Guest guest Posted August 13, 2008 Report Share Posted August 13, 2008 I am going to bring up a very controversial topic , I hope no one is offended . I am very interested in bio-medical intervention . I have been researching it and it makes absolute sense to me .Before we ever thought our some might be on the spectrum we knew he was a sick kid . Tons of allergies , eczema , chronic ear infections and viral infections, always stuffy , constant redness and puffiness around the eyes , constant nose bleeds and G.I issues . We have consulted many physicians and they just tell us its normal and that he will grow out of it . We even had him tested for allergies ( a very obvious allergic child) and he tested negative for everything. Yet in the mean time my child is miserable . Does anyone here have any experience with intergrative medicine ? If so can you guide us in what we can do for our son ? NO MORE ZYRTEC!! ( my new mantra) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2008 Report Share Posted August 17, 2008 HI Maureen, This happened to my son when he was newborn and the hospital had introduced formula to supplement maternal milk. Big mistake. I should have never let them do it but he had jaundice (and his billirubin levels were 20+)and the pediatrician said it was the best way to control it (along with the special lights). He had an X-ray, a sonogram and some other contrast test. All test showed that his extended belly was massive amounts of gas. The pediatrician said that in 20 years of practice she had never seen such a dramatically extended belly in an infant. It lasted for months. I breastfed him exclusively and removed from MY diet all milk products, eggs, and nuts (which he later proved to be allergic to) and the gas problem dissapeared. This was the allergist suggestion. Hope this helps! Ida From: Steve Moyer <ssmoyergate (DOT) net>Subject: Re: BIO-MEDICAL INTERVENTIONTo: sList@ yahoogroups. comDate: Friday, August 15, 2008, 12:07 PM Hello MAUREEN,The subject is not controversial here, many of us are doing bio med.I would recommend you start GFCF diet immediately. You have nothing to lose and everything to gain. Your child sounds like one of the ones that might benefit most.Steve> I am going to bring up a very controversial topic , I hope no one is > offended . I am very interested in bio-medical intervention . I have > been researching it and it makes absolute sense to me .Before we ever > thought our some might be on the spectrum we knew he was a sick kid . > Tons of allergies , eczema , chronic ear infections and viral > infections, always stuffy , constant redness and puffiness around the > eyes , constant nose bleeds and G.I issues . We have consulted many > physicians and they just tell us its normal and that he will grow out > of it . We even had him tested for allergies ( a very obvious allergic > child) and he tested negative for everything. Yet in the mean time my > child is miserable . Does anyone here have any experience with > intergrative medicine ? If so can you guide us in what we can do for > our son ?> > NO MORE ZYRTEC!! ( my new mantra)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2008 Report Share Posted August 19, 2008 This is terrible to say, perhaps, but my son is not gfcf. We give him enzymes for when he eats gluten/casein. We limit some foods and plan accordingly. He never had any of the symptoms of having problems in this area that we read about with the bm's, etc.... I know there are a lot of opinions on this but for now, we choose not to go this route. I wonder if the ICDRC website has something about gfcf and it's importance/relevance to our kids? I know they post a several page article about biomedical, which now I plan to provide to those who ask b/c it is just too much to keep going over, particularly to teachers, doctors, etc.... Did the teacher indicate he ate a cupcake? Re: BIO-MEDICAL INTERVENTIONTo: sList@ yahoogroups. comDate: Friday, August 15, 2008, 12:07 PM Hello MAUREEN,The subject is not controversial here, many of us are doing bio med.I would recommend you start GFCF diet immediately. You have nothing to lose and everything to gain. Your child sounds like one of the ones that might benefit most.Steve> I am going to bring up a very controversial topic , I hope no one is > offended .. I am very interested in bio-medical intervention . I have > been researching it and it makes absolute sense to me ..Before we ever > thought our some might be on the spectrum we knew he was a sick kid . > Tons of allergies , eczema , chronic ear infections and viral > infections, always stuffy , constant redness and puffiness around the > eyes , constant nose bleeds and G.I issues . We have consulted many > physicians and they just tell us its normal and that he will grow out > of it . We even had him tested for allergies ( a very obvious allergic > child) and he tested negative for everything. Yet in the mean time my > child is miserable . Does anyone here have any experience with > intergrative medicine ? If so can you guide us in what we can do for > our son ?