Re: Young Girls not yet diagnosed

[Guest guest]

Hi Danna---I forget..What is hypospadius???

Thanks!

Katy

[Guest guest]

Hi,

I've never really given in thought to not being RSS. He was born

with another little marker for RSS, he had a hypospadias which is relatively

common with RSS boys. But when you think about it, I don't know that it's

not a marker for other syndromes also. Has anyone else heard of another

syndrome with Hypospadias as a diagnosing factor? I know that boys can have

it with no syndromes at all.

Danna

Young Girls not yet diagnosed

> From: monosolo@...

>

> Sapphire was born @ 38 weeks 3lbs 2oz - She obviously had IUGR. I

received

> some info on IUGR which went on to include RSS - one could understand how

it

> followed IUGR but I couldn't or did't want to see those traits in

Sapphire.

> Reading about RSS helped me to understand the feeding problems I was

having

> with Sapphire but nothing else seemed to fit.

> Time is moving on now - she is 9 months old - still without a conclusive

> diagnosis I have great faith in Dr S @ GOS but can he contradict three

other

> peads who think she's RSS when he believes it is s Syndrome-

probably

> yes.

> I understand from another member that Dr H believes too many children are

> diagnosed with RSS when they are infact not.

> Have any of you had tests for s? Like RSS it is a syndrome made up

of

> some of many of the traits listed but there is an overlap between the

traits

> for both syndromes.

> What I believe may not be Gospel it is just my interpretation - I am open

to

> correction or any more help.

>

> What do you think?

>

> Kindness always -

>

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[Guest guest]

Hi Dana,

When Josh was first born he was misdiagnosed with congenital adrenal

hyperplasia. The neonatal doctor would always refer to what he thought was

hypospadius as " his funny little penis " You can only imagine how my husband

reacted to that. Anyway that disorder also presents with hypospadius. As

it turns out Josh doesn't even have that. He's got some rare condition

where the fore skin is formed more so on the underside of the penis than on

the top. He also has a natural circ. Hopefully this spring he'll have some

plastic surgery to correct it!

- Mom of (13mons) & (3yrs)

[Guest guest]

Hi Katy

A hypospadias is when the urethra doesn't go all the way to the top of

the penis of is placed in a placed in a odd place on top. has a

second degree hypospadias and to put in layman's he peed at the spot where

the scrotum attaches to the penis. I'm sure anyone else could explain all

this better, but had to have a reconstruction of the whole underside

of his penis. He sprang a leak from the last surgery and will have to have

it repaired at the end of this month. It was explained to me as being

another way the body was sacrificed to preserve the brain during invetro.

Gee, I'm glad we're adults only now, I'd be afraid to put all this to print

if I knew children would read it.

On a unrelated subject my lovely little boy dumped my coffee on the

key-board this evening and it took me and my husband quite a little bit of

sweat & guess work to get it dried out. I was ready to cry, and Buck got on

the phone and found out what to do. I had been trying to dry it out with

the hairdryer. After we opened it up I saw why the dryer wasn't doing the

trick.

I suppose I've stalled long enough on doing my homework, I'm doing

finals this week and I need to get to work.

Danna Mom to Carol 12 10 and nearly .

Re: Young Girls not yet diagnosed

>

>

> Hi Danna---I forget..What is hypospadius???

>

> Thanks!

> Katy

>

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>

>

[Guest guest]

Me Again, I forgot to add he had severe cordee that was fixed during the

first surgery.

Danna

Re: Young Girls not yet diagnosed

>

>

> >

> >

> > Hi Danna---I forget..What is hypospadius???

> >

> > Thanks!

> > Katy

> >

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> > Intro or 9.9% Fixed APR and no hidden fees. Apply NOW!

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> >

> >

> >

>

>

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[Guest guest]

,

Men are so protective over certain parts of their anatomy, they never

think of all the dr.s, nurses, OBGYN's, who see our fannies when we have

baby's, my gosh, I felt like they brought in a few orderlies and the

cleaning lady when I had my first baby.

Danna

Re: Young Girls not yet diagnosed

>

>

> Hi Dana,

> When Josh was first born he was misdiagnosed with congenital adrenal

> hyperplasia. The neonatal doctor would always refer to what he thought

was

> hypospadius as " his funny little penis " You can only imagine how my

husband

> reacted to that. Anyway that disorder also presents with hypospadius. As

> it turns out Josh doesn't even have that. He's got some rare condition

> where the fore skin is formed more so on the underside of the penis than

on

> the top. He also has a natural circ. Hopefully this spring he'll have

some

> plastic surgery to correct it!

> - Mom of (13mons) & (3yrs)

>

>

>

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> GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0%

> Intro or 9.9% Fixed APR and no hidden fees. Apply NOW!

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>

>

[Guest guest]

In a message dated 3/14/00 6:06:21 AM Pacific Standard Time,

danna5@... writes:

<< ,

Men are so protective over certain parts of their anatomy, they never

think of all the dr.s, nurses, OBGYN's, who see our fannies when we have

baby's, my gosh, I felt like they brought in a few orderlies and the

cleaning lady when I had my first baby.

Danna >>

Heck,I didn't care if they brought in the cooks from the kitchen if they

could help get those babies out.

Grandma Ann