Guest guest Posted March 21, 2000 Report Share Posted March 21, 2000 Hi Jodi, We live in Livingston . I know where Madison is. (It is very close.) Ann Rajan. Re: New Member > > >Ann, > >Where in NJ do you live? We are in Madison, just outside of town. >There are a few of us on this list who are from NJ. > >Jodi >> > ------------------------------------------------------------------------ >> >> >> > > > >------------------------------------------------------------------------ >GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9% >Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! >http://click./1/936/0/_/229381/_/953689638/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 I grew up in South Orange, then my parents moved to New Vernon when I was in college. I drive through Livingston every day in the summer because I am a supervisor at a day camp for children with special needs. It is in West Orange at the Schecter School on Pleasant Valley Way. Small world!!! Jodi Re: New Member > > > > > > > >Ann, > > > >Where in NJ do you live? We are in Madison, just outside of town. > >There are a few of us on this list who are from NJ. > > > >Jodi > >> > > ------------------------------------------------------------------------ > >> > >> > >> > > > > > > > >------------------------------------------------------------------------ > >GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9% > >Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! > >http://click./1/936/0/_/229381/_/953689638/ > >------------------------------------------------------------------------ > > > > > > > ------------------------------------------------------------------------ > MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > http://click./1/2122/0/_/229381/_/953711416/ > ------------------------------------------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 Hi All, I have a strange question to ask. Does anyone out there, know what the chances are of having another child with RSS or IUGR. We have two children,a seven year old who seems to be following the normal height and weight charts (50%), and Lena ( who you all know so much about now). Lena does not have a diagnosis at this point so we do not know what the problem is. I personally feel it is either RSS or RSS-like symptoms. Certainly, some growth problem is there. We will know in May, I hope. We have been thinking of baby # 3. What has kept us from having one earlier is the prospect of having to go through all of this " stuff " again. We love our Lena like anything, but the thought of going through the last four years ( which has been very tough on her and us) again is a little daunting, to say the least. As well, are there any precautions one can take to try to have a non-IUGR child? My first pregnancy was very normal. No problems what so ever. With the second pregnancy, which was Lena, although there was nothing major, I did have some minor problems. 1)When they did the AFP test ( alpha fetal protein), my tests came back abnormal. First it was high and than low. We did the amino. and a very extensive ultra sound and found that everything was fine. (They scared the living daylights out of us first, though). We were told after everything was o.k., that this test results in a high positive outcome. Apparently, it was strange to have a result which showed both high and low results. ( I felt the first calculation was wrong, because I knew the exact dates of conception and knew when they drew the blood it would be wrong, because they were basing it on the last day of my period rather than the date of conception. I was basically off my cycle. The second test which was done after an ultrasound, was a back calculation based on what they thought was the actual age.) The result of all this was that I was very stressed during the initial months of pregnancy and never really relaxed till the end. Is there a stress component to all this IUGR/Rss? 2) The second unusual aspect of the pregnancy was the toxemia. Which resulted in my having to be induced a month early. They claim they caught it early enough before there was damage. Thanks for any info., Ann Rajan. Re: Jodi > > >I grew up in South Orange, then my parents moved to New Vernon when I was in >college. I drive through Livingston every day in the summer because I am a >supervisor at a day camp for children with special needs. It is in West >Orange at the Schecter School on Pleasant Valley Way. Small >world!!! > >Jodi > Re: New Member >> >> >> > >> > >> >Ann, >> > >> >Where in NJ do you live? We are in Madison, just outside of town. >> >There are a few of us on this list who are from NJ. >> > >> >Jodi >> >> >> > ------------------------------------------------------------------------ >> >> >> >> >> >> >> > >> > >> > >> >------------------------------------------------------------------------ >> >GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 2.9% >> >Intro or 9.9% Fixed APR and no hidden fees. Apply NOW! >> >http://click./1/936/0/_/229381/_/953689638/ >> >------------------------------------------------------------------------ >> > >> > >> >> >> ------------------------------------------------------------------------ >> MAXIMIZE YOUR CARD, MINIMIZE YOUR RATE! >> Get a NextCard Visa, in 30 seconds! Get rates as low as >> 0.0% Intro or 9.9% Fixed APR and no hidden fees. >> Apply NOW! >> http://click./1/2122/0/_/229381/_/953711416/ >> ------------------------------------------------------------------------ >> >> >> > > > >------------------------------------------------------------------------ >PERFORM CPR ON YOUR APR! >Get a NextCard Visa, in 30 seconds! Get rates as low as >0.0% Intro or 9.9% Fixed APR and no hidden fees. >Apply NOW! >http://click./1/2121/0/_/229381/_/953731811/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 Hi Ann... I can't shed light on your major question, but I can tell you that those AFP tests can often give you false positive results. The timing is critical! We were so traumatized by the up and down of our AFP testing with , that we vowed not to ever get tested again. What was the point? Just so that we would get percentages that we would then have to lose sleep over? So, my two cents..I would not make decisions based on your AFP experiences.! Katy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2000 Report Share Posted March 22, 2000 Ann R. - My alpha feta tests came back abnormal also, they just changed my date, didn't really look much further until they were about to push it back the 3rd time, which would have been 3 months - though I was POSITIVE when she was conceived (I had the whole ovulation chart, temperature taking thing going) - anyway, just thought that was interesting about the alpha feta protien test...anyone else have an abnormal one? hasn't been diagnosed yet either (seeing Dr. H in 2 WEEKS, hoping she'll tell me SOMETHING!) - But thought this may help - Jes' geneticist hasn't said this in exact words, but basically doesn't have a clue what is wrong with Jes, but has said that in general terms our chances of reoccurance are 25% - this is very general since there is no diagnosis, but could possibly apply to Lena also - though I'm no geneticist (even though I feel like I know more than Jes' sometimes!) - Hope this helps a little..... , mom to Jes(2 in 2 wks!!!! ), (4 11/12) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2008 Report Share Posted February 14, 2008 i was on a wild goose chase too. my pcp at the time when i lived in boston immediately knew the signs because of some condition her family member had. so she sent a letter to my GI and he sent me to a neurologist and i had a whole bunch of MRI's done that came out totally normal. i would start with a really good neurologist. because you need an mri. jodi is the heat/veins as intense? > > in regards to the cerebral spinal fluid - you mentioned your pcp > figured it out - so far i've stumped 2 gi's and the pcp - wouldn't you > think it should be a neurologist that i see next (in regards to the > hands over-reacting to heat)as opposed to rheumotologist as pcp > guessed??? > thanks > eileen 5 weeks > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 thanks so much that makes more sense to me eileen > > > > in regards to the cerebral spinal fluid - you mentioned your pcp > > figured it out - so far i've stumped 2 gi's and the pcp - wouldn't you > > think it should be a neurologist that i see next (in regards to the > > hands over-reacting to heat)as opposed to rheumotologist as pcp > > guessed??? > > thanks > > eileen 5 weeks > > > Quote Link to comment Share on other sites More sharing options...
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