Guest guest Posted November 20, 1999 Report Share Posted November 20, 1999 Hi & Co I´m sorry to hear news and sorry to tell that I have some problems again with respitory inflm. Some fever and on antibiotics. CellCept - Yes, tried it last fall till I got pneumonia before x-mas. I can´t accuse CC for that, becuse I have had pneumonia every winter for some yrs. Maybe I should have tried again in spring, but I just " let it be " . I didn´t notice any clear effect, neither side effect, but it has been the same with half a dozen different meds. Only Pred seems to have effect (+ some side effects). Besides I have used Sandimmun Neoral (Ciclosporin) for some yrs. I stopped it a couple of weeks ago (by myself) and won´t easily go back, because I haven´t managed to lower Pred. And those pneumonias. ( " You never know how bad the situation were without it " .) Next on my list is thalidomide, as I told last week. As you see my threshold is quite low, because I have had only " mental side effects " , disappointments. I may have been too impatient with the results of new meds and going on with Embrel could be the first choice for you (just my opinion). If you trust more on Dr. E., listen first to him (her?). At the moment I´m not the best person to support you or anyone, but CC is a new chance for you and one source of hope, (and not the only). Better tomorrow to you, too! Arto PS. If you have some more questions, don´t hesitate to contact me. I´ll check my e-mail tomorrow, but have possibly to go to hospital on Monday for IV??? Quote Link to comment Share on other sites More sharing options...
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