Prednisone withdrawals

[Guest guest]

Hi all I wanted to let you all know I am having a very difficult time with

coming off the prednisone I am at 15 mg now (been on since Feb 99, 65

mg-15mg) I cry at the drop of a hat, I have a yeast infection " again " in my

esophagus, I cant move my arm and my knees lock up and have a very difficult

time walking due to my hip pain and also a crushing around the heart area.

My doctor says it is from the Prednisone causing soft tissue damage. I was at

his office today for bad shoulder pain and arm and side rib pain and I lost

it, I started to cry and I said The Enbrel is working because my ear pain is

all gone (100%) note* my ears were so severe since Feb 99 up till 4 weeks

ago, that having just that all gone is unbelievable and in my mind I was

cured, So I cried like a big baby saying WHY is this happening to me now, the

Enbrel is working BUT why is all this other new stuff happening to me and his

replay was due to the Prednisone and he warned me not to play around with the

dosing and to follow his directions on the tapering or I can go crazy (which

I think I am). Anyways due to me being on the Prednisone for so long has

caused some bad soft tissue damage to my body (Ligament

Tissue~Muscle~Tendons) he is as anxious as I am to get off of it due to what

is doing to my body, we will have blood work back by Monday morning and I

will completely lose it if it is bad still, but no matter what I have to get

off the Prednisone due to the damage it is causing and I know he knows it

also, I never had this problem until now, its so bad wait till I tell you

what I said to him this morning (now remember it wasn't me talking it was the

Prednisone lol) I actually said " If it wasn't for me having a family I would

go off somewhere and just die " , I think I shocked the hell out of him. I cant

believe I actually said that (not like me!!!!!!!).

I now feel like My ears are better (pain) and I have so much to do, I am a

room Mom for Brittany's class and I have to start doing things like posters,

goodie bags and shopping and a bunch of other things and I am sooooooooooo

frustrated because my body wont let me do things I committed myself to doing,

" have to do " right now, and I need a quick fix just for a few weeks, but I

know this is really bad and I keep fighting it, but in the meantime I cant

understand WHY this all is happening when I should be better now but instead

I feel like I need to be back in a wheelchair.

My doctor gave me some type of shoot in the shoulder in which numbed the area

for 4 hours and it felt a bit better after but it has worn off now and the

pain is " worse " then when I went earlier today, he said it could take a

couple days for the shoot to kick in.

I also feel the crying has to be due to me lowering the prednisone? I am not

normally like this (I feel like psycho bitch, my poor family) and I know my

doctor thinks I must be losing my mind now, he handed me Kleenex and said he

understands.

I told him I am confused, I know the Enbrel is working but why is this other

stuff happening (I cant even drive now) and he says due to the prednisone, so

needless to say this is going to be the longest 3 months of my life now

coming down off the Prednisone, I just hope I don't end up in a mental

hospital or get to the point of being bed ridden again.

pissed off beyond belief,