Guest guest Posted March 1, 2000 Report Share Posted March 1, 2000 Dear Jodi, I hope all is well over there. I'm gald to hear that Max is properly medicated. I had responded earlier about the in-law thing but the message didn't post. I guess I'll have to call microsoft & find out how to fix the problem so I don't have to adjust the e-mail each time. Anyway, I know how it is with the family. My mother in law can't cope and my mom is just now starting to warm up to Josh. I think she was afraid we were going to lose him or something. Josh has his problems but has never been that sick to fear for his life, maybe his quality of life, but even now as I continue to educate myself I feel pretty certain that in the end Josh will be OK. It sometimes feels that the people who you REALLY need support from are always expecting you to suport them, as if your childs problem is really their own. When Josh was first born he was misdaignosed with congenital adrenal hyperplasia based on inaccurate blodwork. The doctors suspected this because he had high b/p among other things & my mom was always saying " your brother had this- I wonder if that's what he had " Or " your sister had this -did you tell the doctors that? " It was endless. I finally had to distance myself which wasn't easy since she was watching , my older boy. I am surrounded by dama queens and martyrs. I am certain that we all will be wonderful grandparents because we know how it feels to be ignored and or crowded. I have just been informed that 2 of my sister-in-laws are planning on being at the hospital during Josh's heart surgery. It's a nice thought but I just hope they keep quiet and don't say anything stupid (Like always) The surgery is 5 hrs long and I really don't need to be annoyed. I wish I had a laptop to take with me ao all of you could be there! I also am with you on the adult list idea. I think for many of us ( I know for me) this is our main source of support, I would feel horrible if one of my boys read some of the emotional stuff we write. Many times we are just venting and in need of adult support. For example- I would never say what I just wrote in front of my boys I wouldn't want them to misinterpret my feelings for resentment or any other negativity. Thanks for - Mom of (13mons) & (3yrs) Quote Link to comment Share on other sites More sharing options...
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