Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Gen....well with 1000 emails I hope you see mine to welcome you to our board. I'm saddened to read what you write about you and your family history. Never have I been so aware of the little saying: "I felt sorry for myself because I had no shoes and then I met a man who had no feet." There are so many on this board in so many different stages of our disease and with other complicated health issues that I just wrote to someone that I'm grateful I ONLY have IPF! I'll turn 70 this year. There are only a few of us 'older ones' on the board. I was dx 3-06 and have been fairly stable since. Have other issues that cause me concern but not what you deal with. Sorry there is the need to be on a board like this but I'm sure you will share lots with us and there is always someone here who can answer a question or just listen. I'm called Mama-sher because I tuck people under my wings and cluck to them. (Or 'pick at 'em, lol) When you sign off, add your dx, date of, state or whatever you want. Welcome Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there! Hi to all of you Hi everyone, I seem to have over 1000 e-mails in my box. Thank you all for your notes. I have not read all correspondence , but will figure out how to cut the volume a bit. About me, I am 79 years old and have been diagnosed with PF after many years of not knowing what was going on, I guess I am relieved to have any kind of diagnosis, and of course because of my advanced age my Dr. does not want to put me through the steroids/viagra/and whatever else the cockeyed medical world has thought up. I really am sort of angry, that does not do a lot of good. I have 9 children/we have a sad history of autoimmune disease, 2 sons with advanced MS and one grandson just diagnosed, 1 daughter with crippling RA, my mother and sister had something on that order, I have found some things I think help, I am on oxygen24/7 and I take NAC as per my dr. not a prescription/seems to help the fatigue. so i do stay in my pj's some days. I retired from the Law Enforcement center/was a communications officer/matron/jailer, so I know lots of those words I would like to use. I argue with drs, they are NOT going to have the last word, I AM. we live in Northern Iowa, and my husband, like a lot of others doesn't have a clue, I have to ignore the way the wash turns out and the kitchen. Really hard to still have your brain and know what you would be doing if your body would let you, sorry to ramble and I will stay in touch. I take some other things from the alt. med. place.liquid oxy and a lung tonic with cordyceps, looks like swamp water. Later, Gen Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
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