Re: Nidia

[Guest guest]

I

> Nidia Masse <nid_kid@...> wrote: I wonder thoug do u know of any

> parents with children 25 months old or older with NO WORDS?????

Nidia

I missed your original post, but caught Ambers response.

I have an 8 year old son with no words until about a year ago. Now we get the

odd word, phrase, song but nothing consistent apart from an approximation for

hello when greeting. This consistency is new (Yeah!). He is profoundly

dyspraxic/apraxic, ADHD, SID. We have no official label for him other than

autistic traits and global developmental delay. He is a very happy child and

that gives me great comfort. We have had great improvement with EFA

supplements: he is less stressed and 'with us' now whereas previously he was

so busy coping with motor planning, vestibular and vision problems he had

little energy left to engage with the world. Although his many issues still

need to be addressed I feel optimistic for the future. His SLT believes we

will get more speech from him and she does not make such statements lightly.

I have, however, cried buckets of tears for him over the years, hitting a

very bad patch at his first birthday and again at his second. These

milestones were very painful. :-(

My advice to you is very simple: ask many questions, read all you can and

don't forget to look after yourself.

London UK

[Guest guest]

Hi here's 's site http://ca.geocities.com/nid_kid/meginha.html

let me know what you think. does babble and she does understand basic

commands. SHe may have some kind of learning disability, but she is not

retarded. She has good vision and hearing as far as we know, and I JUST DON " T

know whatelse to do!!!!!!!!!!!! I am SO FRUSTRATED B?C WE DON " T BELONG

ANYWHERE!!! There is no diagnosis & therefore no prognosis and that just is so

frustrating!!! is not autistic, and she just doesn't quite fit in

anywhere! What should we do? Can you help us spread s website around &

get the word out! We don't even know what to test her for. The doctors haven't

even mentioned the words apraxsia, or any other terminology used here for non

verbal children. She tries but she can not pucker to kiss so she licks, she can

not blow to make soap bubbles, and she she can not lick her lips from side to

side either apparently these are three signs of a non verbal child. I don't know

anymore than that!!!! I am so mad at these doctors!!! They haven't taught or

told us anything except " We don't know! " ~ Well neither do we so now what????

Sorry Iguess I just needed a little venting. I'm done......sheesh where did all

that come from huh. Anyway please visit and let me know what you think. Thanks

>

adamskr@... wrote: I

> Nidia Masse <nid_kid@...> wrote: I wonder thoug do u know of any

> parents with children 25 months old or older with NO WORDS?????

>I have, however, cried buckets of tears for him over the years, hitting a

>very bad patch at his first birthday and again at his second. These

>milestones were very painful. :-(

>My advice to you is very simple: ask many questions, read all you can and

>don't forget to look after yourself.

>

>London UK