Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Have you tried a DAN doctor to run some tests for yeast or heavy metals? Just a thought. Also, I'm sure you have done blood work of all sorts but sometimes the DAN doctors know of blood tests that our regular pediatricians don't know about, because they pertain mostly to children with autism. -------------- Original message -------------- Does any one have any experience of their child slowing down. By this I mean unable to chew, cheeking food in the mouth, jaw literally locked is in a frozen catatonic state, will stay in that position for a long time until told to move, eyes cannot focus always looking down, having tremors in the limbs. Unable to feed him self. My son 17yrs old has been struggling with these since February of this year. He was admitted in hosp, had eegs, mris, cat scan, seen psychiartist, neurologist, was put on Ativan but became considerably worse. I am now at my wits end as some days he is quite alert, others he seem very tried and will stay in bed the whole day -if we allow him. He is not-verbal which makes it even harder. The doctors have been going round in circles and cannot agree. Has anyone had any expereince of this and if so any treatment that help. Many thanks Not happy with your email address? Get the one you really want - millions of new email addresses available now at Yahoo! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 ,Please don't do what I am about to say, until you have consulted your son's doctors. Ask them if you can ween him off of and stop his meds for a couple of days to see if he improves, then start slowly back including vitamin and nutrient supplements. My son once had a "medication overload" and this is what our doctors had us do. They monitored him very closely during the weening from the meds, and during the short time he was off of them. Once his doses and medications were re-worked he was okay, and hasn't had a problem since. Please make sure all the doctors who prescribe for your son are consulted before you do anything like this.GraceSubject: Autism - Slowing DownTo: sList Date: Wednesday, July 16, 2008, 6:10 PM Does any one have any experience of their child slowing down. By this I mean unable to chew, cheeking food in the mouth, jaw literally locked is in a frozen catatonic state, will stay in that position for a long time until told to move, eyes cannot focus always looking down, having tremors in the limbs. Unable to feed him self. My son 17yrs old has been struggling with these since February of this year. He was admitted in hosp, had eegs, mris, cat scan, seen psychiartist, neurologist, was put on Ativan but became considerably worse. I am now at my wits end as some days he is quite alert, others he seem very tried and will stay in bed the whole day -if we allow him. He is not-verbal which makes it even harder. The doctors have been going round in circles and cannot agree. Has anyone had any expereince of this and if so any treatment that help. Many thanks Not happy with your email address? Get the one you really want - millions of new email addresses available now at Yahoo! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 I am not a neuro, but this sounds like a partial type seizure. My son has had these. EEG's don't always catch seizures. You may want to discuss taking another AED w/ your son's neuro if the ativan is not good for him. Best of luck. Subject: Autism - Slowing DownTo: sList Date: Wednesday, July 16, 2008, 6:10 PM Does any one have any experience of their child slowing down. By this I mean unable to chew, cheeking food in the mouth, jaw literally locked is in a frozen catatonic state, will stay in that position for a long time until told to move, eyes cannot focus always looking down, having tremors in the limbs. Unable to feed him self. My son 17yrs old has been struggling with these since February of this year. He was admitted in hosp, had eegs, mris, cat scan, seen psychiartist, neurologist, was put on Ativan but became considerably worse. I am now at my wits end as some days he is quite alert, others he seem very tried and will stay in bed the whole day -if we allow him. He is not-verbal which makes it even harder. The doctors have been going round in circles and cannot agree. Has anyone had any expereince of this and if so any treatment that help. Many thanks Not happy with your email address? Get the one you really want - millions of new email addresses available now at Yahoo! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2008 Report Share Posted July 17, 2008 This sounds like there is seizure activity involved. The medication is probably causing too many free radicals and hence the slow down and muscle issues. Vit E (around 800 IUs at least) can be very effective for the excessive free radicals. You can check this website that discusses too much medication and effectiveness of Vit. E: http://www.herbs2000.com/disorders/tardive_dysk.htm Also Choline might be helpful for the muscle issue. Badillo Get the scoop on last night's hottest shows and the live music scene in your area - Check out TourTracker.com! