Questions and Answers (I hope)

[Guest guest]

Hi everyone,

Question 1). I have a couple of questions. About a month ago Janet and I

were looking over a tape from Magic. It was Dr. Harbison's presentation from

2 or 3 years ago. In it she stated she didn't want to start an RSS child on

growth hormone until he reached the 50th (that's right 50th) percentile.

Does any one recall that? Was she talking in general or about an individual

case.

Question 2). If any one is using a speech and or physical therapist can

you send their name and phone number. 's speech therapist would like to

talk to them about RSS kids.

Comments about weighing and measuring.

When we first learned had RSS we measured every bit of food that went

in his mouth for 4 months. Now we only do it for 3 days before we see the

nutritionist. It is quite a chore that is made somewhat simpler by a food

scale. It would be even simple if we could find a calorie counting/meal

planning program that runs on a Mac. I know that there are a couple of

excellent ones for about $50 that run on a PC.

We weigh once a week (Sunday Morning before breakfast). We also record

those weights and bring them to the pedo end when we go. The pedo endo likes

to have this information as back up to her own measurements even though they

come from an unreliable source (parents). Plus, I am over 40 and I am

weighing on the same baby scale that my parents for me. It goes up to

30 pounds with division of 1 oz.

Last, if it wasn't for periactin, would not be 22 pounds now. If any

one is having trouble with your child being tired, our doctor had suggested

that we could the complete dose 30 minutes before bed. That way, the

drowsiness would be gone by morning and he would wake up very hungry.

However, we didn't have to do that.

Hope this helps.

Ken M

[Guest guest]

Hi Ken....I think Dr. H. means she doesn't want to start GH until a child has

reached 50th on the height/weight ratio measure. However, for us, she told us

the goal was to reach 20th, I believe.

Katy