responses

[Guest guest]

hi

,I started on imuran this week-got off the methotrexate a few weeks

ago as it made me tired and useless-how long have you been on the

imuran-ive been tapering off prednisone-or at least trying to-am at

35mgs now-jaw is swollen and am tired-i seem to get leg pain when

decreasing pred-especially the outer part of calves-Mimi i was wondering

how long you have been on paquinil and is that a drug like methotrexate

or imuran-how the heck does anyone have luck getting off prednisone-i

cant seem to get below 40 without a flare-Sandy I have been having

discharge from my eyes and redness for about 3 months or so-off and

on- i noticed when i started the prednisone i perspired from feet

and hands and smelled also-avons feeling fresh deodorant is the only

stuff i found that works-take care-april

[Guest guest]

Hi April, and all.

April, we had a great time with you and Rick. We have to do that again !!!

Rick is soooo nice.and you are dynamite ! Brett asked me when we got home

" Do you think that they had a good time? I did " So we sure have to get

together again (as soon as I clean the house for the Holidays I'll have you

and Rick over for dinner!) And we could always go out for dinner again --

that was fun.

- I was so relieved after talking to you on Sunday ! It was so good

to hear you made a decision and you feel comfortable with it. Never

apologize for any complaints or worries you have. That is what we are all

here for- to voice them ourselves and to support others. I have soooo much

from this group and I am so grateful.

Thank you !

B. in CT

At 09:05 PM 11/20/1999 -0800, you wrote:

>

>

>hi all,

>karen i am so glad you are feeling better-dont kniow what more i can add

>to the other responses-i surely have felt the way you have many

>times-its hard to get your hopes up when you are feeling ok only to get

>another flare and i can imagine your confusion with the 2 drs-i thought

>the enbrel helped,then it didnt but then it did again-maybe you should

>trust your dr in chicago-trentham didnt seem to be much help to

>shanin-fellow your drs advice in chicago-give it awhile-if your present

>protocal doesnt work then maybe try trenthams advice-no?listen you sound

>high strung like me-be happy you have enough energy left to get high

>strung-ha ha-it does suck to feel ok and then lousy -last 2 weeks ive

>felt ok-but had bad flare just before-remember at least we have relative

>periods of not horrible-now karen this is how ive chosen to deal with

>it-of course ive been feeling good for 2 weeks so im feeling relatively

>upbeat-but i came to the conclusion that from now on i have to do whats

>good for my family-its hard being a burden and ive thought perhaps it

>would be better if they didnt have to deal with me and this illness-many

>times ive felt this way-except they have no $ to bury me and im too

>chicken to swim out to sea ha ha-so i got a stupid job so at least i can

>contribute financially-not much mind you but a bit and for how long i

>dont know but for now thats what im doing-now karen you have a 6 year

>old that needs whatever you can give her-make the best of when you feel

>up to it and feeling lousy and tired all the time is enough to make

>anyone depressed-i was on prozac for awhile-it was great-no pms-all the

>confidence in the world and so able to handle things objectively-i went

>off of it because i thought it brought on the rp because soon after my

>ears swelled but i was having rp symptoms for years-just didnt know it

>was rp-anyway karen take it easy and live one day at a time-follow the

>dr in chicago and see where it takes you-and to evnarz-dont know first

>name-my feet hurt years ago-especially going down stairs-after sitting

>for a few minutes-it went away for years but recently came back-oh

>karen-hey metho made me sick but i seem to be ok on imuran-tired-losing

>hair but not as dead feeling as i was on metho so maybe another drug may

>work-hey my husband and i had a fabulous time with brett and susan last

>night-they are the best people-susan if your listening rik said he felt

>instantly comfortable with you guys which is unusual since we never

>met-you guys are really great-hope to see you soon-we had wonderful

>time-well arent i wordy-april

>

>>hi and welcome. maybe we can come up with answers that our doctors can't

>