Re: ACM & Lumbar Puncture/ICP

[Guest guest]

In a message dated 10/24/2000 4:13:48 PM Eastern Daylight Time,

edesousa@... writes:

<< 3. Does having Chiari mean you have high Intracranial Pressure?>>

I would think that if one has a Chairi malformation but still has adequate

CSF flow, then they would not necessarily have high intracranial pressure.

has a shunt that is obviously doing it's job of draining excess fluid

that would cause the increased pressure - in her case the ICP monitoring

showed low pressure rather than any high pressure. Though her NSG said that

she can still experience periods of high presssure - which might mean that

the periods of high pressure may be more positional or related to certain

activities.

One thing that I've mentioned before, back in August when had her

shunt externalized, I was able to watch the amount of CSF that drained. When

lay on her shunt side, she had significantly smaller amounts of

spinal fluid to drain that when she layed on her right side. That made me

think that if she layed on that side for an entire night, it wouldn't be

surprising for her to have a headache upon wakening from the fluid not

draining properly for many hours.

Tory ('s mom)

18ys. old, craniofacial abnormalities, midline facial cleft, hydrocephalus,

growth hormone (weighs 53lbs.) and thyroid deficient, blind, severly delayed,

choanal atresia, optic nerve hypoplasia, artificial tear duct, 12-P

chromosome deletion, sensory integration disorder, latex allergy, probable

malignant hyperthermia, ACM II w/30mm herniation, basilar impression. June10,

98' suboccipital craniectomy and lamenectomy of C1 & C2. Aug. 10, 98' dura

graft. History of 42 surgeries. (and musically talented) SUCH A SPECIAL

LITTLE GIRL!

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[Guest guest]

I wouldn't mind knowing the answer to this Question, so please keep it on

the List.

Take Care,

Brande

mymocha@...

> 3. Does having Chiari mean you have high Intracranial Pressure?

>

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[Guest guest]

Please respond to the group.

Thanks,

Maureen

ACM & Lumbar Puncture/ICP

A few questions...

1. Has anyone with Chiari had a lumbar puncture deemed to be normal or lower

than normal?

2. Can lumbar puncture be used to measure Intracranial Pressure?

3. Does having Chiari mean you have high Intracranial Pressure?

Thanks,

Eurico

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[Guest guest]

Seems how I have responded privately to these a couple of times, here it goes to

the list:

> 1. Has anyone with Chiari had a lumbar puncture deemed to be normal or lower

than normal?

I had a LP done in 1997 when my symptoms were really bad, but my shunt was

working well for my

hydrocephalus, so my pressure was normal.

> 2. Can lumbar puncture be used to measure Intracranial Pressure?

Yes, along with many other tests. Dr. Kula took 30 cc's of csf to test

different things from

substance P to checking for infection.

> 3. Does having Chiari mean you have high Intracranial Pressure?

No, you can have normal icp if you have chiari.

Kathleen