> > NO MORE ZYRTEC!! ( my new mantra)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008  Yep! Re: BIO-MEDICAL INTERVENTIONTo: sList@ yahoogroups. comDate: Friday, August 15, 2008, 12:07 PM Hello MAUREEN,The subject is not controversial here, many of us are doing bio med.I would recommend you start GFCF diet immediately. You have nothing to lose and everything to gain. Your child sounds like one of the ones that might benefit most.Steve> I am going to bring up a very controversial topic , I hope no one is > offended .. I am very interested in bio-medical intervention . I have > been researching it and it makes absolute sense to me ..Before we ever > thought our some might be on the spectrum we knew he was a sick kid .. > Tons of allergies , eczema , chronic ear infections and viral > infections, always stuffy , constant redness and puffiness around the > eyes , constant nose bleeds and G.I issues . We have consulted many > physicians and they just tell us its normal and that he will grow out > of it . We even had him tested for allergies ( a very obvious allergic > child) and he tested negative for everything. Yet in the mean time my > child is miserable . Does anyone here have any experience with > intergrative medicine ? If so can you guide us in what we can do for > our son ?> > NO MORE ZYRTEC!! ( my new mantra)> Get the MapQuest Toolbar. Directions, Traffic, Gas Prices More! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 It may be cheaper to pay for a consult with a DAN dr. to get the labs done to determine whether your child is indeed sensitive to gluten/casein before you go and spend alot of time and money removing it. Just a thought. You may wish to contact Great Plains lab as they have a urine test to check for something about this and you would need your pediatrician's signature. I think there is a blood test too. Someone on here knows the name I am sure. Find out the name of it and see if you can get your pediatrician to do it. At least to get you started until finances are better. ICDRC also has some financial assistance, you will need to call. And you can call Bodymed and just see if people are willing to work with your situation. Re: BIO-MEDICAL INTERVENTIONTo: sList@ yahoogroups. comDate: Friday, August 15, 2008, 12:07 PM Hello MAUREEN,The subject is not controversial here, many of us are doing bio med.I would recommend you start GFCF diet immediately. You have nothing to lose and everything to gain. Your child sounds like one of the ones that might benefit most.Steve> I am going to bring up a very controversial topic , I hope no one is > offended .. I am very interested in bio-medical intervention . I have > been researching it and it makes absolute sense to me ..Before we ever > thought our some might be on the spectrum we knew he was a sick kid . > Tons of allergies , eczema , chronic ear infections and viral > infections, always stuffy , constant redness and puffiness around the > eyes , constant nose bleeds and G.I issues . We have consulted many > physicians and they just tell us its normal and that he will grow out > of it . We even had him tested for allergies ( a very obvious allergic > child) and he tested negative for everything. Yet in the mean time my > child is miserable . Does anyone here have any experience with > intergrative medicine ? If so can you guide us in what we can do for > our son ?> > NO MORE ZYRTEC!! ( my new mantra)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 Hi Maureen, The delayed echo speech is very often self soothing for kids like ours. It somehow reinforces him to hear the same story/conversation played over and over again. Possibly school is producing some level of anxiety and this is his way to deal with it. One way is to re direct him to a different activity that is soothing for him. For each child this may be different. Reading a book to him. Coloring. Swinging. Cutting..... To reduce the school anxiety you can create a social story for him. take photos of the teacher and classmates. Make a picture schedule of the day at school with photos of the class/playground/snack time etc....make a home-made book of it and go over with him so he is more comfortable with the environment and the people he encounters. Good luck Shirly > > From: Steve Moyer <ssmoyergate (DOT) net> > Subject: Re: BIO-MEDICAL INTERVENTION > To: sList@ yahoogroups. com > Date: Friday, August 15, 2008, 12:07 PM > > > Hello MAUREEN, > > The subject is not controversial here, many of us are doing bio med. > > I would recommend you start GFCF diet immediately. You have nothing > to lose and everything to gain. Your child sounds like one of the > ones that might benefit most. > > Steve > > > I am going to bring up a very controversial topic , I hope no one > is > > offended .. I am very interested in bio-medical intervention . I > have > > been researching it and it makes absolute sense to me ..Before we > ever > > thought our some might be on the spectrum we knew he was a sick > kid . > > Tons of allergies , eczema , chronic ear infections and viral > > infections, always stuffy , constant redness and puffiness around > the > > eyes , constant nose bleeds and G.I issues . We have consulted many > > physicians and they just tell us its normal and that he will grow > out > > of it . We even had him tested for allergies ( a very obvious > allergic > > child) and he tested negative for everything. Yet in the mean time > my > > child is miserable . Does anyone here have any experience with > > intergrative medicine ? If so can you guide us in what we can do > for > > our son ? > > > > NO MORE ZYRTEC!! ( my new mantra) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2008 Report Share Posted August 23, 2008 My understanding is that allergy testing is different than the test that determines whether gluten/casein crosses the blood/brain barrier and leads to the morphine-like behaviors. They are 2 different tests. The issue with gluten and casein is that it permeates the gut lining and causes a neurological reaction in the child or adult. What happens in a healthy digestive tract is the bloodstream absorbs small molecules of completely digested food. These molecules are amino acids, simple sugars, fatty acids, vitamins, minerals etc. that the body requires to function properly and to live. There are special carrier proteins that transport these nutrients through the intestinal wall and into the bloodstream.However if undesirable large particles of undigested food begin to cross the intestinal wall into the bloodstream – this begins to alter the intestinal permeability. Now large spaces are being formed in the intestinal lining allowing large undesirable particles, food, bacteria etc to leak into the blood stream triggering an allergic reaction or response by the body. This condition is known as the Leaky Gut Syndrome. In the case of children with autism, casomorphine, a derivative of casein, which is a milk protein and gliadomorphin, a derivative of gluten or wheat protein, have been found in the urine of children with autism. Both Drs. Shattock and Karl Reichelt have found food-derived polypeptides in the urine of children with autism, which seem to be similar to the endorphins casomorphine and gliadomorphin. Both of these are an indication of intestinal permeability, which is the Leaky Gut Syndrome. They cause a morphine type of effect in the children which is really what we are seeing in "autistic like" behavior. In addition to the gluten and casein, some children with autism will react to all kinds of foods, phenols, chemicals - even supplements - or anything their system will find intolerable with a leaky gut. What happens is you will see all kinds of neurological reactions and behaviors we define as autism. The blood brain barrier, on the other hand, is the barrier that protects the brain from foreign and unwanted substances from passing over and effecting neurological functioning. Gluten and Casein affect neurological functioning because of the neurological reaction caused from the permeated gut lining of the intestinal tract when undigested food particles ending up in the blood stream. However, the same neurotransmitters that are in the brain also line the GI tract, so when the GI tract is not functioning properly because of all this gut dysbiosis from the permeated gut barrier, then the neurological connection from the GI tract is not functioning to send messages to the brain. That is why you will hear of the reference the GUT/BRAIN connection. The blood brain barrier does have foreign substances cross over such as glutamate and aspartate (MSG and Aspartame) which are "excitotoxins" that cause the glutamate receptors in the brain to be constantly firing triggering cell death. Gluten is 45% glutamate and casein is 23% glutamate. This is called excitotoxicity and is usually caused when the blood brain barrier is permeated. When the GI tract is leaky it usually follows that the blood brain barrier is permeated as well. More information on this is well explained by Dr. Blaylock in the Taste That Kills. But, if you didn't really want to do the testing to know if your child has a problem, the best way to know this information is to keep your child completely gluten and casein free for one week. Then reintroduce the gluten and casein slowly one at a time. If there is no reaction, then you know your child does not have a problem. If your child has a problem you will know when you reintroduce the gluten and casein. Not all children will be effected by gluten and casein, but keeping your child's diet chemical free, away from processed foods, colors, dyes, MSG ...in other words a very clean diet - then this will help the body's immunity respond better with whatever treatment you are doing with your child. Some children do fine on organic unpasturized milk because it has the enzymes in it to help with digestion. The enzymes are the key...this is why some parents prefer the Body Ecology Diet. Some children with the Crohn's profile need the Specific Carbohydrate Diet, or the FeinGold Diet for highly allergic sensitive kids. Whatever it is.......not the American pizza, Mc's Chicken McNuggets, Coca Cola,carbohydrate diet. BadilloIt's only a deal if it's where you want to go. Find your travel deal here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2008 Report Share Posted August 23, 2008 I feel like I am pulling ay straws trying to find the reasons for my daughters behavior What kind of behavior is your child having? You might want to check out the Feingold Diet. It is very effective for children extremely reactive to phenols, dyes, chemicals, etc. BadilloIt's only a deal if it's where you want to go. Find your travel deal here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2008 Report Share Posted August 24, 2008  That is exactly