Re: urine ph - and Jenn-

[Guest guest]

, ,

I agree with what says. We've had a few bad times with

acidic pH too. For instance last night, pH <6.4 and ketones >4

but had a sleep sz (roughly 2 hrs after dinner).

But I', not certain about pH, as it can change so quickly. Dh

checks the ketones etc. at night as I'm not home from work

and on certain nights he's had similar readings to last night's.

Rohan however had not fallen asleep and had been complaining

of feeling 'bad' when I got home. We 've then checked pH again

to find that the strip goes green immediately. ie. an alkaline reading

half an hour after the first, that seemed OK. These were the times

we gave the extra vit B6 and didn't see sleep sz.

He also had prawns at dinner and that's something I'm not sure about.

Hope we can figure out what to do.

Saro....mum to Rohan (13.5 yrs, on KGD from 02/00, med-free for 1.5 yrs,

but now on Diamox since 6/6/02)

Re: urine ph - and Jenn-

> ,

> Something in the air maybe?????

> Trying to fathom this one, all I know is, I have never seen have a

good day with an alkaline urine ph, regardless of where his ketones are.

But, he has had 'bad' days with an acidic ph, so, I don't think it is the

only thing that affects his seizure control, but I am sure it plays a big

part. Just gotta figure out how to get him more regularly acidic, then I can

hopefully narrow it down a bit more.

> Is Molly more acidic in the evening, and is the ph level affected directly

by how high her ketones are?

>

>

> ----- Original Message -----

> From: sokulski@...

>

> This is so interesting--Molly's pH has been really wacky, too. It's

been up

> at 7.5 to 8, and she has had lots and lots of seizures. It's been going

up

> and down the past four days or so! Finally we decided to cut out all

the

> supplements (except some vitamin , stop giving her the spirulina and

barley

> grass that we have worked into her meals, and are just simplifying her

diet

> to lamb or chicken, broccoli, butter and oil. (cream makes her spit up

a

> bit...but coconut milk caused projectile vomiting, so we do without the

> cream/milk althogether now.)

> This seems to be helping--last 2 times we checked she had a low pH

(between 5

> and 6), though she still is having a lot of seizures (those open mouth

ones,

> and others.) We'll have to see how she does overnight.

> It is very strange and interesting to hear that others are having

similar

> problems at the same time! If anyone finds anything, please let us

know!!!

>

>

>

>

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