Re-test

[Guest guest]

I need to have the NCV test done again -- seems there's a discrepancy

on the readings from the technologist. Has anyone ever had this

redone and why? I had 2 technicians give me tests and a dr. who did

the needle test. The 2nd technician did seem to have trouble

gathering the proper info on the computer while I was there, so I'm

thinking that's what I need to do over. This time, my neurologist

will be there.

[Guest guest]

I think sometimes with CMT there is confusion because not all nerves are

effected equally. The first test for me was repeated by the technician and

then the head technician and finally by the neuro-doc before they looked

into CMT as a possibility. Since then, retests have been specific nerves

with prior baseline readings and limited in scope just to sense progression

of the disease. - EdM

-----Original Message-----

From: debrah.horvath@... <debrah.horvath@...>

egroups <egroups>

Date: Tuesday, November 28, 2000 6:38 PM

Subject: [] Re-test

>I need to have the NCV test done again -- seems there's a discrepancy

>on the readings from the technologist. Has anyone ever had this

>redone and why? I had 2 technicians give me tests and a dr. who did

>the needle test. The 2nd technician did seem to have trouble

>gathering the proper info on the computer while I was there, so I'm

>thinking that's what I need to do over. This time, my neurologist

>will be there.

>

>

>

>

[Guest guest]

--- I do not know if you are right about taking/not taking medicines

(assume thyroid is what you are refering to...) but, I guess, since

the reason for the test is too see how your body is coping with

treatment, then,taking the medicines makes sense, because the

condition of your body under treatment is the condition of your body

under current treatment, not taking the medicines would create a

body condition which is not your current one(body with daily dosage

of thyroid. I may be wrong, but , if you do not take thyroid on that

day, your test will show a rare event, something not meant in the

treatment, which is, a body w/out it's daily dosage. You already

gotr tested without any thyroid hormone, that was at the begining

of your treatment, when you got diagnosed as hypothyroid, now, the

goal is to see your new levels of T's under treatment.

Correct me if wrong, not taking the med would make the test

inacurate.

}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

In hypothyroidism , " WonderWoman25_2000 "

<smith3_1@m...> wrote:

>

> I read somewhere that you should NOT take your meds on the day of

> your bloodwork (until after test). My doc didn't tell me this, but

> it does make sense ... to test your levels without the effects of

> the meds (mine is senthroid). Is this something she forgot to

> mention? Also, after being on senthroid for 5 weeks, I am

> feeling " ok " , but the lingering problem is headaches. They don't

> usually start till afternoon - but are terribly nagging. I guess

> they could be from sinuses (or jsut about anything for that

matter),

> but they feel like a " mini-migraine " , just not as severe. I also

> take Protonix and it could be that too.

[Guest guest]

i agree with about the need to see what your blood is doing WITH meds.

it seems perfectly logical to me. if someone wanted to see a healthy persons

level of thyroid hormone, they could not stop their body producing it in

order for some endo to see what levels look like with out it! Get your head

around the fact your thyroid is sick, it does not get well, and the hormone

replacement is just that. It is not fixing a damaged organ, it is merely

replacing a deficiency. Take it away, and see how quickly you become hypo

again

hypobod@...

Re: re-test

>

>

> --- I do not know if you are right about taking/not taking medicines

> (assume thyroid is what you are refering to...) but, I guess, since

> the reason for the test is too see how your body is coping with

> treatment, then,taking the medicines makes sense, because the

> condition of your body under treatment is the condition of your body

> under current treatment, not taking the medicines would create a

> body condition which is not your current one(body with daily dosage

> of thyroid. I may be wrong, but , if you do not take thyroid on that

> day, your test will show a rare event, something not meant in the

> treatment, which is, a body w/out it's daily dosage. You already

> gotr tested without any thyroid hormone, that was at the begining

> of your treatment, when you got diagnosed as hypothyroid, now, the

> goal is to see your new levels of T's under treatment.

> Correct me if wrong, not taking the med would make the test

> inacurate.