what I wanted to say... Re: Re: BIO-MEDICAL INTERVENTION In a message dated 8/22/2008 11:46:43 P.M. Eastern Daylight Time, austintandtbellsouth (DOT) net writes: My understanding is that allergy testing is different than the test that determines whether gluten/casein crosses the blood/brain barrier and leads to the morphine-like behaviors. They are 2 different tests. The issue with gluten and casein is that it permeates the gut lining and causes a neurological reaction in the child or adult. What happens in a healthy digestive tract is the bloodstream absorbs small molecules of completely digested food. These molecules are amino acids, simple sugars, fatty acids, vitamins, minerals etc. that the body requires to function properly and to live. There are special carrier proteins that transport these nutrients through the intestinal wall and into the bloodstream.However if undesirable large particles of undigested food begin to cross the intestinal wall into the bloodstream – this begins to alter the intestinal permeability. Now large spaces are being formed in the intestinal lining allowing large undesirable particles, food, bacteria etc to leak into the blood stream triggering an allergic reaction or response by the body. This condition is known as the Leaky Gut Syndrome. In the case of children with autism, casomorphine, a derivative of casein, which is a milk protein and gliadomorphin, a derivative of gluten or wheat protein, have been found in the urine of children with autism. Both Drs. Shattock and Karl Reichelt have found food-derived polypeptides in the urine of children with autism, which seem to be similar to the endorphins casomorphine and gliadomorphin. Both of these are an indication of intestinal permeability, which is the Leaky Gut Syndrome. They cause a morphine type of effect in the children which is really what we are seeing in "autistic like" behavior. In addition to the gluten and casein, some children with autism will react to all kinds of foods, phenols, chemicals - even supplements - or anything their system will find intolerable with a leaky gut. What happens is you will see all kinds of neurological reactions and behaviors we define as autism. The blood brain barrier, on the other hand, is the barrier that protects the brain from foreign and unwanted substances from passing over and effecting neurological functioning. Gluten and Casein affect neurological functioning because of the neurological reaction caused from the permeated gut lining of the intestinal tract when undigested food particles ending up in the blood stream. However, the same neurotransmitters that are in the brain also line the GI tract, so when the GI tract is not functioning properly because of all this gut dysbiosis from the permeated gut barrier, then the neurological connection from the GI tract is not functioning to send messages to the brain. That is why you will hear of the reference the GUT/BRAIN connection. The blood brain barrier does have foreign substances cross over such as glutamate and aspartate (MSG and Aspartame) which are "excitotoxins" that cause the glutamate receptors in the brain to be constantly firing triggering cell death. Gluten is 45% glutamate and casein is 23% glutamate. This is called excitotoxicity and is usually caused when the blood brain barrier is permeated. When the GI tract is leaky it usually follows that the blood brain barrier is permeated as well. More information on this is well explained by Dr. Blaylock in the Taste That Kills. But, if you didn't really want to do the testing to know if your child has a problem, the best way to know this information is to keep your child completely gluten and casein free for one week. Then reintroduce the gluten and casein slowly one at a time. If there is no reaction, then you know your child does not have a problem. If your child has a problem you will know when you reintroduce the gluten and casein. Not all children will be effected by gluten and casein, but keeping your child's diet chemical free, away from processed foods, colors, dyes, MSG ...in other words a very clean diet - then this will help the body's immunity respond better with whatever treatment you are doing with your child. Some children do fine on organic unpasturized milk because it has the enzymes in it to help with digestion The enzymes are the key...this is why some parents prefer the Body Ecology Diet. Some children with the Crohn's profile need the Specific Carbohydrate Diet, or the FeinGold Diet for highly allergic sensitive kids. Whatever it is......not the American pizza, Mc's Chicken McNuggets, Coca Cola,carbohydrate diet. Badillo It's only a deal if it's where you want to go. Find your travel deal here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2008 Report Share Posted August 25, 2008 This is very helpful! Our previous behaviorist had suggested we explore the yeast connection (she felt pretty strongly that this was my daughters issue) but we were waiting to see how things went with the diet first – one thing at a time. Yeast was my next step and then possibly supplements after that (these are a little scary for us as we tried them before and my daughter started having nightmares. Could have been just coincidence but it scared us so we decided to explore other options first and then possibly revisit.).  