Guest guest Posted October 15, 2002 Report Share Posted October 15, 2002 Every kid is different about putting the words together. Apraxic kids take longer than kids that don't have apraxia. One of my daughters was 3 when she put words together, and the other was 4 1/2. If your son has some words, you might want to model some 2 word combinations like: more juice, go out, go bye bye. My daughter with severe apraxia cannot say many 3 syllable words, but she can say sentences with lots of words in them like: " I love my mommy a giant bunch. " " I want to eat a cookie outside. " " I want to go to Pete's house. " As far as the movies go, your son is older and may just like movies more. I think the movie time is like everything. Movies are okay in moderation, but too much of it is bad. --- In @y..., " jacksonsmom12000 " <kim.gill@g...> wrote: > Hello everyone! > > I joined this group in August and am thrilled with the help and > reassurances that I continue to receive. It helps greatly to know > that others have similar circumstances and we can often times help > eachother with remedies/advice. > > I wanted to give a quick update on how we are doing, which leads to > just a couple of questions that may be answered by those who have > been through this a whole lot longer than I have been. > > was diagnosed with verbal apraxia in March, 2002 at age 2, > when at that time, he had around 4 words. We started single word > sign language and therapy. I started Pro-EFA in August and he is > currently at 50 words, most of which are understandable (some not), > but these words are very basic, such as: juice, eat, in, out, down, > up, mom, candy, eat, home, etc. I am thrilled that he is > communicating his needs verbally, and it certainly has helped relieve > some stress at home. He is more receptive to " trying " to say new > words and often times anticipates the word before I ask him. His > type of " play " improved and he became more social. Overall, I am > thrilled. > > Now, here are some questions that I wonder about, that some of you > may have already experienced: > > 1. At what time will begin to put words together? Is that > an age timeframe (age 3) or is it when he gathers more words? > > 2. While his play initially increased and improved, he seems to > really want to watch more movies now...especially in the past 2 > weeks, rather than play. He even says the word MOVIE when he wants > one, so I don't want to deny him....but I am really trying to help > him play more. Is this common? > > 3. is beginning to mix up his words....now that he has > them. For example, when he doesnt' know the answer to a question, he > says any word he can think of saying, such as HOME, ME, YES. Is > that common also? > > That's all for now, and thanks to EVERYONE who responds with some > type of answers.....I am very confused with each step, it is still > new ground to cover. > > Kim (mom to a - 10, - 7, and - 31 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2002 Report Share Posted October 15, 2002 wrote: > 2. While his play initially increased and improved, he seems to > really want to watch more movies now...especially in the past 2 > weeks, rather than play. He even says the word MOVIE when he wants > one, so I don't want to deny him....but I am really trying to help > him play more. Is this common? > > 3. is beginning to mix up his words....now that he has > them. For example, when he doesnt' know the answer to a question, he > says any word he can think of saying, such as HOME, ME, YES. Is > that common also? Kim, our circumstances are similar: Nora began therapy in Dec. 01 with similar symptoms and diagnosis. So she's about 3 months 'ahead' of in some ways, and 3 months older as well. While of course your mileage will vary, as all children learn at their own pace, you're describing exactly how Nora was behaving about 3 months ago. I'll tell you what's been happening since then, as it may offer a preview of sorts. On the phrase and sentence development: In July, Nora transitioned from no combinations to 2 word expressions, very garbled and sometimes not intelligible even in context. Since her overall communication skills are so developed, it seemed not to be a great priority to her to SAY 'I want to talk to Grandma'. This past two wweks she has made huge leaps. Last Friday she said 3 intelligible sentences. On the MOVIE thing: Nora's therapist has recommended that we allow her to watch quite a bit more video than we had been, and repeat the episode of Sesame St. if she wishes. The rationale is that Nora learns best when she knows what's coming next, which is the nature of a video she has seen before or Sesame St. in general. We're trying it, not to the exclusion of playdates and preschool but at certain times of day on demand. I'll let you know how it goes. On the 'Say Anything' issue: Yeah, she's still doing that a little, but mostly as she gets a true command over a larger vocabulary that behavior is fading. For about 2 months her response to everything was Noooooo, or signing hungry. We're getting through it. Good luck and keep us all posted! Sara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2002 Report Share Posted October 15, 2002 Hi Kim: Please look at http://www.hyperlexia.org My son is apraxic and also hyperlexic, and exhibited many traits similar to your son at that age. It may answer some of your questions. Feel free to email me off-list if you wish. D > > 2. While his play initially increased and improved, he seems to > really want to watch more movies now...especially in the past 2 > weeks, rather than play. He even says the word MOVIE when he wants > one, so I don't want to deny him....but I am really trying to help > him play more. Is this common? > > 3. is beginning to mix up his words....now that he has > them. For example, when he doesnt' know the answer to a question, he > says any word he can think of saying, such as HOME, ME, YES. Is > that common also? > > That's all for now, and thanks to EVERYONE who responds with some > type of answers.....I am very confused with each step, it is still > new ground