I hope someone can comment/help

[Guest guest]

Hi, Stella,

I don't get on this site too much anymore and the few times I have answered

or replied, I don't seem to be getting through because I don't see my

responses and no one writes back. Anyway, I'd like to give this a shot

again.

My son Gordon is 6 years old and has hypotonia, SID and dispraxia. We just

recently brought him to a developmental ped. who really doesn't believe in

the sensory stuff and it really makes me angry that so many medical

professionals deny the existence of sensory integration disorder. Gordon is

a very pleasant child in school... no tantrums, outbursts etc. Teachers and

therapists tell me he is a " delight. " But, at home, he reverts to baby talk

and whining if he doesn't get his way and supermarkets and stores make him

crazy. He wants to touch everything or put it in his mouth. He says he

doesn't like the noise. He also does a lot of foot stomping and strange

shrieking. OT's tell me he is craving input but of course, how do you

explain this to people who are staring at your child like he's from outer

space? I have seen some improvement through the years and yes, he doesn't

seem really able to control it sometimes even though I think he would like

to.

One more interesting side note. We recently got him a tutor to come to the

house after school and work with him on his handwriting. She has

complained to me that he doesn't stay on task, he is immature etc. I spoke

to his kindergarten teacher and asked if she experienced any of this

behavior at school and if she felt Gordon was too immature to move on to

first grade. She said, absolutely not! So, you see, just being at home was

enough to set him off because he can control it all day at school, ,but has

to work very hard at doing so. So, when he comes home, he lets loose!

Regards,

Judi

----------

> Hi everyone. Hope everyone's weekend has started off good. I was

> hoping for comments/suggestions/experience on a situation.

>

> At Frazier's IEP meeting before the end of school, the group

> suggested I take him for ADHD consultation. Frazier has always

acted

> like he was " bouncing off the walls " at home, but his pre-k teacher

> had said she never had a problem with him.

[Guest guest]

Hi everyone. Hope everyone's weekend has started off good. I was

hoping for comments/suggestions/experience on a situation.

At Frazier's IEP meeting before the end of school, the group

suggested I take him for ADHD consultation. Frazier has always acted

like he was " bouncing off the walls " at home, but his pre-k teacher

had said she never had a problem with him.

Well, I did as they suggested and took him and was given a Conner's

test for parents and one for teachers. We filled our part out & sent

it back in. I took the teacher part to the school & they in turn

forwarded it to the teacher to fill out & she mailed to the dr.

Our's got there first, the ped called me & said he had scored the

test and he was highly hyperactive across the board. Two weeks

later, which was yesterday, the ped called me again and said he had

score the teacher's and it was scored very LOW across the board. Now

how did I know that was going to happen? I didn't know whether to be

happy or mad. It doesn't explain why he acts like he does at home.

How can he be sooooo good at school and act so rowdy at home. The

ped asked what exactly happens...he screams, plays " hard " with his

toys(ie. throws, slams), doesn't listen to us until it gets to be

repeated 3-4-5 times, hits his 12 (yes, I said 12) year old brother.

It's like he's out of control. My Mom refuses to take him to the

grocery store anymore. He won't listen to her. He runs up and down

the aisles. This is what I told him.

So he refers our family to family counsouling (spelling wrong, I

know) for behaviour problems. So I called the mental health part of

my insurance co, they gave me some names of child phycologist

(spelling wrong again) and I call and make us an appt. I did get an

approval number for now.

Has anyone ever gone through this? What can I expect? Anyone have

suggestions? I'm open for anything.

You know, I do believe he understands when he does wrong. And I know

he knows when he " pushes " us to the limit. It's like everything we

do to correct him, it doesn't matter.

I know this all has alot to do with the apraxia and SID, right?

Thanks for anybody's comments.

I value them all greatly.

God Bless,

Stella

[Guest guest]

-

Hi

Have you had him checked for Sensory intergration dysfunction? My son

Jack 3 has had those issues and has serious sensory issues which we

found out in September last year after thinking it was my fault, some

is just age being 3 and he is a boy so right there it was major

aggression, but then I learned about sensory issues and now I know

what is sensory and what is just plain " Typical "

Eileen

-- In @y..., " rightsfamily " <rightsfamily@y...>

wrote:

> Hi everyone. Hope everyone's weekend has started off good. I was

> hoping for comments/suggestions/experience on a situation.

>

> At Frazier's IEP meeting before the end of school, the group

> suggested I take him for ADHD consultation. Frazier has always

acted

> like he was " bouncing off the walls " at home, but his pre-k teacher

> had said she never had a problem with him.

>

> Well, I did as they suggested and took him and was given a Conner's

> test for parents and one for teachers. We filled our part out &

sent

> it back in. I took the teacher part to the school & they in turn

> forwarded it to the teacher to fill out & she mailed to the dr.

> Our's got there first, the ped called me & said he had scored the

> test and he was highly hyperactive across the board. Two weeks

> later, which was yesterday, the ped called me again and said he

had

> score the teacher's and it was scored very LOW across the board.

Now

> how did I know that was going to happen? I didn't know whether to

be

> happy or mad. It doesn't explain why he acts like he does at

home.

> How can he be sooooo good at school and act so rowdy at home. The

> ped asked what exactly happens...he screams, plays " hard " with his

> toys(ie. throws, slams), doesn't listen to us until it gets to be

> repeated 3-4-5 times, hits his 12 (yes, I said 12) year old brother.

> It's like he's out of control. My Mom refuses to take him to the

> grocery store anymore. He won't listen to her. He runs up and

down

> the aisles. This is what I told him.

