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Re: Sandie and Zena

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I'm limited. I can live with that. Most of the time I'm not a burden

at this point. However, I do feel that way like Monday when

insisted on taking me to the ER. I knew she'd be mad if I didn't

call, but I'm trying to impress on her that when she's teaching and

other times, she can't always do that, that this is part of my life

now. I will have more ER appearances, just like more MC gigs. We left

here at 1:30 and got to my home with the prescriptions and 's at

10:30. I felt like I'd robbed her of 9 hours, basically one day of

her life, and I don't like doing that.

> > > > >

> > > > >

> > > > > I'm feeling scared, guilty, worried, down

> > > > >

> > > > > I hate what is happening to me

> > > > >

> > > > > I hate that there is no cure

> > > > >

> > > > > I hate that they can't give me a prognosis

> > > > >

> > > > > I hate having to worry about every little thing.

> > > > >

> > > > > I hate that I can't just get on an do stuff

> > > > >

> > > > > I hate the idea that I might not see my baby grow up.

> > > > >

> > > > > I hate that she's got to live life with a mum that isn't

> firing

> > > on all

> > > > > cylinders.

> > > > >

> > > > > I hate that I have to curtail one of my hobbies.

> > > > >

> > > > > I hate that I have to plan going out so that I don't run

out

> of

> > > O2

> > > > >

> > > > > I've tried to talk to Rob, but I end up 'pulling my self

> > > together' and

> > > > > saying 'don't mind me, I'm fine really' And I'm doing this

not

> > > to upset

> > > > > him too much. I don't know if he really knows the full

> > > implications of

> > > > > PF, and I don't know how to bring it up.

> > > > >

> > > > > But I'm not Ok right now.

> > > > >

> > > > > I want to scream and shout and rage at the unfairness of it

> all

> > > (except

> > > > > that I'd get too out of breath [8-|] I can't even have a

damn

> > > good

> > > > > laugh at anything as it makes me cough too much [:(] )

> > > > >

> > > > > My father is having a second op following problems with a

hip

> > > > > replacement, and I was his main carer, (frankly my brother

is

> > > useless

> > > > > and selfish when it comes to looking after dad, happy to

> borrow

> > > dads

> > > > > car, but not so good at running errands) so I'm now

worrying

> at

> > > how he's

> > > > > going to cope

> > > > >

> > > > > And to top everything I have a wisdom tooth causing me lots

of

> > > problems,

> > > > > it started last night, so I won't get to a dentist until at

> > > least

> > > > > tomorrow and I need to see a doctor tomorrow as I'm

starting

> to

> > > get a

> > > > > cough as well [8-|]

> > > > >

> > > > > Right now, I've just had enough and I want to step out of my

> > > body for a

> > > > > little while and hop into someone elses while it get's on

with

> > > it.

> > > > >

> > > >

> > >

> >

>

>

>

>

>

>

>

> ---------------------------------

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>

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