Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 I've had dealings with them as well. They don't even want to run scientific tests on the diet. > > > " Dear Ms. Frilegh, > > Thank you for contacting the Information Resource Center for The > Crohn’s & Colitis Foundation regarding content posted on our > website. I apologize for the delayed response. We appreciate your > feedback. However, after an internal review of your inquiry, the > content will remain the same on our web site. Thank you for your > understanding. > > If after reviewing the above information you have any additional > questions, please feel free to call our toll free number to speak > with a specialist. " > > Thank you, > > Ashleigh M. Oram > > Crohn's & Colitis Foundation of America > > Information Resource Center > > 386 Park Avenue South, 17th Floor > > New York, NY 10016 > > > > > Yes, CCFA,I have additional comments! > > They do not relate to your lack of endorsement in the absence of > sufficient formal testing. > > It is documented that Elaine Gottschall stated in writing that SCD is > neither a low carb nor a low calorie diet and you have not explained > why you choose to ignore the protocols of the accredited scientist > who researched and expanded details of this diet. > > My continuing protest concerns an inaccurate description of the diet > within an article circulated as information to your newsletter > subscribers. The preparation procedure of legumes to minimize starch > action is not mentioned in response to Dr. Arthur Heller's statement. > This is unscientific and misleading because unless treated as * see > below*aforementioned legumes are difficult to digest. Anyone familiar > with the diet knows caution is advised regarding delaying > introduction of legumes until later when some healing has taken > place. Your article gives implications that SCD includes legumes in > their less digestible format and at any point. > > In not addressing my two criticisms, I believe you show a bias > against the SCD. > > The SCD is a dietary option that has been proven by an impressive > number of followers to have been helpful for the many who adhere to > it strictly. I have no objection the fact that the CCFA article > quotes those for whom SCD has not been effective. If SCD were a 100% > cure, it would make media headlines. > > Since you have chosen not to make the requested changes, I will > continue to comment wherever required on this unresolved issue. > > > Ashleigh M. Oram > > Crohn's & Colitis Foundation of America > > Information Resource Center > > 386 Park Avenue South, 17th Floor > > New York, NY 10016 > > > > > > Still Incorrect > > > http://www.ccfa.org/about/news/scd > > > SCD™ is NOT a low carbohydrate diet. I do not expect you to recommend > it without formal test results but at least present it correctly! > > > I have been complaining about this article since its publication and > the absence of a correction or publication of my comments! > Hitchens said my issues would be presented to a board for discussion > and now she is gone. > > > The Specific Carbohydrate Diet was developed and popularized by > biochemist Elaine Gottschall in her 1994 book, Breaking the Vicious > Cycle: Intestinal Health Through Diet. Gottschall, who spent time > exploring the changes that occur in the intestinal wall in IBD while > at the University of Western Ontario, wrote her book after observing > the effects of a low-carbohydrate, gluten-free diet on her eight-year- > old daughter, who had been diagnosed with colitis at age five. > > > > Legumes are an advanced food and must be soaked 8 hours, rinsed > several times and precooked for at least 45 minutes before even being > added to recipes which require further cooking: > > Arthur D. Heller, M.D., a New York City gastroenterologist who is > certified by the American Board of Nutrition, points out several > inconsistencies in the diet. " Foods are excluded, " he says, " because > of their purported inability to be digested well. But of the foods > allowed, legumes are known to contain certain carbohydrates that are > not well digested by humans. > > > Carol Frilegh > > Celiac, SCD 8 years,MCS, Latex Allergy > > http://www.celiac.com/authors/143/Carol-Frilegh > > http://www.talkaboutcuringautism.org/gfcf-diet/sc-diet.htm > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 so pig-headed! there is just no money/profit in diet! > " Dear Ms. Frilegh, > > Thank you for contacting the Information Resource Center for The > Crohn's & Colitis Foundation regarding content posted on our > website. I apologize for the delayed response. We appreciate your > feedback. However, after an internal review of your inquiry, the > content will remain the same on our web site. Thank you for your > understanding. > > If after reviewing the above information you have any additional > questions, please feel free to call our toll free number to speak > with a specialist. " > > Thank you, > > Ashleigh M. Oram Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 > > I've had dealings with them as well. They don't even want to run > scientific tests on the diet. > I asked a few doctors the cost of a " Gold Standard " test, the definitive type that mainstream medicine would recognize and was told it coud be as much as one million dollars. Who is going to pick up that tab for a diet that doesn't demand meds but allows the individual to take what their doctor prescribes? Not the CCFA. Carol F. Celiac, SCD 8 years,MCS, Latex Allergy http://www.celiac.com/authors/143/Carol-Frilegh http://www.talkaboutcuringautism.org/gfcf-diet/sc-diet.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 > >> >> I've had dealings with them as well. They don't even want to run >> scientific tests on the diet. >> > I asked a few doctors the cost of a " Gold Standard " test, the > definitive type that mainstream > medicine would recognize and was told it coud be as much as one > million dollars. Who is > going to pick up that tab for a diet that doesn't demand meds but > allows the individual to > take what their doctor prescribes? Not the CCFA. > > i spoke with the ccfa and told them i and another donor had the money to establish a fund to fund just such a test. they said no. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2008 Report Share Posted February 1, 2008 At 05:09 PM 2/1/2008, you wrote: i spoke with the ccfa and told them i and another donor had the money to establish a fund to fund just such a test. they said no. Pardon the sarcasm -- but you didn't offer to donate a few million to the CCFA in addition to funding the study. That's probably where you went wrong. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
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