Question from a new member

[Guest guest]

Hi everyone!

I'm so excited about having found this site! I have a question I would like to

ask the members. I was having a conversation with my granddaughters Dietician

who follows her through the CRS program, and I told her about my discovery of

this site and what a great resource for information I think it will be. She

asked me if I would give her the web site address. I think that would be nice,

but I just wanted to ask if it is an appropriate site for health providers to

use, or just mainly for families of RSS children? By the way, I myself am a

nurse,but I subscribed because I'm Blair's grandmother, not because I'm a nurse.

Could you give some feedback? Is there another site similar to this where health

providers can share information? Thanks a bunch.

Ann(grandmother of Blair, 15 months old, not yet diagnosed) PS: I think I'm

going to go ahead and join the Magic Foundation and send for Dr. H's video.

[Guest guest]

Well, I don't really mind. The only things that come to mind are that some

might not feel as free to vent about their doctors or other caregivers if

they thought some of them might be on the list or might find out through

someone on the list. The other thing is that the dietician probably would

quickly be bored with our conversations. She might rather have you print out

pertinent posts and bring them to her. Just a thought, but again I don't

mind and am happy with anyone who takes an interest in learning more about

our kids.

Kathleen (Mom to Abby--15 mos, 12 lbs. 12 oz, 25 in., not officially

diagnosed RSS yet)

P.S. I have saved some of the old posts that I thought I might want to read

again later and some are about different nutritional supplements and

high-calorie foods. If you're interested and maybe want to share them with

your dietician, I can e-mail them to you directly. Let me know. You can

also find a lot in the archives.

Question from a new member

>From: AKnight322@...

>

>Hi everyone!

>I'm so excited about having found this site! I have a question I would like

to ask the members. I was having a conversation with my granddaughters

Dietician who follows her through the CRS program, and I told her about my

discovery of this site and what a great resource for information I think it

will be. She asked me if I would give her the web site address. I think that

would be nice, but I just wanted to ask if it is an appropriate site for

health providers to use, or just mainly for families of RSS children? By the

way, I myself am a nurse,but I subscribed because I'm Blair's grandmother,

not because I'm a nurse. Could you give some feedback? Is there another site

similar to this where health providers can share information? Thanks a

bunch.

>Ann(grandmother of Blair, 15 months old, not yet diagnosed) PS: I think I'm

going to go ahead and join the Magic Foundation and send for Dr. H's video.

>

>---------------------------