

>

>

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