to cover. > > Kim (mom to a - 10, - 7, and - 31 months) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 : Thanks for your response to my questions, I read the link of hyperlexia and I currently do not think he has those characteristics, but it is so hard to really pin-point an answer since so many characteristics cross-over to other disabilities. I had a hard time reaching you individually, perhaps you could e-mail me off-list with some of the traits that your son was showing at that time. Thanks. Kim >Hi Kim: Please look at http://www.hyperlexia.org >My son is apraxic and also hyperlexic, and exhibited many traits similar to >your son at that age. >It may answer some of your questions. >Feel free to email me off-list if you wish. > D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2002 Report Share Posted October 16, 2002 Sara: Sounds so interesting how similar many of our kids are. I do know that plays A LOT at daycare during the day and watches very little movies/TV. I think that is why he does it at home, and also....it is not as interesting, fun and less kids to play with at home than at daycare. I have been taking the suggestions about combining 2 words together, but it hasnt worked yet......maybe I am being a little impatient. I will keep you posted, and maybe we are also 3 months away? Good luck with Nora. Kim >Kim, >our circumstances are similar: Nora began therapy in Dec. 01 with >similar symptoms and diagnosis. So she's about 3 months 'ahead' of > in some ways, and 3 months older as well. While of course >your mileage will vary, as all children learn at their own pace, >you're describing exactly how Nora was behaving about 3 months ago. >I'll tell you what's been happening since then, as it may offer a >preview of sorts. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 -----Original Message----- From: earlyharvest [mailto:earlyharvest@...] Sent: Tuesday, October 15, 2002 2:15 PM wrote: > 2. While his play initially increased and improved, he seems to > really want to watch more movies now...especially in the past 2 > weeks, rather than play. He even says the word MOVIE when he wants > one, so I don't want to deny him....but I am really trying to help > him play more. Is this common? My son (25 months) also loved to see Blue's Clues a LOT! Sometimes I think too much. But I noticed that he seems to learn a lot from it also. We have 3 VCRs at home, and each one has a Blue's Clues tape on it so we're always " ready " for him in every room. Many times we forget to change the tape so the same Blue's Clues tape would play for him for many days. I noticed that he actually learns more this way through repetition or anticipating what's coming next. Right or wrong - he seems to be picking up more words this way so I let him be. The only problem - I get excited myself and buy all toys that are Blue's Clues related ----and it add$$$ up! Also, he has this thing on " mail time " from Blue's Clues and wants me to sing this all the time while he holds (and scatters around) our junk mail. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2002 Report Share Posted October 22, 2002 Arlene: Thanks for your response, it is funny, because LOVES Blues Clues also, in fact, BLUE was one of his first words and it is clear as a bell. He watches it, anticipates when certain words are coming on and says " juice " when Blue is looking at the juice picture. I find that really positive, and yes, the repetition is great for him. Initially, I was really worried that he wanted to watch movies all of the time. Lately, it has subsided a bit. Last night, we put in a movie for him, but when heard his sister playing with Leggos......he ditched the movie to play with her instead. They built towers, and knocked them down, and I can't tell you how thrilled I was to see him laugh and enjoy himself. Good luck and thanks again, Kim -----Original Message----- From: earlyharvest [mailto:earlyharvest@...] Sent: Tuesday, October 15, 2002 2:15 PM wrote: > 2. While his play initially increased and improved, he seems to > really want to watch more movies now...especially in the past 2 > weeks, rather than play. He even says the word MOVIE when he wants > one, so I don't want to deny him....but I am really trying to help > him play more. Is this common? My son (25 months) also loved to see Blue's Clues a LOT! Sometimes I think too much. But I noticed that he seems to learn a lot from it also. We have 3 VCRs at home, and each one has a Blue's Clues tape on it so we're always " ready " for him in every room. Many times we forget to change the tape so the same Blue's Clues tape would play for him for many days. I noticed that he actually learns more this way through repetition or anticipating what's coming next. Right or wrong - he seems to be picking up more words this way so I let him be. The only problem - I get excited myself and buy all toys that are Blue's Clues related ----and it add$$$ up! Also, he has this thing on " mail time " from Blue's Clues and wants me to sing this all the time while he holds (and scatters around) our junk mail. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 I think you are right, trying to persuade your Dad to keep taking it at night. 9 days is nothing yet, ride it out, things get easier, but give yourselves 3 months at least to find out. Don't give in too soon, so you have a chance to experience the improvements. Looks like he's already benefiting somewhat. That's great. Lucretia > I realise we have to be slow because of his hashimotos. He is thinking about going to morning but I want him to wait and see what a higher dose would do first. > > Sky and Dad > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 He takes it at 9.00 because he goes he sleep at that time. That is late for him and the earliest doctor bihari said. He took endep his usual sleep aid the other night but that did not work. What other sleep aids can you take. Sky Chat right from the comfort of your inbox. Show me how.. Quote Link to comment Share on other sites More sharing options...
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