>

> }}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

>

> In hypothyroidism , " WonderWoman25_2000 "

> <smith3_1@m...> wrote:

> >

> > I read somewhere that you should NOT take your meds on the day of

> > your bloodwork (until after test). My doc didn't tell me this, but

> > it does make sense ... to test your levels without the effects of

> > the meds (mine is senthroid). Is this something she forgot to

> > mention? Also, after being on senthroid for 5 weeks, I am

> > feeling " ok " , but the lingering problem is headaches. They don't

> > usually start till afternoon - but are terribly nagging. I guess

> > they could be from sinuses (or jsut about anything for that

> matter),

> > but they feel like a " mini-migraine " , just not as severe. I also

> > take Protonix and it could be that too.

>

>

>

>

>

>

>

[Guest guest]

WonderWoman25_2000 wrote:

>

> I read somewhere that you should NOT take your meds on the day of

> your bloodwork (until after test)....

Depends on the test. If all they are looking at is TSH, it won't matter.

The change is too slow. Free T3 and free T4 are different. Those will

change within about an hour, especially if what you are taking contains T3.

Chuck

[Guest guest]

--- Hy. I can say that when I took my first test, about 10 mos

ago, I took no medicines because I was not yet under treatment(about

to find out then...)an I got T3 and T4 excessively low, below

minimum( my test numbers were posted already, not in hand, but I

remember how low those were) and the TSH I recall was 101.11 , the

normal is (according to the results) somewhat around 2 to 4 (again,

see my posting some mos ago, DEC), so very high TSH, very low T4 and

T3.

Severa mos later, under 60mg(from 25 to 50 to 60 increases), the

second test gave numbers of TSH 62.XX (again, refere to notes

previously posted) an improvement from a higher number of 101.11,

and in the T3 and T4, T3 was just touching the minimum number on

the range, and T4 was still bellow. For that test I took my Armour

Thyroid on that morning, at 7AM, and the blood test was done at

about noon.

I do not think it was a major factor, nor think it influenced my

test results, and if it did, my numbers were so low(T3 and T4 still

not within the scales, TSH still in the sixties, way off the wall),

but probably that was a fair number, without thyroid on that day,

my blood count would not had been reality, for I take thyroid every

day, a sample without it in my blood will show special

circumstances, and not a daily situation. Since I also heard that

thyroid is a hormone that works in a delayed form( What you are

feeling today is the thyroid you took in 3 weeks to a month ago)and

I sensed it, when I went up in dosis, it kicked in in about 3 weeks

to a month(loss of weight, faster metabolism)...and also learnt that

if you miss a dosis(which I did only 2 times)...there is no real

problem, because your body is using what was absorbed weeks ago, the

body lives out of the accumulated thyroid, todays thyroid is weeks

away from being used, then, in that case, todays dosis would not

matter, it would not be registered in the body, so perhaps it does

not influence the test.

There is also the posibility it can be in the blood(not yet

available to the cells in the body, but yes, already in the blood)

and it can then show upin the blood test, but in my case, if it did,

either it did not influence that much(T3 and 4 still below range at

time of test, and TSH still high)or my numbers are really LOWER,

which would make my amount of TSH and T's alarmingly lower that the

test showed. I was advised by my doctors office I could take my

thyroid, and only that(no food 12 hours prior) before the test. I

will ask tomorrow, I have an appointment tomorrow.

Masiste.>>>

" weight In hypothyroidism , " Gracia " <circe@g...>

wrote:

>

> the test itself is inaccurate!!!!! We should not be treated to

the test,

> but I think the use of T4 meds and TSH go together. Most hypos are

> undertreated, so we have learned not to take meds before the

test. Better

> to go to a knowledgeable doc, who doesn't rely on the test.

> Gracia

>

> >

> >

> > --- I do not know if you are right about taking/not taking

medicines

> > (assume thyroid is what you are refering to...) but, I guess,

since

> > the reason for the test is too see how your body is coping with

> > treatment, then,taking the medicines makes sense, because the

> > condition of your body under treatment is the condition of your

body

> > under current treatment, not taking the medicines would create a

> > body condition which is not your current one(body with daily

dosage

> > of thyroid. I may be wrong, but , if you do not take thyroid on

that

> > day, your test will show a rare event, something not meant in

the

> > treatment, which is, a body w/out it's daily dosage. You already

> > gotr tested without any thyroid hormone, that was at the

begining

> > of your treatment, when you got diagnosed as hypothyroid, now,

the

> > goal is to see your new levels of T's under treatment.

> > Correct me if wrong, not taking the med would make the test

> > inacurate.

> >

> > }}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}}

> >

> >