SUPPORT GROUP MEETING

[Guest guest]

Only one week from today NEW HAMPSHIRE will have its first support group meeting

for parents of children with apraxia or late talkers. Aug. 6th at 6:30pm in

Concord, NH. See you there!

I do apologize for not reading the list lately and not welcoming all the

newcomers who need encouragement and advice (just caught the San Diego woman and

yes, it sounds like you heading exactly in the right direction!). We have three

close family members making MAJOR moves this summer, not to mention normal

summer visiting by friends and family so it is very crazy here....kind of like

moving and trying to keep up with this! (what part of Florida ? And do

you still have any of those tapes...I would like to get one to show to this

support group...how can I do that?) Good thing is settled somewhat up

there in northwest so she can keep tabs! Carol Holt (mom to two wonderful and

unique boys!)

[Guest guest]

-Stacia...

This is run 100% by the AF, but we are trying to make changes and

improve on it. Theres not enough attendance (5-6 families) and in my

opinion the meetings are too far apart to really be of any 'support "

to people ( once every 2 months and since march was JAM this was the

1st meeting since Jan)

The AF is wanting to put together a group of the parents to become an

advocacy group to help make changes and help improve the meetings. of

course i offered to help. I really hope we can get things moving and

get attendence up.

hows your group going????

hugs Helen and (7,systemic)

-- In , " staciar101 " <staciar@c...> wrote:

> Hi Helen,

>

> I'm glad you had a productive support/education meeting. Tell me,

is

> there a local parent or several parents who help put these on, or is

> it 100% A.F.? Just curious how things get done elsewhere.

>

> Stacia and Hunter 9 systemic, iritis

[Guest guest]

Hi Helen,

We just had a " meeting " on Sunday. We had three families besides us

attend and we had a cookout at our house. They were big families

though, total of 21 people. The kids ran around and played mostly

outside. One of the families was new, so we did more adult talking

than usual. It was so worth it to see one of the jra boys really hit

it off with the sibling of another jra boy. They were setting up

playdates and regular times for those boys to get together. That's

what it's all about for the kids!!

It was our first gathering since Christmas, but I just had some other

things going on that took priority. I'm still calling all the other

families and trying to get them excited about the Arthritis Walk.

Nice to know at least some local chapters have the interest in putting

on functions for the kids. Thanks for asking.

Stacia and Hunter 9 systemic, iritis

[Guest guest]

Helen,

Yes, is my 7yr. old. Apparently Dave and my husband had a

hard time getting the two of them dressed and out of the locker room

after they went swimming because they were having so much fun.

couldn't stop talking about his new friend all the

way home - lol! seemed to have had a very good time too. The

kids can't wait for the next meeting...Caity (3) asks me every day

if we're going to the meeting with the pool! September is going to

be a long time coming for them.

Blessings,

& (10-poly)

> Saturday was our local support and education meeting for Kids with

> JRA. Nick has such a good time at these. The kids went off and

> painted t-shirts and then swimming while the adults had a guest

> speaker and then a time to just chat.

>

> it was good to see kimberley and there....Kim, i have to ask,

> do you have a younger son, ?? I cant remember and Nick keeps

> telling me about his new friend???? I have no idea who s mom

> was ))) Nick was happy there were boys there is time.. last time

> it was all girls!!!

>

> Nicks rheumy was the guest speaker and it was good to hear her

> talking about things outside of of our usual setting in her

office.

> I hope that they have other ped rheumys come also. I think it

would

> be very benfical to hear their points of view etc.

>

> I did ask about remissions, medicated and full, wondering what her

> views and what she went by. This is something that i havent asked

in

> our appts. I was thinking that Nick is close to being in a

medicated

> remission, but she says no, not yet ( . that was kind of a

bummer.

> But hopefully soon.

>

> It was good to see her wearing her bracelet, I sent her one when

we

> got ours and i wondered if she would even wear it, she does!!!

>

> Hugs Helen and ( 7,systemic)

[Guest guest]

-sounds like Nick to take forever when he doesnt want to leave

somewhere!! ))

Im glad Nick and hit it off so well. Im sure they will

continue their friendship at the next meeting.

Was there some talk of a summer picnic????

hugs Helen and (7,systemic)

-- In , " " <earthmama2k@y...> wrote:

> Helen,

>

> Yes, is my 7yr. old. Apparently Dave and my husband had a

> hard time getting the two of them dressed and out of the locker

room

> after they went swimming because they were having so much fun.

> couldn't stop talking about his new friend all the

> way home - lol! seemed to have had a very good time too. The

> kids can't wait for the next meeting...Caity (3) asks me every day

> if we're going to the meeting with the pool! September is going to

> be a long time coming for them.

>

> Blessings,

>

> & (10-poly)

>

>

> > Saturday was our local support and education meeting for Kids

with

> > JRA. Nick has such a good time at these. The kids went off and

> > painted t-shirts and then swimming while the adults had a guest

> > speaker and then a time to just chat.

> >

> > it was good to see kimberley and there....Kim, i have to

ask,

> > do you have a younger son, ?? I cant remember and Nick

keeps

> > telling me about his new friend???? I have no idea who s

mom

> > was ))) Nick was happy there were boys there is time.. last

time

> > it was all girls!!!

> >

> > Nicks rheumy was the guest speaker and it was good to hear her

> > talking about things outside of of our usual setting in her

> office.

> > I hope that they have other ped rheumys come also. I think it

> would

> > be very benfical to hear their points of view etc.

> >

> > I did ask about remissions, medicated and full, wondering what

her

> > views and what she went by. This is something that i havent

asked

> in

> > our appts. I was thinking that Nick is close to being in a

> medicated

> > remission, but she says no, not yet ( . that was kind of a

> bummer.

> > But hopefully soon.

> >

> > It was good to see her wearing her bracelet, I sent her one when

> we

> > got ours and i wondered if she would even wear it, she does!!!

> >

> > Hugs Helen and ( 7,systemic)

[Guest guest]

Located in southampton pa 18966

Begley - Temporary Placement Manager

 

 

From: evthrone1 <evthrone1@...>

Subject: [lymesupportgroup] support group meeting

lymesupportgroup

Date: Sunday, November 9, 2008, 12:10 AM

Hi The next meeting is going to be on Sunday, November 16th at 6pm at

the Community Center of the Arts ( behind Huber Furniture) 612

Second Street Pike (rt.232) This is just South of the intersection of

Street Road (rt. 132) and Second Street Pike. I am trying to get a

nutritionist to caome to speak to us. We have a good group started an

we are looking t spread the word. could anyone send this info to the

various Lyme sites? I have advertised it in many papers. Thanks EV