Re: Joyce/lupus issues>>Barbara

[Guest guest]

Babs what kinds of things happen to your face and teeth? I have been

in the hospital twice this year with cellulitis in the face because

my face swelled up with infection. This all started with wierd mouth

sores under the tongue, not canker sores, or medication sores, RA doc

never saw them before. Just wondering what kinds of things go on

with your face and teeth.

Thanks

Sandie

suffering succotash, 2007, WI - 37

> > > > >

> > > > > Zena,

> > > > > I know you won't see this for a bit because of the time

> > > difference but

> > > > I was wondering if you could share with me what kinds of

> symptoms

> > > you

> > > > have/had from the dermatomyositis? How was it diagnosed? My

> doctor

> > > is

> > > > planning a biopsy of the rash and blistering on my hands

but I'm

> > > having

> > > > alot more fatigue recently and some muscle and joint pain.

I was

> > > > wondering if you had those kinds of symptoms?

> > > > > Anything you'd care to share I would greatly appreciate.

I

> feel

> > > like

> > > > my body is revolting against me. LOL

> > > > >

> > > > > Beth in NC age 48 Fibrotic NSIP 06/06

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi Babs, they have done blood work but most of my blood work is

normal well I should say the routine blood work. This time my sed-

rate was normal and my rheumatoid factor was even negative that's a

first in seven years, but they did the CCP test and that was positive

I think its supposed to below 60 and mine was like 560, the problem

is isn't lupus and Ra very similar and how do they decipher the

difference between the two of them?

They check the liver and white count those things because of my

Rheumatoid arthritis. But I have always thought well what if they

misdiagnosed me and I have lupus or something else then what. If you

look at most of my pictures with me in them you see how my face is

always red. Don't know why its been that way for years and seems to

always stay that way to me it resembles a butterfly rash and I

always try to find anything more specific in pictures or anywhere

and haven't common across that yet. So I am not sure what to believe

anymore.

As far as doctors I have been to the round of them and basically I

have to sit and wait for something major to happen before anyone will

figure it out.

Sjogrens I asked my RA doc about this and she said I didn't need a

biopsy or eye test of anything like that because the medication they

give you just makes it worse, and to use candy and artificial tears

or stuff like that. Yeah those mouth sores were odd in the beginning

even my dentist was upset at the doctors he kept saying HELLO People

she is an auto-immune thing going on here and these are not canker

sores~! Gosh he was mad, now we just document the sores when they

show up, which is usually weekly.

So I don't know what type of doctor to go to and what type of tests

to have run to find out what I have going on. Any suggestions? Do

you know the differences between lupus and RA?

Sandie

Suffering succotash, 2007 WI -37

> > > > > > >

> > > > > > > Zena,

> > > > > > > I know you won't see this for a bit because of the

time

> > > > > difference but

> > > > > > I was wondering if you could share with me what kinds

of

> > > symptoms

> > > > > you

> > > > > > have/had from the dermatomyositis? How was it

diagnosed? My

> > > doctor

> > > > > is

> > > > > > planning a biopsy of the rash and blistering on my

hands

> > but I'm

> > > > > having

> > > > > > alot more fatigue recently and some muscle and joint

pain.

> > I was

> > > > > > wondering if you had those kinds of symptoms?

> > > > > > > Anything you'd care to share I would greatly

appreciate.

> > I

> > > feel

> > > > > like

> > > > > > my body is revolting against me. LOL

> > > > > > >

> > > > > > > Beth in NC age 48 Fibrotic NSIP 06/06

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Babs... all this and CREST.I can't help it. I feel so sorry for what you live with.

Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there!

Re: Joyce/lupus issues>>Barbara

Sandie, the main problem with my teeth is the dry mouth. It causes acondition called s, which allows cavities to become moreprevalant, no matter how much you brush or use floss. I also have lost3 teeth now because of the dryness. The sjogren's also blocks my salivary glands and my face swells up. Itis quite painful. So far no infection with that, just with my teeth.Canker sores are quite usual with sjogren's or lupus. My sister haslupus and gets them all the time.And now, my face is tightening from the scleroderma. I call it my"redneck face lift". LOL! It actually hurts and is no laughing matter,but hey, who's going to turn down a free face lift?I DID have a problem last year with my arms. I developed a symptomcalled "lupus profundis" and both arms swelled up immensely. It wasscary! They also began dimpling and resembled orange rind. A round ofprednisone fixed me up. The Doc said it was a rare symptom of lupus. Ireplied, that figures. Leave it to me to get the rare symptom.I would assume the sores in your mouth are a result of an AI disease.Did they biopsy one? Did they run blood work at the time the soreswere active? Did he refer you to another type of Doc?It sounds like Sjogren's to me. But, I've been told numerous timesthat I lack certain initials after my name....D.R.Hugs!!!Babs in Texas> > > > > >> > > > > > Zena,> > > > > > I know you won't see this for a bit because of the time> > > > difference but> > > > > I was wondering if you could share with me what kinds of > > symptoms> > > > you> > > > > have/had from the dermatomyositis? How was it diagnosed? My > > doctor> > > > is> > > > > planning a biopsy of the rash and blistering on my hands > but I'm> > > > having> > > > > alot more fatigue recently and some muscle and joint pain. > I was> > > > > wondering if you had those kinds of symptoms?> > > > > > Anything you'd care to share I would greatly appreciate. > I > > feel> > > > like> > > > > my body is revolting against me. LOL> > > > > >> > > > > > Beth in NC age 48 Fibrotic NSIP 06/06> > > > > >> > > > >> > > >> > >> >>