nuero visit/some cc/sorta long

[Guest guest]

Hi all,

Went to neuro yesterday who originally figured out the Chiari. I am

not sure why I haven't gone back to him before now!! Nevertheless,

he took a gallon of blood (a little exaggerated = 10 tubes) and I am

scheduled for an MRI/Flow Study on Friday morning. He was

thouroughly pisst that I had the Fibromyalgia dx with just a tender

point work up and nothing else. He said these Rhuemotologists are

just dx'ing FMS like crazy lately when they really don't know what is

wrong. Instead of sending you to another specialist they stop and

give you the FMS dx. He said I could still come up with FMS but he

is not a believer in that until everything else has been exhausted!!

He is the same neuro that said the first two neuros who couldn't

figure out I had a Chiari malformation let alone spell it were

idiots!! Tell me again why I didn't go back to this neurologist?? I

forgot about him thru all the surgery etc etc.

He is testing for several things, lupus, kidneys, thyroid, arthritis

blah,blah,blah. My thyroid on both sides are enlarged and I have

been having a difficult time with swallowing but just figured it was

due to no gag reflex and result of having chiari. He said maybe it

is muscles around your neck but it sure seemed like my thyroid and it

is always good to check it out thoroughly. Gosh, if all this turns

out to be Thyroid problems and not alot effects of Chiari/syrinx,

what a waste of time this last year has been. I am not getting hopes

up but it would be nice to not have to worry about brain problems!!

I have alot of the symptoms of Hypothyroid and possibly a goiter

since that runs in the family.

Well, I guess I will find out results of MRI tomorrow. Take care all

and feel better.

Tina

ACM 1 & Syrinx

Decompressed 7/99

FMS dx 5/00