carnosine.../ what is considered severe verbal apraxia?

[Guest guest]

Ok, we are still sitting here pretty much non verbal with the

occassional slurr of a sentence.

But- yesterday I put the carnosine back in Austin's food. I took it

out after relizing there was a possible link to adding it and lost

speech again. One thing I must note is that when I took it away, 3

days later he began sleeping more again. Not that he wasn't sleeping

well with it, but there was a noticeable decrease. Ok, so here is the

interesting thing... I gave it to him yesterday and shortly

afterwards (30mins to an hour) he was playing with his little

linguist once again, and... he grabbed the lion and said " n li n " .

The n was pronounced as n sound and the li was with the long i sound.

Originally lion was a first after starting fat supplements. But when

he first said it, it was *ion*. After lion yesterday he picked up the

cow and I asked him if he could say cow. He said " how " .

I'm still battling with appointments. I still am super impressed with

what the supplements have done for him. I'd love to hear more from

others about carnosine and what they have noticed. I'm also debating

proEPA vs proDHA. My reason stem from his blindness and the hopeful

thoughts I have regarding rods/cones and the affects DHA has in this

area. I've FINALLY got the name of an alternative med dr, who was a

regular dr prior to switching. The nutritionist and I are working on

a date to meet. (not as hopeful since she said she doesn't need to

see him) At any rate it is a start. Developmental pediatrician's

office is still looking over his paper work. I think the hardest

thing about that paper work is feeling like I won't be believed about

his original talking. Has anyone faced that? He was talking rather

early and I've been through this scenario with my oldest son. (no

apraxia prob, talks excessively since birth) I'm also awaiting the

number via a friend for a music speech therapist. BTW- can anyone

refer any numbers to me for north Texas??? If you see your various

dr's and specialist that you are very fond of please ask for a

reference here. I've been fighting this for months now.

And, what defines verbal apraxia as severe? Is it a monotone no-

verbalizing at all? I'm just trying to get a feel for how serious our

lack of speech is. My son is almost 2 1/2 now and I'm getting

comments back from relatives on the all too familiar *a lot of 2 yr

olds don't talk* level. argh. Austin makes lots of different sounds,

hums entire songs in perfect tune and occassionally says something

often slurring sentences such as *here i am*. At one point prior to

his complete loss of words, he would substitute a variety of words in

the song twinkle twinkle and sing it with those words. EX- mama, dada

and da e (for daddy).

Thanks and sorry for posting so much in one post but i'm overwhelmed

lately with much more than just Austin and posting and reading time

is greatly limited.

Lynn

Austin 29 months blind from LCA and suspected verbal apraxia