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congratulations on the new baby.I've just got back from holidays and i'm

working my way though about 800 e-mails.s intake does not seem to bad

at all.before GH christian would have one bite of toast ,1/2 a bread stick

,2 bites of apple and about 1/2 a cup of milk[and that was on a good day]i'm

not exaggerating.now he snacks all day and has i have est. 1200 cals a day

[500 of these are from 2 cartons of fortijuice]Hope to speak to you soo

joanne

Food eaten

> It's difficult to know how 's food intake compares to others here,

> whether on a g-tube or not, and therefore how much I should be focussing

on

> this aspect.

>

> Examples of 's typical intake are

>

> Breakfast: 10 teaspoons of spaghetti tomato hoops

> or a (daddy-size) handful of malted wheat cereal with milk

>

> Then: a hot dog (sausage only)

> quarter to half a thin ham sandwich

> two or three joghurts (sometimes five or six)

> half a packet of crisps

> a hot dog again

>

> Dinner: either 15 pasta tubes with tomato

> or 8 chips, one fish finger, three teaspoons of beans

> or a couple of slices of salami, a slice of ham and some ice cream

> or two more joghurts and another hot dog

>

> Throughout the day, about one pint of blackcurrant juice(sqaush) to drink

>

> And a small glass of warm milk with honey before bed.

>

> Please help me put this into perspective. No point asking dieticians /

> nutritionists!! (Sorry, I'm being horrible. I'm sure that there are some

good

> ones around with lots of RSS experience!)

> Is this a lot, or are those on g-tube at night, periactin, GHT also

getting

> this much during the day?

>

> Thanks,

>

>

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Forti juice is is a ready made fruit juice that has 250 cals per 200 mls.It

is designed for people who eat very little so it contains all the vitamins

,minerals etc.Its made by Nutricia in Holland and I get it on prescription

here in the UK.They also make Fortisip[milk drink]and lots of different

puddings.Christian started them at about a year old and started with 1/2 a

carton.He has never had any tummy problems.He has 2 cartons every day so

even if he is unwell and off his food he still has at least 500cls

joanne

Re: Food eaten

> From: Al72569@...

>

> Joanne,

> I was wondering what fortijuice is? Does it bother the stomach?

>

>

> >

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Joanne,

I jsut read your letter to Barbara and I must ask,

does your son have the g-tube or do you use periactin?

The reason I ask is that once again I am comparing

Shelby to your son. Shelby will be 3 on December 10th

and weighs 17 pds. Christian is only a 1/2 year older

than her but out weighs her by 13 pounds.

I don't know if I am the only one, but I am more

concerned with Shelby's weight than her height. She is

34 or 35 inches tall.......and judging by her clothes,

she is growing up but growing 'OUT' slowly.

Have a GREAT day,

-----Shelby's mommy

=====

~~~~~~To send a letter is a good way to go somewhere without moving anything but

the heart!~~~~~~

Sue

__________________________________________________

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As I said on one of my e-mails christians eating was terrible until the age

of 2.Until then I'm afraid to say we force fed him.lots of toys,balloons

hanging on the ceiling,songs dancing ,T.V. no T.V., hot food ,cold food,

lots of tears mostly from me not him[i'm sure most of you can associate with

this]He was NG fed twice for a couple of days but no G-tube.Fortunatly he

always gained weight[sometimes only an ounce in a couple of weeks]He started

eating when he was on GH.It was not over night or anything dramatic but

suddenly I realised that he was asking for food nearly all day .He is still

not a 'normal ' eater but saying that wiith 4 children I,m not really sure

what is normal.As I have said on another e-mail he has gained about 10 1/2

lbs in 19 months of GH .Periactin is not liscenced here in the UK.I,m sure

shelbys time will come

joanne

Re: Food eaten

>

>

> Joanne,

> I jsut read your letter to Barbara and I must ask,

> does your son have the g-tube or do you use periactin?

> The reason I ask is that once again I am comparing

> Shelby to your son. Shelby will be 3 on December 10th

> and weighs 17 pds. Christian is only a 1/2 year older

> than her but out weighs her by 13 pounds.

> I don't know if I am the only one, but I am more

> concerned with Shelby's weight than her height. She is

> 34 or 35 inches tall.......and judging by her clothes,

> she is growing up but growing 'OUT' slowly.

>

> Have a GREAT day,

> -----Shelby's mommy

>

>

> =====

> ~~~~~~To send a letter is a good way to go somewhere without moving

anything but the heart!~~~~~~

>

> Sue

> __________________________________________________

>

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Katy, I have heard from RSS families in Australia, Italy, South Africa,

Nigeria, Sweden, Denmark, England, Scotland, Egypt, Israel, Spain, Columbia,

Argentina, Chile, and I'm sure more than those I remember. I don't think

that nationality is a factor, but I could be wrong. Some of the letters

have been heartbreaking and I wish I could adopt all of the kids!

Jodi

Re: Food eaten

>

>

>Hi

>I'm curious. Does anyone know if RSS crosss all nationalities?

>

>Katy

>

>>

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