I appreciate the contact info for the yeast products. Is this something you think I need to have tested first or can I just move forward with the treatment? The Feingold diet info was also helpful…think I can rule that out – We just came back to Gatorade and did not see any difference (and I looked for one).                                                                                                                                                                                                                                                         From: sList [mailto:sList ] On Behalf Of badillo9@... Sent: Monday, August 25, 2008 2:49 PM To: sList Subject: Re: Re: BIO-MEDICAL INTERVENTION In a message dated 8/25/2008 1:54:15 P.M. Eastern Daylight Time, thecohanes@... writes: Biggest issues are inability to attend and focus (more because she has her own agenda - if she really wanted to converse or complete a task – she could) and opposition/non compliance – again because she has her own agenda. This is classical behavior caused by yeast overgrowth. Put her on a really good probiotic - like Klaire Labs, Kirkman Labs - I like the Klaire Therabiotic complete because it has many different strains at 25 billion microorganism. Try and get her to have more protein instead of carbs so her sugar levels are not increasing. The protein helps with brain functioning - for instance - start the morning with a protein shake like JayRobb which is really clean (egg or whey) - Vitamin Shoppe or Tunies is cheaper than Wholefoods. The protein sustains rather than causing the sugar to elevate and then drop so the sugar craving starts again because of the drop in energy level. The protein also helps with keeping kids focused. She might need a protein enzyme (proteolytic enzymes) to absorb and metabolize the protein which you can give to her at dinner. Protein bars are nice substitutes for cookies etc. Cliff Builder Bar has 20gm of protein per bar. In addition to the probiotic and increased protein, Chromium GTF or Chromium Picolinate will help stabilize the blood sugar levels and stop the sugar and carb cravings. Plus you need to get something for the decrease the yeast preferably in a liquid so you can control the amount with the drops. If she starts having melt downs, it means that there's too much dieoff and you need to slow down and give less. Start with three to five drops everyday. You'll probably need two probiotics a day to clean up the dieoff. Over a period of time you will see improvement - the issue is you can't rush eradicating yeast because your child will become impossible to live with. You can check to see if the healthfood store has a yeast/ Candida tincture or contact Dr. LeGunn's Office at 561 417-8383 and ask for Yeastaway. They can mail it to you as well (Boca Raton location) Dr. LeGunn also has the Klaire Labs probiotic. You will most definitely see a difference in her with the reduction in yeast overgrowth. Plus Dr. LeGunn has a great homeopathic like the Bach Flower Rescue Remedy called " Emotional Trauma " - a few drops calms them down right away when they get in that defiant mode. Just as a baseline...you would know if you need the Feingold Diet if your child is very reactive to chemicals...for instance. The behaviors are fine and then the child has a gatorade with all that chemical dye and all of a sudden the behavior dramatically changes and deteriorates. Some children with dyes can't even write their name anymore. Doris Rapp's book on " Is This My Child " explains exactly what happens in these circumstances. These type of kids do really well on the Feingold Diet. It's only a deal if it's where you want to go. Find your travel deal here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2008 Report Share Posted August 25, 2008 I so strongly agree with you , but it is so easy to get wrapped up. I know that this disorder is unique to each one that has it, one treatment may work wonders for one and not the other. But , you can’t help but get excited at the prospect of a possible answer – especially when many are shouting its praises. Like I said before, you don’t want to miss out on any chance that it might work for your child. However, knowing the value of therapy, it has been the one treatment that has remained constant since we first found out about my daughters issues. We started with some ABA but found that a more eclectic approach was better for Ella. It did help with some of her strong willed behavior but the combination of verbal, floor time and other modes helped a lot as well. And it didn’t hurt that we had an amazing therapist Aileen Tortorici. She was with us from the start until our recent move. As was our speech therapist – Hedia at Easter Seals. I am so grateful to both of these women as I know they have helped my daughter come to be where she is today. I just want more! J I want a cure..OK back to reality. I just want my daughter to be happy. My daughter was always delayed so I cannot fully appreciate the situation you have been in…to see your child lose what they once had and get lost in their world and no longer be a part of yours. I can only imagine how difficult that must be. It seems like such a powerless place to be. However, I can certainly connect with your