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Andre's being REFFERRED!!

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Hi everyone! Took Andre to his ped. today because he's been nauseous (and

vomiting in the mornings only). It's just been since our weather's changed

(overcast) and I've had tremendous pressure in my head too (does anyone's

TONGUE ever hurt?). So I figured it was chiari or cyst-on-brainstem related.

His ped. (honestly) said he has no idea what's going on. I told him of our

problems with the neurologist and he said we absolutely need a specialist!

He's putting the referral in tomorrow for Dr. Batzdorf (Andre's old enough

to go to him) but also gave me some other names, so I wanted to ask you all

first.

Has anyone heard of or had experience with Drs. LEVY or McCOMB at Childrens

Hospital in Los Angeles? These are neurologist friends of his who've worked

on hydrocephalus pts. for him, but I need to know if they know chiari. I'd

so appreciate ANY input! THANKS SO MUCH!!

Much love, Traci ACM1

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