Zipperhead times two here I come!

[Guest guest]

Hi all!

I am back from Dr. Batzdorf's at UCLA. I found out that I have to have

the decompresion surgery redone. The cerebellum, scar tissue, the muscles,

and the dural patch all clumped up so it is making me have all the symptoms I

had prior to the original surgery all over again. He has to redo the

decompression using a different type of patch, some special matterial (like

what they use in sleeping bags), and some plastic so that the cerebellum and

the patch do not adhere together again. He has to take some tissue from my

head in a different place. Boy, will my hair be real special this time!

Best part of the visit was that I found out that the syrinx from C1 to T2

is completely gone! YAHOO!

I know one thing it was sure depressing when I left his office to know

that I have to go under the knife again, but it sure did help me to know that

I have something wrong and it was not all just in my head (even though it

is/imagining it). The doctor who did the original decompression surgery in

March 2000, said that everything looked really good but now I must have

bersitus in my right arm. He just blew me off!

Atleast this time I know what to expect, how special my hair will look,

and thank god I did not throw away my hats!

Hope you are all well!

Kim E

San Diego

ACM1/Syringomyelia

And YAHOO No more Syrinx