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Minus 25 degrees here for the past week.............. last week when I was sick I had a coughing fit........almost, ALMOST told my 15 year old daughter....."_ _ _ _ _ _ _ _, I'D RATHER BE DEAD". Thank God I was able to keep my mouth shut. jimPeggy wrote: TRUE, TRUE. I told the other day I a still not afraid of death but this dying part is really hard. I Hate not being able to get a good breath. Hate not being able to make my bed. Hate that I have just had to order a larger flow

concentrator. HATE this disease. All that being said, I insist on having a good day. It is about 75 outside and I am headed to the porch. Love and Prayers, Peggy ipf 6/04 Florida "Worry looks around, Sorry looks back, Faith looks up." Yes, but at some point an adult child should think of us and what WE need. This dying is about us. It is so good to come here.....if nothing else, we can say the words that no one else wants to

hear. God's blessings. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> It could be they do not want to face losing you. I know that my family finds it hard to realize that i am dying. That option was always there but no one wants a specific time frame. I know I have trouble myself accepting IPF. I find no fault at them wanting me forever but forever is sometimes shorter than we think. Love you all.> > > grief> > > Judy B,> My heart aches over the situation with your daughter. My> daughter is 23 and isn't dealing well with my illness

either.> I can't expect her to be okay with the fact that her father> committed suicide when she was 8, and her 56-year-old> mother has a terminal illness. She will talk about it only> in brief spurts. She and my son are definitely already> grieving, even though on the surface Kate seems to be> doing fine. The timing of all this is terrible, as she only> turned her life around 3 years ago after being self-> destructive and troubled. We were kind of making up> for lost time, and then WHAM - this diagnosis. Unlike> me, Kate's still not great at openly and honestly> expressing her emotions. Both she and my son live> 3 hours away, and I think they do feel guilt about not> being physically closer to provide more support.> Fortunately, my son will talk about any and everything> with me, not that it's easy or pleasant. He's SO sweet> and supportive. He's 28, and my

daughter-in- law is> very special and dear to my heart too.> > If you two have always been close, I believe that things> will work themselves out somehow. You will find a way> to lovingly say to her what you need to say, in a way that> gives you peace and helps ease her mind and her pain later.> You will ease the way for her to say what she needs to> say, by being an approachable mother. Parenting's an> incredibly hard job, even when you're baby's 44.> > None of us knows exactly how long we'll be here, but> this disease gives us reason to begin grieving early. It> also teaches us to cherish the sanctity of life, and to> give to God what we cannot do for ourselves. You're in> my prayers.> > Hugs and blessings,>

Gwynne IPF 7/04 listed for transplant 3/07 Texas> > > > > > > Never miss a thing. Make Yahoo your homepage.>

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Joyce...... your note reminded me of something I came across years ago. I'd like to share it if it's alright..... We are standing on a shore....... somewhere A ship before us spreads her white sails and starts for the blue ocean. She is a beautiful and a strong ship. We watch her until she hangs like a speck of white cloud where the sea and the sky come together to mingle with each other. Then, someone at our side says, "there....well, well, she's gone". But, gone where? From our sight, that's all. She is just as large in mast and spar as when she left our shore, just as strong and able. Her diminished size is in us, not in her, and while someone at our side is saying "she's gone", there are other eyes watching her coming, ready to take up the glad shout, "Look, there she comes". jim Joyce wrote: Sunday, at church, our preacher said that he was watching people at the airport and he saw people leaving town, hugging and crying. Then he saw people coming into town and they were all happy with big smiles and tears of joy. He likened that with dying. The parting is so sad. On the other side, all of heaven is rejoicing as you arrive. A great analogy. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> >> > It could be they do not want to face losing you. I know that my > family finds it hard to realize that i am dying. That option was > always there but no one wants a specific time frame. I know I have > trouble myself accepting IPF. I find no fault at them wanting me > forever but forever is sometimes shorter than we think. Love you all.> >> >> > grief> >> >> > Judy B,> > My heart aches over the situation with your daughter. My> > daughter is 23 and isn't dealing well with my illness either.> > I can't expect her to be okay with the fact that her father> > committed suicide when she was 8, and her 56-year-old> > mother has a terminal illness. She will talk about it only> > in brief spurts. She and my son are definitely already> > grieving, even though on the surface Kate

seems to be> > doing fine. The timing of all this is terrible, as she only> > turned her life around 3 years ago after being self-> > destructive and troubled. We were kind of making up> > for lost time, and then WHAM - this diagnosis. Unlike> > me, Kate's still not great at openly and honestly> > expressing her emotions. Both she and my son live> > 3 hours away, and I think they do feel guilt about not> > being physically closer to provide more support.> > Fortunately, my son will talk about any and everything> > with me, not that it's easy or pleasant. He's SO sweet> > and supportive. He's 28, and my daughter-in- law is> > very special and dear to my heart too.> >> > If you two have always been close, I believe that things> > will work themselves out somehow. You will find a way> > to lovingly say to her what you

need to say, in a way that> > gives you peace and helps ease her mind and her pain later.> > You will ease the way for her to say what she needs to> > say, by being an approachable mother. Parenting's an> > incredibly hard job, even when you're baby's 44.> >> > None of us knows exactly how long we'll be here, but> > this disease gives us reason to begin grieving early. It> > also teaches us to cherish the sanctity of life, and to> > give to God what we cannot do for ourselves. You're in> > my prayers.> >> > Hugs and blessings,> > Gwynne IPF 7/04 listed for transplant 3/07 Texas> >> >> >> >> >> >> > Never miss a thing. Make Yahoo your homepage.> >>

Never miss a thing. Make Yahoo your homepage.

