Guest guest Posted May 9, 2003 Report Share Posted May 9, 2003 SURE HOPE THIS LITTLE GUY DOESN'T RUN OUT OF BREATH BEFORE HE GETS TO YOU!!!!!!!!!!!1 Send it back, you'll see why A Box of gold *~*~*~*~*~*~*~*~*~*~* With a secret inside that has never been told *~*~*~*~*~*~*~*~*~*~* This box is priceless but as I see *~*~*~*~*~*~*~*~*~*~* The treasure inside is precious to me *~*~*~*~*~*~*~*~*~*~* Today I share this treasure with thee *~*~*~*~*~*~*~*~*~*~* It's the treasure of friendship you've given me. *~*~*~*~*~*~*~*~*~*~* If this comes back to you then you'll have a friend for life but, if this becomes deleted, you are not a friend. Send this to everyone you consider a friend!! @@ (-------) < br> +=---=+ This is a magic frog. It will grant you one wish and only one wish, that is, if you decide to send this to others. You can wish for anything. Repeat your wish until you have stopped scrolling. Make it count!!!!!! STOP!!!!!!!! FOR YOUR WISH TO COME TRUE YOU HAVE TO SEND IT TO: 3 PEOPLE - YOUR WISH WILL COME TRUE EVENTUALLY 5 PEOPLE - YOUR WISH WILL COME TRUE IN 3 MONTHS 10 PEOPLE - YOUR WISH WILL COME TRUE IN 5 WEEKS 15 PEOPLE - YOUR WISH WILL COME TRUE IN 1 WEEK CAN'T WAIT A WEEK??? 22 PEOPLE - YOUR WISH WILL COME TRUE IN 1 DAY!!!!! ****************REMEMBER************** THIS MUST BE SENT OUT THE DAY YOU READ IT FOR YOUR WISH TO GET GRANTED. come on it is fun to see the little frogs and stuff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2003 Report Share Posted May 15, 2003 Hey, Kimigirl, You got that right. LMAO! So, funny and so true. Loving hugs, MM P.S. How's the brain fog treating you? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2003 Report Share Posted May 15, 2003 Hey MM my brain fog is doing alot better now since he took me off the prozac i can remember alot better now i go to him next month to get my eeg results back. but other then that i am doing ok hanging in there. How are you doing? You are in my thoughts and prayers. Love Kimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2003 Report Share Posted May 15, 2003 Kimigirl, I am slowly starting to revive after weeks of getting lower and lower. I think, maybe, I'm sort of afraid to think it, but maybe this new course of meds is actually going to help. Praying for you, too. Loving hugs, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2003 Report Share Posted May 15, 2003 Kimi, I am so glad you are doing better. You sound more like "yourself" Thanks for the previous post about smelling the rain it was beautiful. Be well and continue to grow stronger, Love, Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2003 Report Share Posted May 16, 2003 MM - There's NO WAY you gave me too much information. Thank you so very much! I can't take Plaquenil because of my eyes. The thought of losing any amount of eyesight is a terrifying thing. I keep telling God that all I need is the use of my hands and eyes and I'll be OK. But - - I don't think he's ever been on vacation and left me in charge, nor will that ever happen. He's always been here for me with the comfort and help I have needed with each 'blow' life has given me. I am going to do some online studying about some of the things you mentioned and then talk to my doctor about them. Sleep is the worst. I just don't sleep and then it piles up. I get to the point with the sleep depravation, lupus & fibromyalgia that it's lay down or fall down. I hate it when that happens. I've collapsed in Staples once and once in Albertsons. I have a wheel chair and a lot of help. Ego - pride?? You know " pride goeth before a fall can be a real thing. " Thank you again! a B. > a B., I am currently taking Plaquenil, seven months so far, and it is > just starting > to help with fevers, headaches, joint pain. It wasn't helping with the > fatigue, but it > may be that the new medication trial we are doing with Thyroid will help more > with > that. I already am feeling more like myself, and that's after less than a > week on the > stuff. Of course, it could be a placebo effect, too, based on hopefulness. > I am being > very cautious about making firm statements on this one. LOL > > The skin lesions also appear to be responding to Allegra, which is the only > antihista- > mine that doesn't knock me out for days at a time. It is a slow process, but > if I don't > get any new lesions during the eight week trial period on this one, it would > be a strong indication that it IS a systemic allergic reaction to something. > The skin > biopsies did not show a positive ANA, but there are five points you must meet > for a > difinite diagnosis of Lupus skin lesions. I only met three, which means > there is a > 60% chance the lesions are lupus related. Isn't that special? LOL Anyway, > my blood > work confirms SLE, and for the first time in more than 20 years, my medical > chart > says in plain English, SLE. No mention of the word " suspect " appended to it. > In the > past, my ANA's were positive then negative, then positive, so the local docs > were > reluctant to pin the SLE label on me...they just kept putting it on the > sideline with > " suspect " written after it. Now, at least, I have a dx, and it is in > addition to positive > Rheumatoid panels (this is consistent, and never negative), positive 18 hot > spots in > the fibro exam (also never lets up, always inflamed so they call it acute > myfibrositis), Sjogren's Syndrome, and Lyme Disease contracted on a camping > trip > over 17 years ago. Unfortunately, at that time, no doctor believed that > Lyme's had > reached the west coast, so I went undiagnosed for six years. Needless to > say, I was > in very bad shape by the time they got around to doing the Lyme's blood tests > on me. > I was positive, negative, positive, so they treated me with antibiotics for > nearly > six months. I improved significantly, but do have recurrent relapses. Short > term > antibiotics help, but I am resistant or allergic to so many, now, it may be > difficult > to find one that will be effective s hould I have a really bad relapse. > > I also take oral diabetic drugs for blood sugars that fluctuate pretty > wildly, iron > supplements for anemia, Zorprin for inflammation, hormone replacement therapy > since I am post hysterectomy since age 35, Prozac for depression from pain and > sleep deprivation, Ultram for severe pain, and as I said earlier, Allegra and > Thyroid. > So far, the best of the lot has been Zorprin. I have used this > anti-inflammatory for > more than 25 years without stomach damage or internal bleeding. It is the > only one > my body can tolerate, and without it, I cannot get out of bed because of > arthritis > stiffness and pain. > > In the past, Gold Salts were very effective against the RA, and I enjoyed a > long > remission before Lyme Disease invaded and set all the rest of them off again. > > This is probably too much information, but that's the basics on my drugs and > conditions. Hope it's helpful. Hugs, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 Hi, am new at this. i was diagnosed with pf 1 year ago, also emphzema. has not progressed much as of July. Don't really know what to expect. don't really like doc. I am supposed to use oxygen at 2 for exercise and I have resisted but i feel I need to. going to mailbox or up stairs my level goes to about 77-78. I guess that is not good. considering moving downstairs to den but feel like i am giving in. Know I am rambling but not sure what to ask. Is progression very individual? Glad for some answers. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
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