Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 I like it too Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 Sounds good to me.\ Sharon Mom to (10, DS) and (6) An Idea > Hi! > > One of the special things about this list is that it provides a lot of > support for it's members. From time to time, folks on this list or their > children may go though a particularly difficult time. I was thinking it > might be cool to set up a sort of " Sunshine fund " whereby during difficult > times the fund could be used to send flowers, balloons to s sick child in > the hospital or even a gift certificate to a restaurant (Bennigans, > TGIF...) for parents who desperately need a break... > > The fund would get it's cash flow through voluntary donations and could be > overseen by a board of say 4 - 6 volunteers. 1 treasurer and the other > members to take nominations and to reach consensus on whether a nomination > was adequately meritirious. There would of course need to be some > guidelines with regard to things like a cap per single expenditure... > > What brought the idea for this fund to mind was I know 2 parents on this > list who have really gone the extra mile fighting the good fight on behalf > of their child in terms of time, emotional energy and financial > expenditures and I was thinking to myself " wow they could really use a > date " I really wish I could send them on one. > > If folks like the idea lets make it happen. Right now I don't think I > would have the time to participate as anything other than to contribute > funds but I would love to see it come to fruition none the less. > > What do folks think? > > > Take Care, > > > Kent > > > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 What brought the idea for this fund to mind was I know 2 parents on this list who have really gone the extra mile fighting the good fight on behalf of their child in terms of time, emotional energy and financial expenditures and I was thinking to myself " wow they could really use a date " I really wish I could send them on one. Count me in Kent. I think you are referring to a couple that I am aware of and they do not want go post what they are going through on any lists right now. If you are talking about who I think you are...man, my heart does go out to them right now! From being online and networking with parents for over eight years now, I noticed that when things get truley bad (life stressors), they don't post. But they do remain in my thoughts and prayers We have a Sunshine fund at work. We use it for Birthday celebrations. There have been times here on the list that I wish we had something..especially when a child dies. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 I like it! Count me in. B GOD BLESS AMERICA ! An Idea Hi! One of the special things about this list is that it provides a lot of support for it's members. From time to time, folks on this list or their children may go though a particularly difficult time. I was thinking it might be cool to set up a sort of " Sunshine fund " whereby during difficult times the fund could be used to send flowers, balloons to s sick child in the hospital or even a gift certificate to a restaurant (Bennigans, TGIF...) for parents who desperately need a break... The fund would get it's cash flow through voluntary donations and could be overseen by a board of say 4 - 6 volunteers. 1 treasurer and the other members to take nominations and to reach consensus on whether a nomination was adequately meritirious. There would of course need to be some guidelines with regard to things like a cap per single expenditure... What brought the idea for this fund to mind was I know 2 parents on this list who have really gone the extra mile fighting the good fight on behalf of their child in terms of time, emotional energy and financial expenditures and I was thinking to myself " wow they could really use a date " I really wish I could send them on one. If folks like the idea lets make it happen. Right now I don't think I would have the time to participate as anything other than to contribute funds but I would love to see it come to fruition none the less. What do folks think? Take Care, Kent Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2002 Report Share Posted February 18, 2002 I think this is a swell idea! I'm afraid my contribution would be limited to cash rather than time...:-) Karla in Texas Kent Moreno wrote: > Hi! > > One of the special things about this list is that it provides a lot of > support for it's members. From time to time, folks on this list or their > children may go though a particularly difficult time. I was thinking it > might be cool to set up a sort of " Sunshine fund " whereby during difficult > times the fund could be used to send flowers, balloons to s sick child in > the hospital or even a gift certificate to a restaurant (Bennigans, > TGIF...) for parents who desperately need a break... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2002 Report Share Posted February 19, 2002 In a message dated 2/17/2002 6:54:37 PM Eastern Standard Time, Kent_Moreno@... writes: > . I was thinking it > might be cool to set up a sort of " Sunshine fund " Kent! That's an awesome idea.....count me in as well. What a wonderful way to show a little extra support during those awful times. ~Sandy O. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2002 Report Share Posted October 29, 2002 I think tihs is a very good idea, the key would be to be able to fit persons with different measurements not just the height and inseam, I would be interested if you get this started. Mike Dibben an idea I was wondering if any little people would be interested in clothes especially made for little people. If I get enough interest I am planning on starting a small company to do just that. I would have competitive prices, quality clothing and a lot more research to do! let me know what you guy think. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 Hiya, Don't know how many NY'ers you have in line, but I'd love to be part of your idea. Colleen J and I do totally different products too. She M & P Me HP. Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 Oh fer cryin out loud... wrong email addy AGAIN! I don't get it.. I know I cut and pasted the addy for this one. Sorry Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 Ter, I figured that was the case LOL Shaye Re: Re: an idea Oh fer cryin out loud... wrong email addy AGAIN! I don't get it.. I know I cut and pasted the addy for this one. Sorry Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2002 Report Share Posted November 8, 2002 I don't know what the deal is... probably operator error! lol Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 Sure, count me in! I usually read the obits anyway (to make sure I'm not listed!) : ) I always wonder when I see an infant listed. There was one last week in the paper, picture and all. It didn't list a cause of death (nothing obvious like cancer, CF or anything). Kay **************** Good! I would like to send them the actual paper cuttings just for the effect of it though. Can you imagine a box full of obits for them to read all vaccine related? It may take us a while but lets get started OK? Anyone else? All the best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 In a message dated 12/18/2003 9:48:47 AM Pacific Standard Time, Vaccinations writes: > Re: AN IDEA > Count me in as well, I'll start keeping track of of obits and articles regarding infant death. Where would you like them sent? , California Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 I Joan -- Actually, a year ago the GI specialist I saw for my ulcer told me that they're already working on such a product, but that it will likely be a decade or more until they work out all the kinks. (I travel out of state for my achalasia specialist, but see a local GI specialist for non-achalasia stuff.) Merry Christmas to you too! Debbi in Michigan Hi Folks, I have an idea - ours is a disease caused by nerves which no longer send messages to the oesophageal muscles. What we need now is a kind of "pacemaker" a gismo with a battery which will stimulate the muscles to work. Any inventor around? Have a happy stress free Christmas! Joan Johannesburg South Africa jpearse@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 Bev, If this is something you would like to pursue please feel free to do so. I won't be able to participate because I only have a cell phone with very limited minutes on it. But others may enjoy this much more! Would you be interested in organizing an event for ? =) Robynn [ ] An idea Personally I find chat rooms sort of clunky, and I can't always get them to work... especially right now when my computer is giving me multiple kinds of grief. I want to mention something I found recently that's really cool and FREE. It's www.freeconference.com and " the organizer " of the chat gives out a master number to call and a PIN number. Then anyone you tell about it can call in (each participant pays the long-distance charge from their phone, if any, but that's all), join in and REALLY chat. If I knew there was one of those scheduled, I'd be much more motivated to try and make it in on the conversation. You don't need a computer, you just use a phone. I've even joined on on stuff using my cell phone. You can either set it up ahead of time, or do it spontaneously. You might want to check it out. bev feldman Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2005 Report Share Posted April 8, 2005 Bonnie, Unfortunately, I am pretty ignorant when it comes to doing that kind of stuff so I have no idea how to set it up or maintain it. LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2005 Report Share Posted April 8, 2005 , I would like that! I have mental pictures of many of the people who post here, curious as to how they match reality! Someone would have to maintain it, perhaps it could be attached to the LL website and password protected (Rashelle?).... Bonnie An idea You know what I think would be great? A file that we could have a little scrapbook of pictures of everyone. It would be so nice to have a face to put with everyone's name. What do you think? Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2005 Report Share Posted April 8, 2005 Great idea! Melinda ) An idea You know what I think would be great? A file that we could have a little scrapbook of pictures of everyone. It would be so nice to have a face to put with everyone's name. What do you think? Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2005 Report Share Posted April 8, 2005 That would be really fun! Can't we just post our pictures in the photo section within the group? > Great idea! > > Melinda ) > An idea > > > You know what I think would be great? A file that we could have a little > scrapbook of pictures of everyone. It would be so nice to have a face to put with > everyone's name. > > What do you think? > > Love, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2005 Report Share Posted April 9, 2005 I would love to have you send me some photos to my lifelift email address so I can have them posted to the group site. It is fun to be able to put a face to a name. Take care, Rashelle Harness the Powerful Benefits of Oxygen with LifeLift. Oxygen burns fat, tones muscles, reduces stress Breathe in the most efficient way possible with Life Lift! www.oxygenlift.net. Life Lift is the Original Aerobic Breathing An idea You know what I think would be great? A file that we could have a little scrapbook of pictures of everyone. It would be so nice to have a face to put with everyone's name. What do you think? Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2005 Report Share Posted September 9, 2005 I live in Simi Valley CA Marjory -----Original Message----- From: samters [mailto:samters ]On Behalf Of jbsjbs21 Sent: Friday, September 09, 2005 11:32 AM samters Subject: an idea i was thinking that maybe we could all also post where we live, maybe some of us live near each other or have gone to the same doctors and do not even know it! I live in Atlanta GA . Anyone else? ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2005 Report Share Posted September 9, 2005 Fort , Colorado. I have also posted a fairly detailed chronicle of my experiences with Samter's. I hope everyone enjoys it (not that it makes for pleasant reading material, though) and I hope to read how others have dealt with their conditions, as well. Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2005 Report Share Posted September 9, 2005 Tim, thanks for being the first to post your story. And what a story it is. In terms of location, and doctors, and other basic info, let me remind all members of our contact list in the DATABASE at samters/database and suggest they take the time to fill in the columns for themselves. This allows a quick search by city, or meds, or whatever. As the stories accumulate, this will be a quick way to find the people whose stories may be of particular interest. -- Ken West Check the library . . . samters/links > From: " mr_timbalaya " <timbalaya@...> > Fort , Colorado. > > I have also posted a fairly detailed chronicle of my experiences with > Samter's. I hope everyone enjoys it (not that it makes for pleasant > reading material, though) and I hope to read how others have dealt > with their conditions, as well. > > Tim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2005 Report Share Posted September 9, 2005 I'll probably take the prize for furthest away. I'm in Australia. an idea i was thinking that maybe we could all also post where we live, maybe some of us live near each other or have gone to the same doctors and do not even know it! I live in Atlanta GA . Anyone else? ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2005 Report Share Posted September 11, 2005 , how far is that from LaLa Land? (that is where my kids say I live most of the time!)lol. Trudy. > I'll probably take the prize for furthest away. > I'm in Australia. > Quote Link to comment Share on other sites More sharing options...
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