>

> So he refers our family to family counsouling (spelling wrong, I

> know) for behaviour problems. So I called the mental health part

of

> my insurance co, they gave me some names of child phycologist

> (spelling wrong again) and I call and make us an appt. I did get

an

> approval number for now.

>

> Has anyone ever gone through this? What can I expect? Anyone have

> suggestions? I'm open for anything.

>

> You know, I do believe he understands when he does wrong. And I

know

> he knows when he " pushes " us to the limit. It's like everything we

> do to correct him, it doesn't matter.

>

> I know this all has alot to do with the apraxia and SID, right?

>

> Thanks for anybody's comments.

>

> I value them all greatly.

>

> God Bless,

> Stella

[Guest guest]

Eileen,

Frazier's apraxic and SID. I've read the Out-of-Sync Child book. It

was really good. I saw alot of Frazier in it. But, I still don't

understand why the behavior doesn't happen all the time and what this

dr. is planning to tell me that's going to be such a " break through "

that I haven't already thought about or done.

Sorry, I didn't realize I hadn't put that in there about Frazier this

morning when I posted. I don't know if you could tell, but I was a

little upset when I was typing it.

Stella

[Guest guest]

From what I've read (The Out-of-Sync Child) and heard from other

parents, this is very true of kids with sensory problems. Somehow

they pull it all together for school, and then let lose at home.

I know my daughter is also the same way.

I personally think they do everything to " fit in " at school. That

is a lot of work for these kids to " fit in " . By the time they come

home, they are exhausted!!!!!!! When they are tired, the sensory

issues really come up and they explode.

That's my theory. You're not alone! My daughters start kindegarten

in the fall, and it will be very interesting. I'll keep you posted.

--- In @y..., " Judith M. Fiedel " <judifc@e...>

wrote:

> Hi, Stella,

>

> I don't get on this site too much anymore and the few times I have

answered

> or replied, I don't seem to be getting through because I don't see

my

> responses and no one writes back. Anyway, I'd like to give this a

shot

> again.

>

> My son Gordon is 6 years old and has hypotonia, SID and

dispraxia. We just

> recently brought him to a developmental ped. who really doesn't

believe in

> the sensory stuff and it really makes me angry that so many medical

> professionals deny the existence of sensory integration disorder.

Gordon is

> a very pleasant child in school... no tantrums, outbursts etc.

Teachers and

> therapists tell me he is a " delight. " But, at home, he reverts to

baby talk

> and whining if he doesn't get his way and supermarkets and stores

make him

> crazy. He wants to touch everything or put it in his mouth. He

says he

> doesn't like the noise. He also does a lot of foot stomping and

strange

> shrieking. OT's tell me he is craving input but of course, how do

you

> explain this to people who are staring at your child like he's

from outer

> space? I have seen some improvement through the years and yes, he

doesn't

> seem really able to control it sometimes even though I think he

would like

> to.

>

> One more interesting side note. We recently got him a tutor to

come to the

> house after school and work with him on his handwriting. She has

> complained to me that he doesn't stay on task, he is immature

etc. I spoke

> to his kindergarten teacher and asked if she experienced any of

this

> behavior at school and if she felt Gordon was too immature to move

on to

> first grade. She said, absolutely not! So, you see, just being at

home was

> enough to set him off because he can control it all day at

school, ,but has

> to work very hard at doing so. So, when he comes home, he lets

loose!

>

> Regards,

>

> Judi

> ----------

>

> > Hi everyone. Hope everyone's weekend has started off good. I

was

> > hoping for comments/suggestions/experience on a situation.

> >

> > At Frazier's IEP meeting before the end of school, the group

> > suggested I take him for ADHD consultation. Frazier has always

> acted

> > like he was " bouncing off the walls " at home, but his pre-k

teacher

> > had said she never had a problem with him.

[Guest guest]

Judi,

I listened to a professional OT talk about sid and she described exactly

this pattern, of a child maintaining control in the school environment and

then just losing it at home where he feels safer in general.

I started the proefa in earnest just recently with my son Wiley - it has

been about 1 - 2 weeks. Have you tried it at all? My son isn't suddenly

speaking in sentences now, but his play skills have utterly changed at home.

He sits with his toys, prefers them over t.v., doesn't lose it when I have

to do dishes, etc. -- he's just suddenly so much calmer whereas before, he'd

run around and wreak havoc if unattended or scream his head off a good

amount of the time. He'll be three this Fall so I don't expect perfect

behavior and I was just looking for a speech boost or clearing of eczema

when I started the supplement, neither of which is apparent yet, but the

behavioral change -- it's pretty remarkable. Also, he has sensory based

feeding problems as well as the sensory based attentional issues, and in the

last couple of days he's gotten very fearless around food. Like he ate mac

and cheese for lunch today, seated, for the first time in his life. He ate

part of a hamburger tonight, also a first.

Just some thoughts there since I'm seeing a sudden change there with the

EFA's.

Betsy, Mom to Wiley (didn't realize how apt the name was initially...I

picture W. Coyote running off a cliff, stopping mid-air, then realizing he's

run off a cliff, then and only then, FALLING!!)

>From: " Judith M. Fiedel " <judifc@...>

>Reply-

>

>Subject: [ ] Re: I hope someone can comment/help

>Date: Mon, 27 Aug 1956 10:10:57 -0500

>

>Hi, Stella,

>

>I don't get on this site too much anymore and the few times I have answered

>or replied, I don't seem to be getting through because I don't see my

>responses and no one writes back. Anyway, I'd like to give this a shot

>again.

>

>

_________________________________________________________________

Chat with friends online, try MSN Messenger: http://messenger.msn.com