struggle, as I am there too – Obviously (after my ranting e-mail). J Thanks so much for your guidance. From: sList [mailto:sList ] On Behalf Of Heifferon Sent: Monday, August 25, 2008 5:22 PM To: sList Subject: RE: Re: BIO-MEDICAL INTERVENTION It sounds to me that your daughter is in need of some good ABA Therapy. If she is already getting ABA maybe she needs more. We all would like to have a magic pill. It would solve so many problems, not only the infliction but also all the problems that it causes. You need to seek scientifically based procedures, otherwise, the magic pills you try may be placebos only. Placebos can be expensive. I have seen a baby progress normally and for some unknown reason stops somewhere around 18 months. Even more heartbreaking is to see him regress. I can remember every time we pulled out the camera and pointed it at him, he would put on this big smile. That stopped. The words he had, he lost. I think it is this regression that bothers me the most. There is a real need to lead with your head and not your heart, even as difficult that might seem. From: sList [mailto:sList ] On Behalf Of Cohane Sent: Sunday, August 24, 2008 10:31 PM To: sList Subject: RE: Re: BIO-MEDICAL INTERVENTION Biggest issues are inability to attend and focus (more because she has her own agenda - if she really wanted to converse or complete a task – she could) and opposition/non compliance – again because she has her own agenda. Communication is delayed but she can converse. I think it is just hard for all of us to figure this out. As parents, you want to leave no stone unturned but when you think you have tried all you can, there is always another treatment or something you haven’t and you feel compelled to do it – after all, this is your baby. You always hope that then next thing will be it , so you spend a little more time and a little more money only to feel the heartbreak of no results once again. It is just frustrating that we don’t have the answers we need to heal our children. Im off on a rant. And actually, my daughter seems to be doing well at this point but I just want so bad for her to succeed – as we all do. Just wish I could have that magic pill. Thanks for hearing me. Ill check out the Feingold diet online…think we looked at it before but just wasn’t there at the time. Not sure I am now either but testing seems a little easier – that’s why I was exploring it. I appreciate your help – you really seem to have a wealth of knowledge. J From: sList [mailto:sList ] On Behalf Of badillo9@... Sent: Saturday, August 23, 2008 11:05 PM To: sList Subject: Re: Re: BIO-MEDICAL INTERVENTION In a message dated 8/23/2008 12:12:53 A.M. Eastern Daylight Time, thecohanes@... writes: I feel like I am pulling ay straws trying to find the reasons for my daughters behavior What kind of behavior is your child having? You might want to check out the Feingold Diet. It is very effective for children extremely reactive to phenols, dyes, chemicals, etc. Badillo It's only a deal if it's where you want to go. Find your travel deal here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008 That is exactly the child that would very likely benefit from biomedical interventions. RE: Re: BIO-MEDICAL INTERVENTION It sounds to me that your daughter is in need of some good ABA Therapy. If she is already getting ABA maybe she needs more. We all would like to have a magic pill. It would solve so many problems, not only the infliction but also all the problems that it causes. You need to seek scientifically based procedures, otherwise, the magic pills you try may be placebos only. Placebos can be expensive. I have seen a baby progress normally and for some unknown reason stops somewhere around 18 months. Even more heartbreaking is to see him regress. I can remember every time we pulled out the camera and pointed it at him, he would put on this big smile. That stopped. The words he had, he lost. I think it is this regression that bothers me the most. There is a real need to lead with your head and not your heart, even as difficult that might seem. From: sList [mailto:sList ] On Behalf Of CohaneSent: Sunday, August 24, 2008 10:31 PMTo: sList Subject: RE: Re: BIO-MEDICAL INTERVENTION Biggest issues are inability to attend and focus (more because she has her own agenda - if she really wanted to converse or complete a task – she could) and opposition/non compliance – again because she has her own agenda. Communication is delayed but she can converse. I think it is just hard for all of us to figure this out. As parents, you want to leave no stone unturned but when you think you have tried all you can, there is always another treatment or something you haven’t and you feel compelled to do it – after all, this is your baby. You always hope that then next thing will be it , so you spend a little more time and a little more money only to feel the heartbreak of no results once again. It is just frustrating that we don’t have the answers we need to heal our children. Im off on a rant. And actually, my daughter seems to be doing well at this point but I just want so bad for her to succeed – as we all do. Just wish I could have that magic pill. Thanks for hearing me. Ill check out the Feingold diet online…think we looked at it before but just wasn’t there at the time. Not