Re: SCD and Crohns related lungdecease

[Guest guest]

Well - that was sort of my point.

I couldn't find anything, but I was hoping someoneelse had/could.

As this is a lung decease directly linked to Crohns - which is a

gastric decease - I had hoped.

Ofcourse I could still do SCD anyway.

It would have been nice to know what experience other SCDers had with

this very specific aspect af Crohns - an otherwise typically gastric

decease.

Thank you for your time and trouble.

Arielle

> >>

>

>

> Carol F.

> Celiac, SCD 8 years,MCS, Latex Allergy

> http://www.celiac.com/authors/143/Carol-Frilegh

> http://www.talkaboutcuringautism.org/gfcf-diet/sc-diet.htm

>

[Guest guest]

Arielle / KrisV,

Well, welcome, in your peregrinations of lists, to the latest incarnation

of a primary SCD list.

I think I do dimly recall you from my early days on the Long Island list

serve -- but anyone who's just starting the diet knows how confusing it

can be!

I'd probably do a search on " Crohn's Disease in Lungs " or

" Crohn's Disease of the Lungs " and see what turned up.

That, however, isn't going to answer whether SCD might help the

situation.

I don't have Crohn's, " just " undiagnosed IBS, but I can tell

you that pre-SCD, I typically had a major respiratory infection every

three to four months. Since SCD? Once every 18 months or so, and usually

mild enough that I can fight it with lots of Vitamin C and quercetin, and

don't need to see the doc for antibiotics. Heck same with the flu

-- I'm far less likely to catch this stuff since going -- and staying --

SCD.

Did SCD help my lungs? Don't know... but we do know that gut issues, even

non-obvious ones, can be linked to an amazing set of symptoms.

We know, for instance, that the die-off of bad bacteria can result in

flu-like symptoms, including lung issues. It seems likely, to me, that

SCD, at the very least, would give you the healthiest basis for

combatting the situation.

You've probably forgotten more than we know about SCD, but we'll be glad

to help you refresh your memory, and be here to lean on.

Please keep us posted about what you discover, as well! I'd certainly

never heard of this!

—

Marilyn

New Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Hi, I have crohns disease and I've had it acute in my stomach. I haven't heard of it in the lungs either but since it's an inflammatory disease and it helped before, why not give it a shot? I've heard of eye problems, crohn's related arthritis (I've been dx'd with that but couldn't begin to spell it). I've also heard of skin problems with crohn's disease.

Good luck on whatever you decide.

Debbie 38 crohn's

scd restart 1/07

Arielle / KrisV,Well, welcome, in your peregrinations of lists, to the latest incarnation of a primary SCD list.I think I do dimly recall you from my early days on the Long Island list serve -- but anyone who's just starting the diet knows how confusing it can be!

I'd probably do a search on " Crohn's Disease in Lungs " or " Crohn's Disease of the Lungs " and see what turned up.That, however, isn't going to answer whether SCD might help the situation.

I don't have Crohn's, " just " undiagnosed IBS, but I can tell you that pre-SCD, I typically had a major respiratory infection every three to four months. Since SCD? Once every 18 months or so, and usually mild enough that I can fight it with lots of Vitamin C and quercetin, and don't need to see the doc for antibiotics. Heck same with the flu -- I'm far less likely to catch this stuff since going -- and staying -- SCD.

Did SCD help my lungs? Don't know... but we do know that gut issues, even non-obvious ones, can be linked to an amazing set of symptoms. We know, for instance, that the die-off of bad bacteria can result in flu-like symptoms, including lung issues. It seems likely, to me, that SCD, at the very least, would give you the healthiest basis for combatting the situation.

You've probably forgotten more than we know about SCD, but we'll be glad to help you refresh your memory, and be here to lean on. Please keep us posted about what you discover, as well! I'd certainly never heard of this!

— Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund

[Guest guest]

Hi Marilyn,

Thank you for your encouraging words.

I think I panicked. And I slowly coming out of that panick fase.

I really thought I was cured and never expected to get in the lungs

of all places!

And I think your right. While I was on SCD - I had way less colds,

flues and resperatory infections.

If nothing else it may actually give me some respiratory relief. I'm

very short of breath and have alot og pain in my lungs and back.

SCD may not be able to cure it. But not much medicin seems to be

able to either. I need a few more examintions - but my doctor

thought that my only optiones where budosonid and Prednisolon. Ick.

I've been searching the web and have found others who have gotten

Crohns in the lungs. Those I found seemed just as panicked as I was!

But none of them had tried the SCD.

There is a " Gut & Brain connection " so why not a " Gut & Lung

connection " !

I'm still somewhat flustered and I am really battleling the

feeling " It's not fair! " I know. I know. Typical rooky reaction. I

just need a little more time pull myself together and get into gear

again.

Hey - I did it once, right!

I'll keep you all posted.

Thanks for the support.

Arielle

From Denmark

>

>

> Arielle / KrisV,

>

> Well, welcome, in your peregrinations of lists,

> to the latest incarnation of a primary SCD list.

>

> I think I do dimly recall you from my early days

> on the Long Island list serve -- but anyone who's

> just starting the diet knows how confusing it can be!

>

> I'd probably do a search on " Crohn's Disease in

> Lungs " or " Crohn's Disease of the Lungs " and see what turned up.

>

> That, however, isn't going to answer whether SCD might help the

situation.

