Re: Gwynne

[Guest guest]

Tina,

When I was evaluated for transplant, I did not even want to go for the work up. I did not want transplant, but my doctor insisted. My quality of life was not soooo bad. I was turned down because of a blood clotting problem associated with connective tissue diseases. My 02 was at 2L-5L. Now I am at 8L -10L. I cannot walk through my house without dropping sats. I am mostly homebound.

So, if I had the opportunity today to have a new lung. Oh, believe me, I would go in a heartbeat. This is miserable. I am 63 and that seems old to a lot of you babies, but my spirit doesn't feel 63. My husband is going to retire this year and we had so many plans.

You are so blessed to be able to be treated at a facility like Cleveland Clinic. They are among the best.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > To all,> > I'm battling depression right now... crashed after> > the party. It isn't too severe and there are no tears,> > but I think 10 months of waiting have started to> > cause a constant kind of low-level anxiety in me.> > Especially since I spend more time in bed when> > I'm at home these days, it just emphasizes the> > point. I'm on meds, which I know help, but it takes> > a lot of grit to live with this thing, and it does> > take a toll as you go along, no matter how> > well-grounded you are for the most part.> > Plus, I'll find out in a few days if Misha has a> > progressive liver disease, which never leaves my> > mind. She did get to come home today in hopes> > that she'd eat (it had been 4 days) - and she did.> > And I'm worried about Joyce, , Peggy,> > Bruce, and Zena and everyone else who is struggling> > extra hard to stay well and maintain quality of> > life. God bless you all.> > > > Bruce,> > You must get well right away. That's all there is> > to it. Lean pockets and rest for you, my friend.> > I do wish I could have been a fly on the ER wall> > when you kicked arse. Way to go - look how far> > you've come, dude. Hugs to you.> > > > Sher,> > Thank you for the card. I hope this will be a year> > filled with all kinds of good things for you. Please> > do send us a photo of you and Rosebud.> > > > Sandie,> > I will be thinking of you at the doctor and hoping> > that some things will be resolved for you. We know> > there are more questions than answers when dealing> > with some of our types of illness, but I think you> > have better prepared yourself for whatever is to> > come. You are strong enough to handle it. I'll be> > anxious to hear what happens next.> > > > ,> > Thank goodness there's a post from you to start off> > the new year, but what an awful experience you had.> > These convulsions that you and Joyce had are> > horrifying. (I stay amazed that that hasn't happened> > to me yet, nor have I passed out, which I think is> > sort of incredible.) I'm sorry you are having to fight> > so very hard to breathe and to fight infection. My> > prayers are with you. You are so loved.> > > > Peggy,> > The Levaquin is a gift that just keeps on giving, huh?> > Bah. Hope you get relief on all counts starting NOW.> > > > Hugs,> > Gwynne IPF 7/04 listed for transplant 3/07 Texas> >>