Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Well it was what i figured the appt was to be. I dont know I just cant get my hopes up to much with these doctors. I suspect whatever I have will sit and drive me miserable for awhile before they are able to see what it is and do something about. He was a nice doctor. Did an exam and said he wanted to check two things, one a blood test for emphasyma he said he does it on all his patients but secondly he said your tests show you have the beginning of emphasyma - he said did they tell you that, I said no they didnt. So he said I really quit smoking at the best time possible for me and to not start. he said this blood test will tell him if I have a genetic it gene for emphasyma if I do he said we want to know this now and not in 20 years. He also ordered the exercise stress test. He said lets see what you can do, lets see if its your heart or lungs or if its neither and rule some of this out for you so then you know. He said unfortunatly with people who have auto-immune issues he has seen it take a few years up to five years before anything of signifigance shows up before they know what it is to treat. So I will go to that test, and see the GI doc at the end of the month and then I will just see my regular GP until something major happens. And just document things there really isnt anything I can do about it. My GP called last night my other tests were fine, and I told her about the lung appt she said yep this thing is going to be just like the RA and hide until its beyond miserable and then we will find it. So still no diagnosis and I still have to suffer. He did tell me to do some 40-80 minutes of cardio workout a day he said 9 out of 10 people are out of shape. I just looked at him. I think I know if I was out of shape I hardly think I am that out of shape. But whatever I will do my best. Thanks for listening! Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Dear oh Dear Sandie, Still no clear-cut answers...he was sounding quite 'on-the-ball' until the out-of -shape comment! Given your RA history that seems very unlikely. The irony is that lots of people DON'T get diagnosed earlier with PF purely because they DO assume they're just 'out-of-shape'...That's what I thought for a long time! Then I suspected reoccurring Post-viral Asthma, I'd never ever heard of PF..... SAndie....stick with US..we'll Stick with YOU....we'll follow all the leads & try & support you through the misery ......HANG IN THERE WOMAN...we're STICKLERS here! in Oz>> Well it was what i figured the appt was to be. I dont know I just > cant get my hopes up to much with these doctors. I suspect whatever > I have will sit and drive me miserable for awhile before they are > able to see what it is and do something about. He was a nice > doctor. Did an exam and said he wanted to check two things, one a > blood test for emphasyma he said he does it on all his patients but > secondly he said your tests show you have the beginning of emphasyma -> he said did they tell you that, I said no they didnt. So he said I > really quit smoking at the best time possible for me and to not > start. he said this blood test will tell him if I have a genetic it > gene for emphasyma if I do he said we want to know this now and not > in 20 years. He also ordered the exercise stress test. He said lets > see what you can do, lets see if its your heart or lungs or if its > neither and rule some of this out for you so then you know.> > He said unfortunatly with people who have auto-immune issues he has > seen it take a few years up to five years before anything of > signifigance shows up before they know what it is to treat. > > So I will go to that test, and see the GI doc at the end of the month > and then I will just see my regular GP until something major > happens. And just document things there really isnt anything I can > do about it. My GP called last night my other tests were fine, and I > told her about the lung appt she said yep this thing is going to be > just like the RA and hide until its beyond miserable and then we will > find it. > > So still no diagnosis and I still have to suffer. He did tell me to > do some 40-80 minutes of cardio workout a day he said 9 out of 10 > people are out of shape. I just looked at him. I think I know if I > was out of shape I hardly think I am that out of shape. But whatever > I will do my best.> > Thanks for listening!> > Sandie> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Too young, too old, wrong sex, wrong ethnic group. Assumptions are so bad. My ex-wife was the youngest case her doctor had ever encountered with macular degeneration in one eye when she had it at 26. Didn't make it less real. Yes, Zena and Irene, you're both too young for all of this. So am I. Even Sher is. We're all too young. You shouldn't get these things until after 100. No, make that 200. > > > > > > > > Well it was what i figured the appt was to be. I dont know I just > > > > cant get my hopes up to much with these doctors. I suspect > > whatever > > > > I have will sit and drive me miserable for awhile before they are > > > > able to see what it is and do something about. He was a nice > > > > doctor. Did an exam and said he wanted to check two things, one a > > > > blood test for emphasyma he said he does it on all his patients > > but > > > > secondly he said your tests show you have the beginning of > > emphasyma - > > > > he said did they tell you that, I said no they d idnt. So he said I > > > > really quit smoking at the best time possible for me and to not > > > > start. he said this blood test will tell him if I have a genetic > > it > > > > gene for emphasyma if I do he said we want to know this now and > > not > > > > in 20 years. He also ordered the exercise stress test. He said > > lets > > > > see what you can do, lets see if its your heart or lungs or if its > > > > neither and rule some of this out for you so then you know. > > > > > > > > He said unfortunatly with people who have auto-immune issues he > > has > > > > seen it take a few years up to five years before anything of > > > > signifigance shows up before they know what it is to treat. > > > > > > > > So I will go to that test, and see the GI doc at the end of the > > month > > > > and then I will just see my regular GP until something major > > > > happens. And just document things there really isnt anything I can > > > > do about it. My GP called last night my other tests were fine, > > and I > > > > told her about the lung appt she said yep this thing is going to > > be > > > > just like the RA and hide until its beyond miserable and then we > > will > > > > find it. > > > > > > > > So still no diagnosis and I still have to suffer. He did tell me > > to > > > > do some 40-80 minutes of cardio workout a day he said 9 out of 10 > > > > people are out of shape. I just looked at him. I think I know if I > > > > was out of shape I hardly think I am that out of shape. But > > whatever > > > > I will do my best. > > > > > > > > Thanks for listening! > > > > > > > > Sandie > > > > > > > > > > > > > > > > ______________________________________________________________________ __ > Meet the new AOL.ca. Free radio, music, videos, news & entertainment ? with a Canadian perspective. > Quote Link to comment Share on other sites More sharing options...
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