>

> I don't have Crohn's, " just " undiagnosed IBS, but

> I can tell you that pre-SCD, I typically had a

> major respiratory infection every three to four

> months. Since SCD? Once every 18 months or so,

> and usually mild enough that I can fight it with

> lots of Vitamin C and quercetin, and don't need

> to see the doc for antibiotics. Heck same with

> the flu -- I'm far less likely to catch this

> stuff since going -- and staying -- SCD.

>

> Did SCD help my lungs? Don't know... but we do

> know that gut issues, even non-obvious ones, can

> be linked to an amazing set of symptoms.

>

> We know, for instance, that the die-off of bad

> bacteria can result in flu-like symptoms,

> including lung issues. It seems likely, to me,

> that SCD, at the very least, would give you the

> healthiest basis for combatting the situation.

>

> You've probably forgotten more than we know about

> SCD, but we'll be glad to help you refresh your

> memory, and be here to lean on.

>

> Please keep us posted about what you discover, as

> well! I'd certainly never heard of this!

>

>

> — Marilyn

> New Orleans, Louisiana, USA

> Undiagnosed IBS since 1976, SCD since 2001

> Darn Good SCD Cook

> No Human Children

> Shadow & Sunny Longhair Dachshund

>

[Guest guest]

Hi Debbie,

Yeah - I have the Crohns related arthritis, too - and cant spell it

either!

Hmmm. Stomach and skin? Both sound nasty.

My doc did say the Crohns can be very aggressive and that it could

spread - but I think I just assumed it only meant spreading to the

small intestine and creating fistulas and the like.

And you'r right - I've been thinking exactly the same - Why not give

it a shot! I had very good success previously - cann't hurt....

I just feel so tired - I think I ran into a spot of dispair, and I'm

just now shaking it of.

I'm in a middle of a rather nasty flare - if one can call it that

when it's in the lungs and it's always more difficalt starting

something like the SCD diet in the midst of a flare.

But I'm actually prabably fortunate that it's not completely new. I

wont be going through the utter confusion I had the time around!

Okay - I'm rambling. I should probably go to bed now!

Thanks for the support.

I'll keep you posted!

Arielle

From Denmark

>

[Guest guest]

hey arielle,

i'm so sorry about your current situation. i never knew one of the

extraintestinal manifestations of crohn's can occur in the lungs- how

scary.

im new to this scd thing (4+ months) and if you've been through it

before i'm sure you'll settle right back in! everyone is so helpful

and nice- it really is a wonderful community.. i'm sure it was like

that back in the day too!! everyone has made me feel right at home

even with all my ridiculous questions and rants!

if you don't mind- where did you find others on the web that also have

CD in lungs?

i hope you feel better-

jodi

>

> Hi Marilyn,

>

> Thank you for your encouraging words.

>

> I think I panicked. And I slowly coming out of that panick fase.

>

> I really thought I was cured and never expected to get in the lungs

> of all places!

>

> And I think your right. While I was on SCD - I had way less colds,

> flues and resperatory infections.

>

> If nothing else it may actually give me some respiratory relief. I'm

> very short of breath and have alot og pain in my lungs and back.

>

> SCD may not be able to cure it. But not much medicin seems to be

> able to either. I need a few more examintions - but my doctor

> thought that my only optiones where budosonid and Prednisolon. Ick.

>

> I've been searching the web and have found others who have gotten

> Crohns in the lungs. Those I found seemed just as panicked as I was!

> But none of them had tried the SCD.

>

> There is a " Gut & Brain connection " so why not a " Gut & Lung

> connection " !

>

> I'm still somewhat flustered and I am really battleling the

> feeling " It's not fair! " I know. I know. Typical rooky reaction. I

> just need a little more time pull myself together and get into gear

> again.

>

> Hey - I did it once, right!

>

> I'll keep you all posted.

>

> Thanks for the support.

>

> Arielle

> From Denmark

[Guest guest]

Arielle - welcome back - I'm just a newbie - 5 weeks in - but am so

sorry to hear of you going thru this - I hope scd can help - I'll

say a prayer

eileen :-)

> >

> > Hi Marilyn,

> >

> > Thank you for your encouraging words.

> >

> > I think I panicked. And I slowly coming out of that panick fase.

> >

> > I really thought I was cured and never expected to get in the

lungs

> > of all places!

> >

> > And I think your right. While I was on SCD - I had way less

colds,

> > flues and resperatory infections.

> >

> > If nothing else it may actually give me some respiratory relief.

I'm

> > very short of breath and have alot og pain in my lungs and back.

> >

> > SCD may not be able to cure it. But not much medicin seems to be

> > able to either. I need a few more examintions - but my doctor

> > thought that my only optiones where budosonid and Prednisolon.

Ick.

> >

> > I've been searching the web and have found others who have gotten

> > Crohns in the lungs. Those I found seemed just as panicked as I

was!

> > But none of them had tried the SCD.

> >

> > There is a " Gut & Brain connection " so why not a " Gut & Lung

> > connection " !

> >

> > I'm still somewhat flustered and I am really battleling the

> > feeling " It's not fair! " I know. I know. Typical rooky reaction.

I

> > just need a little more time pull myself together and get into

gear

> > again.

> >

> > Hey - I did it once, right!

> >

> > I'll keep you all posted.

> >

> > Thanks for the support.

> >

> > Arielle

> > From Denmark

>