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 Was your son on any benzodiazepines and then removed from them during or prior to the catatonia starting? Sometimes rapid removal of these drugs can trigger this state. Also was or is your son on any medications that can cause extrapyramidal side effects, which often mimick catatonia states, ie:antipsycotropic medications can cause this. Anxiety can also be another culprit for onset of catatonia, as is the possibility of schizophrenia, which tends to surface in teenage years. Early in my nursing career I practiced psychiatric medicine and I think you should research all of these avenues prior to making any decisions as to what to do with your son. I hope you are able to find a solution to your sons new onset of symptoms. Beth > > > Does any one have any experience of their child slowing down. By this I mean unable to chew, cheeking food in the mouth, jaw literally locked is in a frozen catatonic state, will stay in that position for a long time until told to move, eyes cannot focus always looking down, having tremors in the limbs. Unable to feed him self. >  > My son 17yrs old has been struggling with these since February of this year. He was admitted in hosp, had eegs, mris, cat scan, seen psychiartist, neurologist, was put on Ativan but became considerably worse. I am now at my wits end as some days he is quite alert, others he seem very tried and will stay in bed the whole day -if we allow him. >  > He is not-verbal which makes it even harder. The doctors have been going round in circles and cannot agree. >  > Has anyone had any expereince of this and if so any treatment that help. >  > Many thanks > > > > __________________________________________________________ > Not happy with your email address?. > Get the one you really want - millions of new email addresses available now at Yahoo! http://uk.docs.yahoo.com/ymail/new.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2008 Report Share Posted July 21, 2008 Hi Beth He was never on any medication. It was when he started having these signs that he was given Ativan.. which did not help. Now he is not on the meds, he comes and goes. For example last week he was so alert and active and this week he has slowed down again. I know for a fact that he was not happy at school, an in the middle of an evaluation for a new placement, but now he is at home, the symptoms are still there. I dont now know what to do really, I may have to find a new set of doctors.......... Thanks Subject: Re: Autism - Slowing DownTo: sList Date: Monday, 21 July, 2008, 4:01 AM Was your son on any benzodiazepines and then removed from them during or prior to the catatonia starting? Sometimes rapid removal of these drugs can trigger this state. Also was or is your son on any medications that can cause extrapyramidal side effects, which often mimick catatonia states, ie:antipsycotropic medications can cause this. Anxiety can also be another culprit for onset of catatonia, as is the possibility of schizophrenia, which tends to surface in teenage years. Early in my nursing career I practiced psychiatric medicine and I think you should research all of these avenues prior to making any decisions as to what to do with your son. I hope you are able to find a solution to your sons new onset of symptoms. Beth>> > Does any one have any experience of their child slowing down. By this I mean unable to chew, cheeking food in the mouth, jaw literally locked is in a frozen catatonic state, will stay in that position for a long time until told to move, eyes cannot focus always looking down, having tremors in the limbs. Unable to feed him self.>  > My son 17yrs old has been struggling with these since February of this year. He was admitted in hosp, had eegs, mris, cat scan, seen psychiartist, neurologist, was put on Ativan but became considerably worse. I am now at my wits end as some days he is quite alert, others he seem very tried and will stay in bed the whole day -if we allow him.>  > He is not-verbal which makes it even harder. The doctors have been going round in circles and cannot agree.>  > Has anyone had any expereince of this and if so any treatment that help.>  > Many thanks> > > > ____________ _________ _________ _________ _________ _________ _> Not happy with your email address?.> Get the one you really want - millions of new email addresses available now at Yahoo! http://uk.docs. yahoo.com/ ymail/new. html> Not happy with your email address? Get the one you really want - millions of new email addresses available now at Yahoo! Quote Link to comment Share on other sites More sharing options...
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