Re: Doors are opening - 5th Highest Overall Rank for Changes in America

[Guest guest]

I know, I kinda think there was a push involved.

Jayne

--------- Re: Doors are opening - 5th Highest Overall Rank for Changes in America

If anyone read the Sun Sentinal today, a little girl with Autism fell out of a fifth floor window in NY.

Since Miki jumped out of the second story ( falling in mulch and not getting at all hurt!!!) at 4 yr old I now have weird locks on all of my windows so they can only go up 6 inches. Now if I can only figure out how to pad all the walls and floors.....

Jayne, Mom to the sick with a fever Miki

------------ -- Original message from " E. , Sr." <peace4kidsyahoo (DOT) com>: ------------ --

Listmembers,Throughout the last few weeks we have had several what I wouldcall 'shocking' reports regarding the treatment of children withdisabilities and as well the treatment and retaliation of those whotry to help them. The CNN reports of time out rooms and cells shouldconcern EVERY parent regardless of whether their child is disabled ornot.. if for you have not looked at this site I believe you should,however awful it may be it is the horrifying truth for the children inour schools...regardles s of disability or none.http://www.cnn. com/2008/ US/12/17/ seclusion. rooms/index. htmlAfter viewing the article and seeing the video of the father ofthe child from GA. that died in one recently, it is not a 'fun'subject to discuss - but discussion must take place and action after such.The other very shocking news came to you in a post recently..Regarding an Arizona Advocate that is facing 150 plus years prison ina retalitory action against him due to the fact he was a 'winning'advocate with not only a record of due process wins. The arresting ofhim with guns drawn is simply wrong. Haven't we had enough ?So, many parents and those on the Autism Spectrum have respondedrallying the " Autism Reform Act of 2009 " , And relief for those thathave been or are in Special Education or Disabled ".This is not a replacement for the ADA but I personally think the "ARA"should be an ACT that is reauthorized and continued after it has beenmade acceptable to the President Elect and the Legislative branch thatwill ratify and fund it.THE ACT IS CURRENTLY IN 5TH PLACE IN THE NATION FOR ALL IDEA'S FORCHANGE IN AMERICA. In the 'Education' category it is 1st by almost 600votes and almost 800 votes over the 3rd place idea that will also makeit to the final round.We have made a statement as not only parents but also those on thespectrum or with other disabilities. I believe strongly that the'force' of the movement of parents must at some point, and I believethe time is NOW, join together with the large population of those onthe spectrum or disabled that are Adults. This is for them, and if weare going to speak for them they not only deserve a 'say' in it, theyare needed for input that has already been crucial in revising theproposal in ways I believe will be more acceptable to thePresident-Elect and to the entire community that needs to merge..thosewith disabilities on the spectrum or not, and those that are parentsof disabled children and are going through the education process. Bylooking at the 'finished product' or person that has gone throughspecial education we get insight that we could only get from someonethat has actually been in the students chair, been denied somethingunfairly as an adult such as SSI, being put on waiting lists forMedicaid waivers, and so on. How long should we just sit here and say" I don't like this part" " We can't fund this " (We've fundedbailouts totaling a trillion plus when you include the fannie/freddieand we've also spent just as much/more on war) " This should bechanged " (well email me or respond with some constructive input for achange or addition to the the ACT) "I just don't have time to readthis post or concern myself with thisbecause..... ..." (Our children and those that are older kids of ourscome first, take the few moments and do what you can to make thedifference.. Please) " I don't think the Aspies and others that areadults can make these kind of decisions " ( Believe me they can andalready have !)So lets open our minds to the possibility of real " Change " , thekind that counts. Regardless of what political party we follow,regardless of what beliefs we have that are different " I like theGFCF diet " " I think HBOT is the way to go " " I think chelation isall that works " " All kids need a 1:1 aide (this may be close to verytrue for the younger kids on the spectrum and with other disabilities) ".REGARDLESS.. . we must join together and forget about indifferentfeelings on subjects that will result in absolutely NO funding unlesswe come together in a strong accord and make something happen.This is not 'my' act.. as I've said before it belongs to the people,made by the people, and for the people. I'm just a concerned dad witha big mouth that types fast (but I can say enough is enough, time forchange NOW) ! No more kids need to die, no more adults on waitinglists due to underfunding the Medicaid Waiver program, no more kids inunsafe inappropriate environment pulling out their hair as the oneyoung girl did in a time out room.... The bottom line is we have anOPEN DOOR now.. we have attention and need to go after it. Pleaseemail me offlist at Peace4kids@. .. and let me know your input. It allcounts.. some are major ideas and some are compiled with 'like' ideas,all of which will appear in some shape or form on the final proposal.The input I am now getting from the Adults on the spectrum is quitelarge. We have several 'groups' ....and in the last 12 years I havenot seen unity at all within them.. lets as parents be patient andlisten to our kids...let them give input..as Adults they have valuableinformation. .And those on the spectrum or with other disabilities. .try to keep an open mind as far as the possibility we now have as the5th highest rated idea in America and Number 1 in Education a basic'given'. Those who haven't supported.. please take the time toregister and support - your input matters.http://www.change. org/ideas/ view/accept_ and_sign_ the_autism_ reform_act_ o\f_2009 E. , Sr.The Office of Advocacy for Autistic Children(soon to be Individuals) .