Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 A 'Tropicla Cyclone Low System' is the step BEFORE a full blown CYCLONE...the MET Bureau are doing fella's names at the moment I think & it's alphabetical....possibly a name starting with 'M' this time! You'll have to wait until they finish the Boy's Alphabet & then atart again on girl's with 'A'......Tropical Cyclone GINA is a very LONG-SHOT on my calculations! VERY scientific!!!!! GIO> >> > > > Dear Gwynne,> > > > I'm not surprised you're feeling down with > your> > little Misha causing so much worry....pets give love so > unconditionally > > & we never want to part with them.> > > > Cross fingers that you get good news on her> > condition & you you'll be so relieved it'll cahse away the downers!> > > > Crossing fingers ....NOW ...oh & big HUGS > (can't> > send fresh Pacific Ocean breezes right now there's a Tropical > Cyclone> > Low System sitting off shore you wouoldn't want THAT!)> > > > [Puppy 1] > > <http://www.smileycentral.com/?partner=ZSzeb001_ZSYYYYYYYYAU>> > > > in Oz> > > > > > > > > > > > > > <http://smiley.smileycentral.com/download/index.jhtml?> partner=ZSzeb112_Z\> > SYYYYYYYYAU & utm_id=7920>> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Hi Gwynne: My antibody count is 64%. The transplant docs at UPMC in Pittsburgh have told me that that number is so high it will be very hard to find a compatible donor. I have nearly given up my race to get on the transplant waiting list. I have been through the entire evaluation at both UPMC and Cleveland Clinic. The Cleveland Clinic wants me to lose more weight and UPMC tells me my antibody count and my heart disease are going to make listing me hard. But, Dr. Toyota, the transplant surgeon in Pittsburgh, said he would do the transplant tomorrow if a compatible donor was available! He gives me hope that I might get listed, but I am afraid of the " Wait " time too. In the meantime, my numbers continue to decline, my breathing gets worse by the day. Oh, and, don't forget, I have to stay healthy enough to get listed. I have to be able to complete the 6- min. walk test, etc. Some days I wonder, should I just forget the idea of transplant? I don't know the right answer, but I struggle with it. Hold me hand. We'll need to walk through this together. Tina IPF/April 07/Ohio > > To all, > I'm battling depression right now... crashed after > the party. It isn't too severe and there are no tears, > but I think 10 months of waiting have started to > cause a constant kind of low-level anxiety in me. > Especially since I spend more time in bed when > I'm at home these days, it just emphasizes the > point. I'm on meds, which I know help, but it takes > a lot of grit to live with this thing, and it does > take a toll as you go along, no matter how > well-grounded you are for the most part. > Plus, I'll find out in a few days if Misha has a > progressive liver disease, which never leaves my > mind. She did get to come home today in hopes > that she'd eat (it had been 4 days) - and she did. > And I'm worried about Joyce, , Peggy, > Bruce, and Zena and everyone else who is struggling > extra hard to stay well and maintain quality of > life. God bless you all. > > Bruce, > You must get well right away. That's all there is > to it. Lean pockets and rest for you, my friend. > I do wish I could have been a fly on the ER wall > when you kicked arse. Way to go - look how far > you've come, dude. Hugs to you. > > Sher, > Thank you for the card. I hope this will be a year > filled with all kinds of good things for you. Please > do send us a photo of you and Rosebud. > > Sandie, > I will be thinking of you at the doctor and hoping > that some things will be resolved for you. We know > there are more questions than answers when dealing > with some of our types of illness, but I think you > have better prepared yourself for whatever is to > come. You are strong enough to handle it. I'll be > anxious to hear what happens next. > > , > Thank goodness there's a post from you to start off > the new year, but what an awful experience you had. > These convulsions that you and Joyce had are > horrifying. (I stay amazed that that hasn't happened > to me yet, nor have I passed out, which I think is > sort of incredible.) I'm sorry you are having to fight > so very hard to breathe and to fight infection. My > prayers are with you. You are so loved. > > Peggy, > The Levaquin is a gift that just keeps on giving, huh? > Bah. Hope