Re: oral aversions/lack of chewing skills

[Guest guest]

Hi Kara,

Believe me, put N*O*T*H*I*N*G in her mouth prior to her therapies

(except for her own fingers). While I am no expert, I do believe that it

won't " just happen " . If your current OT doesn't have experience with

kids like ours, I encourage you to keep looking for others who do. It

doesn't have to be an OT. Some speech pathologists know this area too.

But, it took months before would bite down on a tootsie roll. That

reminds me of one thing we did early on. We always washed her face with a

wash cloth.....and followed the same pattern....first eyes, then nose, then

mouth. First I would just wipe her lips. Then we worked up to the

teeth. Then, the gums. Then really rubbing the gums....and always in a

predictable order...such as upper right, then upper left, lower right, etc.

Then I would put pressure on her bottom teeth to encourage resistance.

This took weeks of time before I got " in her mouth " with the wash cloth.

But, it was a start. Maybe that is where Kaci is. From my

understanding, you need to find her current level of comfort...and build

from there. (It sounds so easy!( & $(@* & $().... I know how frustrating the

whole thing is. I don't know why she would do well for 3 days and then

stop. But I do know that any progress seems to make the regression all

the more painful to accept.

As for the GH, it doesn't seem to be working yet for . We started

the first week of January. I measure her on the wall each month. I'm not

going to pass judgement until our official endo. appt in mid-May.

I hope we can share more over time

Irene

Mom to , 3 years old, 24 pounds, 33 " , GH, G=tube, reflux

[Guest guest]

Irene, don't give up on the gh. might not be getting enough just yet.

Max has really slowed down with his growth, so Dr. H. has increased the

amount. Sometimes it just takes a little longer. Try to avoid the

measuring every month. It is really tempting to see the immediate results,

but wait a bit longer. I'll bet that you see something happen soon.

Jodi

Re: oral aversions/lack of chewing skills

> From: Walborsky@...

>

>

> Hi Kara,

>

> Believe me, put N*O*T*H*I*N*G in her mouth prior to her therapies

> (except for her own fingers). While I am no expert, I do believe that it

> won't " just happen " . If your current OT doesn't have experience with

> kids like ours, I encourage you to keep looking for others who do. It

> doesn't have to be an OT. Some speech pathologists know this area too.

> But, it took months before would bite down on a tootsie roll. That

> reminds me of one thing we did early on. We always washed her face with

a

> wash cloth.....and followed the same pattern....first eyes, then nose,

then

> mouth. First I would just wipe her lips. Then we worked up to the

> teeth. Then, the gums. Then really rubbing the gums....and always in a

> predictable order...such as upper right, then upper left, lower right,

etc.

> Then I would put pressure on her bottom teeth to encourage resistance.

> This took weeks of time before I got " in her mouth " with the wash cloth.

> But, it was a start. Maybe that is where Kaci is. From my

> understanding, you need to find her current level of comfort...and build

> from there. (It sounds so easy!( & $(@* & $().... I know how frustrating

the

> whole thing is. I don't know why she would do well for 3 days and then

> stop. But I do know that any progress seems to make the regression all

> the more painful to accept.

>

> As for the GH, it doesn't seem to be working yet for . We started

> the first week of January. I measure her on the wall each month. I'm

not

> going to pass judgement until our official endo. appt in mid-May.

>

> I hope we can share more over time

> Irene

> Mom to , 3 years old, 24 pounds, 33 " , GH, G=tube, reflux

>

>

> ------------------------------------------------------------------------

> GET A NEXTCARD VISA, in 30 seconds! Get rates as low as 0.0%

> Intro or 9.9% Fixed APR and no hidden fees. Apply NOW!

> http://click./1/937/0/_/229381/_/952377980/

> ------------------------------------------------------------------------

>

>

>