Re: New Member Darleen McCauley

[Guest guest]

Dear Dar,

Welcome to the Crew. I hear you when you say frightened. This NF2 is packed

with reasons for fear. But we are all here for info and support to help with

that. I am fearful however, after reading yours and some other posts, that

I, too may have an undiagnosed NF2 because I have ringing periodically and

fullness. It may just be allergies, but I am seeing my GP to get opinion and

possible referral to ENT. My daughter has a severe case of spontaneous NF2

and we've been told that. They will not test us genetically, because we

don't have any history and our lineage isn't long enough for effectiveness.

So every time I have a problem, I think perhaps it is NF2 undiagnosed in me

that is really my daughter, Anne's, problem.

Sorry to hear of your husband's surgery and the resulting health trials. I

feel the same as he does about the surgeries. Unless the tumor is life

threatening or may become so readily, I resist the surgeries for Anne. She

has had 11 and frankly, she is wiped out from them.

Well, it is a long road, and we can hold each other's hand through the

journey. Vicki

[Guest guest]

Welcome to everyone new!!!!! I have been in limbo as of late but have

returned Lori Jo

[Guest guest]

Welcome to everyone new!!!!! I have been in limbo as of late but have

returned Lori Jo