you get relief on all counts starting NOW. > > Hugs, > Gwynne IPF 7/04 listed for transplant 3/07 Texas > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2008 Report Share Posted January 2, 2008 Tina: Thats a decision we all have to make. What I just read told me you find it frustrating, but I saw nothing that said you wanted to forget it. Don't forget it just because you might not get it. If you want it, continue to go after it, but meanwhile don't let it rule your life either. Live every day so you'll have no regrets. Then if it happens it will just be the bonus of a lifetime. So, if you want it as your writing indicates, do everything you can for it. But at the same time do everything you can to have the fullest life possible, whether it happens for you or not. -- In Breathe-Support , " Tina " wrote: > > Hi Gwynne: > > My antibody count is 64%. The transplant docs at UPMC in Pittsburgh > have told me that that number is so high it will be very hard to > find a compatible donor. I have nearly given up my race to get on > the transplant waiting list. I have been through the entire > evaluation at both UPMC and Cleveland Clinic. The Cleveland Clinic > wants me to lose more weight and UPMC tells me my antibody count and > my heart disease are going to make listing me hard. But, Dr. > Toyota, the transplant surgeon in Pittsburgh, said he would do the > transplant tomorrow if a compatible donor was available! He gives > me hope that I might get listed, but I am afraid of the " Wait " time > too. In the meantime, my numbers continue to decline, my breathing > gets worse by the day. Oh, and, don't forget, I have to stay > healthy enough to get listed. I have to be able to complete the 6- > min. walk test, etc. Some days I wonder, should I just forget the > idea of transplant? I don't know the right answer, but I struggle > with it. > > Hold me hand. We'll need to walk through this together. > > Tina > IPF/April 07/Ohio > > > > > > To all, > > I'm battling depression right now... crashed after > > the party. It isn't too severe and there are no tears, > > but I think 10 months of waiting have started to > > cause a constant kind of low-level anxiety in me. > > Especially since I spend more time in bed when > > I'm at home these days, it just emphasizes the > > point. I'm on meds, which I know help, but it takes > > a lot of grit to live with this thing, and it does > > take a toll as you go along, no matter how > > well-grounded you are for the most part. > > Plus, I'll find out in a few days if Misha has a > > progressive liver disease, which never leaves my > > mind. She did get to come home today in hopes > > that she'd eat (it had been 4 days) - and she did. > > And I'm worried about Joyce, , Peggy, > > Bruce, and Zena and everyone else who is struggling > > extra hard to stay well and maintain quality of > > life. God bless you all. > > > > Bruce, > > You must get well right away. That's all there is > > to it. Lean pockets and rest for you, my friend. > > I do wish I could have been a fly on the ER wall > > when you kicked arse. Way to go - look how far > > you've come, dude. Hugs to you. > > > > Sher, > > Thank you for the card. I hope this will be a year > > filled with all kinds of good things for you. Please > > do send us a photo of you and Rosebud. > > > > Sandie, > > I will be thinking of you at the doctor and hoping > > that some things will be resolved for you. We know > > there are more questions than answers when dealing > > with some of our types of illness, but I think you > > have better prepared yourself for whatever is to > > come. You are strong enough to handle it. I'll be > > anxious to hear what happens next. > > > > , > > Thank goodness there's a post from you to start off > > the new year, but what an awful experience you had. > > These convulsions that you and Joyce had are > > horrifying. (I stay amazed that that hasn't happened > > to me yet, nor have I passed out, which I think is > > sort of incredible.) I'm sorry you are having to fight > > so very hard to breathe and to fight infection. My > > prayers are with you. You are so loved. > > > > Peggy, > > The Levaquin is a gift that just keeps on giving, huh? > > Bah. Hope you get relief on all counts starting NOW. > > > > Hugs, > > Gwynne IPF 7/04 listed for transplant 3/07 Texas > > > Quote Link to comment Share on other sites More sharing options...
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