sure I am now either but testing seems a little easier – that’s why I was exploring it. I appreciate your help – you really seem to have a wealth of knowledge. J From: sList [mailto:sList ] On Behalf Of badillo9aolSent: Saturday, August 23, 2008 11:05 PMTo: sList Subject: Re: Re: BIO-MEDICAL INTERVENTION In a message dated 8/23/2008 12:12:53 A.M. Eastern Daylight Time, thecohanescomcast (DOT) net writes: I feel like I am pulling ay straws trying to find the reasons for my daughters behavior What kind of behavior is your child having? You might want to check out the Feingold Diet. It is very effective for children extremely reactive to phenols, dyes, chemicals, etc. Badillo It's only a deal if it's where you want to go. Find your travel deal here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2008 Report Share Posted August 26, 2008  While doing all of the biomedical, is correct in that for what you describe below, would definitly beneift from some really good ABA strategies. This is called gaining instructional control. Having a good rapport with the child, pairing reinforcers for tasks (ie. a high five, piece of candy, bubbles and some over-the-top social praise). Use play to teach her in her natural environment and build up to the task you want her to complete. Ignore the perceived negative behaviors and focus on and make a really big deal of when she is compliant and completes tasks. Start small and gradually build up. Be dramatic when she does something great. As far as the yeast, this can also be tested at Great Plains and a systemic yeast medication such as Diflucan, Nystatin works much faster (with no apparent die-off, which I hear is nasty) than probiotics alone. Although, it is still highly recommended most of our kids take probiotics, heck, even us. My son takes a slew...3 Culturelles, 1 Super Pro Bio Gold, 3 Threelacs, VSL#3DS (which is a prescription probiotic), along with Diflucan. I will let you know in a couple of weeks how that affects his labs. Just sent them yesterday. His last labs showed he had no, I mean no, good probiotics in him and continues to have lots of yeast. His poor belly. Re: Re: BIO-MEDICAL INTERVENTION In a message dated 8/25/2008 1:54:15 P.M. Eastern Daylight Time, thecohanescomcast (DOT) net writes: Biggest issues are inability to attend and focus (more because she has her own agenda - if she really wanted to converse or complete a task – she could) and opposition/non compliance – again because she has her own agenda. This is classical behavior caused by yeast overgrowth. Put her on a really good probiotic - like Klaire Labs, Kirkman Labs - I like the Klaire Therabiotic complete because it has many different strains at 25 billion microorganism. Try and get her to have more protein instead of carbs so her sugar levels are not increasing. The protein helps with brain functioning - for instance - start the morning with a protein shake like JayRobb which is really clean (egg or whey) - Vitamin Shoppe or Tunies is cheaper than Wholefoods. The protein sustains rather than causing the sugar to elevate and then drop so the sugar craving starts again because of the drop in energy level. The protein also helps with keeping kids focused. She might need a protein enzyme (proteolytic enzymes) to absorb and metabolize the protein which you can give to her at dinner. Protein bars are nice substitutes for cookies etc. Cliff Builder Bar has 20gm of protein per bar. In addition to the probiotic and increased protein, Chromium GTF or Chromium Picolinate will help stabilize the blood sugar levels and stop the sugar and carb cravings. Plus you need to get something for the decrease the yeast preferably in a liquid so you can control the amount with the drops. If she starts having melt downs, it means that there's too much dieoff and you need to slow down and give less. Start with three to five drops everyday. You'll probably need two probiotics a day to clean up the dieoff. Over a period of time you will see improvement - the issue is you can't rush eradicating yeast because your child will become impossible to live with. You can check to see if the healthfood store has a yeast/ Candida tincture or contact Dr. LeGunn's Office at 561 417-8383 and ask for Yeastaway. They can mail it to you as well (Boca Raton location) Dr. LeGunn also has the Klaire Labs probiotic. You will most definitely see a difference in her with the reduction in yeast overgrowth. Plus Dr. LeGunn has a great homeopathic like the Bach Flower Rescue Remedy called "Emotional Trauma" - a few drops calms them down right away when they get in that defiant mode. Just as a baseline...you would know if you need the Feingold Diet if your child is very reactive to chemicals...for instance. The behaviors are fine and then the child has a gatorade with all that chemical dye and all of a sudden the behavior dramatically changes and deteriorates. Some children with dyes can't even write their name anymore. Doris Rapp's book on "Is This My Child" explains exactly what happens in these circumstances. These type of kids do really well on the Feingold Diet. It's only a deal if it's where you want to go. Find your travel deal here. Quote Link to comment Share on other sites More sharing options...
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