Re: Re: getting off Imuron?

[Guest guest]

At 02:01 PM 1/30/2008, you wrote:

But I am curious- does this mean

no one on this list has come off Imuron? If there is anyone out there-

i'd love to hear about your experience. many thanks in advance,

,

Not necessarily. One of the things I've observed after six years on SCD

(I have a LOT of health issues!) is that people come to the list, get the

help they need with implementing SCD, and then, as their life normalizes

with SCD, they go away, and get on with their lives. (Although I do want

to stress that we're not doctors here, and SCD is not a substitute for

the meds if you need them. Also, one should never consider oneself

" weak " or " a failure " because one needs

meds.)

So the situation may be that there are people who have been able to go

med-free with SCD who have left the list because they no longer need

regular assistance. And that's the great success and joy of SCD.

Some of us stick around to help newcomers as we ourselves were

helped.

—

Marilyn

New Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Hi. I didn't respond to this initially, because I am still taking an

imunosuppressant. I was on Imuran for @ 1-1/2 years. I switched doctors, and the

new one was appalled I was on it and switched me over to purinethol, which is

supposed to be exponentially less toxic. He's tried to wean me off that a couple

times, but it appears I'm on the lowest dose possible (75mg/mcg/can't remember

the measurement. 75 something.)

Kathleen

uc 4/98, scd 8/03

________________________________

> To: BTVC-SCD

> From: LouisianaSCDLagniappe@...

> Date: Wed, 30 Jan 2008 14:38:55 -0600

> Subject: Re: Re: getting off Imuron?

>

>

> At 02:01 PM 1/30/2008, you wrote:

> But I am curious- does this mean no one on this list has come off Imuron? If

there is anyone out there- i'd love to hear about your experience. many thanks

in advance,

>

> ,

>

> Not necessarily. One of the things I've observed after six years on SCD (I

have a LOT of health issues!) is that people come to the list, get the help they

need with implementing SCD, and then, as their life normalizes with SCD, they go

away, and get on with their lives.

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

>

>

>

> Messages in this topic

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[Guest guest]

At 09:16 PM 1/31/2008, you wrote:

I'm hopful the SCD will be as

beneficial for me as it has been for many others I've read about. I want

to be med free.

Bernadette,

Welcome to the list -- and we certainly hope it will be as good for you

as it has been for many of us. We'll certainly give you all the support

we can.

—

Marilyn

New Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund