disappointing visit to the nsg

[Guest guest]

today isn't a good day for me. i've always prided myself on finding humor in

things but my visit to the nsg yesterday has left me very disgusted,confused and

hopeless. i was so hopeful that he could tell me something concrete. basically

he said to forget about the chiari that it's mild and it's not causing my

problems. he seems to think that my symptoms are coming from where i fell and

knocked myself out in april and that it's post concussion syndrome. let's not

forget that the reason i fell was due to severe weakness in my legs. he didn't

listen to anything i said to him. i told him what the audiologist found ie, the

nystagmus,hearing loss,brainstem dysfunction,the tinnitus. he said he doesn't

know what he found but it doesn't have anything to do with the chiari. yeah

right. i have numbness and weakness in my left arm and hand. he wanted to know

how i slept on my arm maybe i had pinched a nerve. give me a break. he said that

he wants to do an EMG/NCS on that arm because it is weak. those are so much fun

being shocked and poked with needles. i asked him about the headaches i get

with laughing,coughing,sneezing,and any other type of straining he said well

that could be the chiari. but have surgery i don't think so. considering i'm

walking with a cane and haven't worked since april. i also applied for

disability on tuesday. that's great for a 31 year old mother of 2 small

children. i thought i could work until retirement. my husband was glad he didn't

go. he said we probably would have ended up in jail after he finished with the

doctor. my mother went with me and she was getting close to the boiling point.

sorry i went on and on. i know all of you will understand my frustration. i

guess i need to have the worse chiari malformation he's ever seen to be taken

seriously. fighting a headache and neckpain today. tolerance for it is low today

due to my visit yesterday. take care everyone.

tina in nc

concussion and slept on arm wrong

told to forget about acm1

[Guest guest]

I was told that mine was mild too (only 10mm). He had seen the herniation

up to T-2 I think it was. I am going to see Dr Milhorat on Sept 21st in New

York. Perhaps a second opinion is in order.

Take Care-

in Texas

PS Remember it does not take a doctor to let you know you feel like crap

most of the time. =)

disappointing visit to the nsg

today isn't a good day for me. i've always prided myself on finding humor in

things but my visit to the nsg yesterday has left me very disgusted,confused

and hopeless. i was so hopeful that he could tell me something concrete.

basically he said to forget about the chiari that it's mild and it's not

causing my problems. he seems to think that my symptoms are coming from

where i fell and knocked myself out in april and that it's post concussion

syndrome. let's not forget that the reason i fell was due to severe weakness

in my legs. he didn't listen to anything i said to him. i told him what the

audiologist found ie, the nystagmus,hearing loss,brainstem dysfunction,the

tinnitus. he said he doesn't know what he found but it doesn't have anything

to do with the chiari. yeah right. i have numbness and weakness in my left

arm and hand. he wanted to know how i slept on my arm maybe i had pinched a

nerve. give me a break. he said that he wants to do an EMG/NCS on that arm

because it is weak. those are so much fun being shocked and poked with

needles. i asked him about the headaches i get with

laughing,coughing,sneezing,and any other type of straining he said well that

could be the chiari. but have surgery i don't think so. considering i'm

walking with a cane and haven't worked since april. i also applied for

disability on tuesday. that's great for a 31 year old mother of 2 small

children. i thought i could work until retirement. my husband was glad he

didn't go. he said we probably would have ended up in jail after he finished

with the doctor. my mother went with me and she was getting close to the

boiling point. sorry i went on and on. i know all of you will understand my

frustration. i guess i need to have the worse chiari malformation he's ever

seen to be taken seriously. fighting a headache and neckpain today.

tolerance for it is low today due to my visit yesterday. take care everyone.

tina in nc

concussion and slept on arm wrong

told to forget about acm1

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