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Jim, I love this. I told the reporter about this very e-mail today.. I sometimes hear my Mom saying "Here she comes" Love and Prayers, Peggy  ipf 6/04 Florida"Worry looks around, Sorry looks back, Faith looks up." Joyce...... your note reminded me of something I came across years ago. I'd like to share it if it's alright..... We are standing on a shore....... somewhere A ship before us spreads her white sails and starts for the blue ocean. She is a beautiful and a strong ship. We watch her until she hangs like a speck of white cloud where the sea and the sky come together to mingle with each other. Then, someone at our side says, "there....well, well, she's gone". But, gone where? From our sight, that's all. She is just as large in mast and spar as when she left our shore, just as strong and able. Her diminished size is in us, not in her, and while someone at our side is saying "she's gone", there are other eyes watching her coming, ready to take up the glad shout, "Look, there she comes". jimJoyce <janne5303> wrote:Sunday, at church, our preacher said that he was watching people at the airport and he saw people leaving town, hugging and crying.  Then he saw people coming into town and they were all happy with big smiles and tears of joy.He likened that with dying.  The parting is so sad.  On the other side, all of heaven is rejoicing as you arrive.  A great analogy. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997    BRONCHIECTASIS 2004   INDIANA 2 COR. 12:10   ....when I am weak, then I am strong.> >> > It could be they do not want to face losing you. I know that my > family finds it hard to realize that i am dying. That option was > always there but no one wants a specific time frame. I know I have > trouble myself accepting IPF. I find no fault at them wanting me > forever but forever is sometimes shorter than we think. Love you all.> >> >> > grief> >> >> > Judy B,> > My heart aches over the situation with your daughter. My> > daughter is 23 and isn't dealing well with my illness either.> > I can't expect her to be okay with the fact that her father> > committed suicide when she was 8, and her 56-year-old> > mother has a terminal illness. She will talk about it only> > in brief spurts. She and my son are definitely already> > grieving, even though on the surface Kate seems to be> > doing fine. The timing of all this is terrible, as she only> > turned her life around 3 years ago after being self-> > destructive and troubled. We were kind of making up> > for lost time, and then WHAM - this diagnosis. Unlike> > me, Kate's still not great at openly and honestly> > expressing her emotions. Both she and my son live> > 3 hours away, and I think they do feel guilt about not> > being physically closer to provide more support.> > Fortunately, my son will talk about any and everything> > with me, not that it's easy or pleasant. He's SO sweet> > and supportive. He's 28, and my daughter-in- law is> > very special and dear to my heart too.> >> > If you two have always been close, I believe that things> > will work themselves out somehow. You will find a way> > to lovingly say to her what you need to say, in a way that> > gives you peace and helps ease her mind and her pain later.> > You will ease the way for her to say what she needs to> > say, by being an approachable mother. Parenting's an> > incredibly hard job, even when you're baby's 44.> >> > None of us knows exactly how long we'll be here, but> > this disease gives us reason to begin grieving early. It> > also teaches us to cherish the sanctity of life, and to> > give to God what we cannot do for ourselves. You're in> > my prayers.> >> > Hugs and blessings,> > Gwynne IPF 7/04 listed for transplant 3/07 Texas> >> >> >> >> >> >> > Never miss a thing. Make Yahoo your homepage.> >>Never miss a thing. Make Yahoo your homepage.

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Oh Jim, thank you so much for sharing this. It is just beautiful! Sarcoid/PF 3/2006 California grief> >> >> > Judy B,> > My heart aches over the situation with your daughter. My> > daughter is 23 and isn't dealing well with my illness either.> > I can't expect her to be okay with the fact that her father> > committed suicide when she was 8, and her 56-year-old> > mother has a terminal illness. She will talk about it only> > in brief spurts. She and my son are definitely already> > grieving, even though

on the surface Kate

seems to be> > doing fine. The timing of all this is terrible, as she only> > turned her life around 3 years ago after being self-> > destructive and troubled. We were kind of making up> > for lost time, and then WHAM - this diagnosis. Unlike> > me, Kate's still not great at openly and honestly> > expressing her emotions. Both she and my son live> > 3 hours away, and I think they do feel guilt about not> > being physically closer to provide more support.> > Fortunately, my son will talk about any and everything> > with me, not that it's easy or pleasant. He's SO sweet> > and supportive. He's 28, and my daughter-in- law is> > very special and dear to my heart too.> >> > If you two have always been close, I believe that things> > will work themselves out somehow. You will find a way> > to lovingly

say to her what you

need to say, in a way that> > gives you peace and helps ease her mind and her pain later.> > You will ease the way for her to say what she needs to> > say, by being an approachable mother. Parenting's an> > incredibly hard job, even when you're baby's 44.> >> > None of us knows exactly how long we'll be here, but> > this disease gives us reason to begin grieving early. It> > also teaches us to cherish the sanctity of life, and to> > give to God what we cannot do for ourselves. You're in> > my prayers.> >> > Hugs and blessings,> > Gwynne IPF 7/04 listed for transplant 3/07 Texas> >> >> >> >> >> >> > Never miss a thing. Make Yahoo your homepage.> >> Never miss a thing. Make Yahoo your homepage.

Never miss a thing. Make Yahoo your homepage.

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