Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Joyce, What's the new docs name? Sounds like he knows his stuff from his credentials. Let us know how it goes on Monday. LeanneJoyce wrote: Peggy, He called the University Hospital here and set me up with a new pulmonary physician that just came there from Duke. For evaluation, treatment and consult. His background is at Jewish and Duke. He specializes and has been published many times in prominant journals, etc. He is seeing me on Monday. I definatly do not want to change doctors, but Dr. O thinks I can see the new guy as a consult doc. Since his practice dropped my insurance, it is getting dicey. I told Dr. O that I would see this guy and jump through the hoops, but I did not want him to stop being my doc and that I wanted him there when final decisions had to be made. I want to be a real person to the doc making those decisons. Well, I gave in and ordered my hospital bed. They will bring it in a couple of weeks. They told me that they would put an air mattress overlay with a pump on it, so that it is comfortable. The doc has been bugging me for months to get it. Aaaargh! I don't like what it respresents. But, I would like to sleep occasionally. I slept 4 hours last night, been up since 4:30. Nothing much to do at this hour except watch infomercials....HATE THEM! Take care, my blonde friend. One more hug, please. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> > > > > > >> > > > > > > Well it was what i figured the appt was to be. I dont know> > I> > > > just> > > > > > > cant get my hopes up to much with these doctors. I suspect> > > > > whatever> > > > > > > I have will sit and drive me miserable for awhile before> > they> > > > are> > > > > > > able to see what it is and do something about. He was a > nice> > > > > > > doctor. Did an exam and said he wanted to check two things,> > > one> > > > a> > > > > > > blood test for emphasyma he said he does it on all his> > > patients> > > > > but> > > > > > > secondly he said your tests show you have the beginning of> > > > > emphasyma -> > > > > > > he said did they tell you that, I said no they didnt. So he> > > > said I> > > > > > > really quit smoking at the best time possible for me and to> > > not> > > > > > > start. he said this blood test will tell him if I have a> > > > genetic> > > > > it> > > > > > > gene for emphasyma if I do he said we want to know this now> > > and> > > > > not> > > > > > > in 20 years. He also ordered the exercise stress test. He> > > said> > > > > lets> > > > > > > see what you can do, lets see if its your heart or lungs or> > > if> > > > its> > > > > > > neither and rule some of this out for you so then you know.> > > > > > >> > > > > > > He said unfortunatly with people who have auto-immune> > issues> > > he> > > > > has> > > > > > > seen it take a few years up to five years before > anything of> > > > > > > signifigance shows up before they know what it is to treat.> > > > > > >> > > > > > > So I will go to that test, and see the GI doc at the end of> > > the> > > > > month> > > > > > > and then I will just see my regular GP until something > major> > > > > > > happens. And just document things there really isnt> > anything> > > I> > > > can> > > > > > > do about it. My GP called last night my other tests were> > > fine,> > > > > and I> > > > > > > told her about the lung appt she said yep this thing is> > going> > > > to> > > > > be> > > > > > > just like the RA and hide until its beyond miserable and> > then> > > > we> > > > > will> > > > > > > find it.> > > > > > >> > > > > > > So still no diagnosis and I still have to suffer. He did> > tell> > > > me> > > > > to> > > > > > > do some 40-80 minutes of cardio workout a day he said 9 out> > > of> > > > 10> > > > > > > people are out of shape. I just looked at him. I think I> > know> > > > if I> > > > > > > was out of shape I hardly think I am that out of shape. But> > > > > whatever> > > > > > > I will do my best.> > > > > > >> > > > > > > Thanks for listening!> > > > > > >> > > > > > > Sandie> > > > > > >> > > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > >> > >> > > ______________________________________________________________________> > > > __> > > > > Meet the new AOL.ca. Free radio, music, videos, news & > > > > entertainment â€" with a Canadian perspective.> > > > >> > > >> > >> >> Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Joyce... I'm sorry the time has come for a hospital bed. No matter what I say it can't change what you are feeling about it. I imagine myself in your place down the road and I know what I would feel. Good rest will compensate some. After awhile, let's hope you get used it. warm hugs friend. Mama-Sher, ild 3-06, OR.Don't fret about tomorrow, God is already there! Re: doctors Peggy, He called the University Hospital here and set me up with a new pulmonary physician that just came there from Duke. For evaluation, treatment and consult. His background is at Jewish and Duke. He specializes and has been published many times in prominant journals, etc. He is seeing me on Monday. I definatly do not want to change doctors, but Dr. O thinks I can see the new guy as a consult doc. Since his practice dropped my insurance, it is getting dicey. I told Dr. O that I would see this guy and jump through the hoops, but I did not want him to stop being my doc and that I wanted him there when final decisions had to be made. I want to be a real person to the doc making those decisons. Well, I gave in and ordered my hospital bed. They will bring it in a couple of weeks. They told me that they would put an air mattress overlay with a pump on it, so that it is comfortable. The doc has been bugging me for months to get it. Aaaargh! I don't like what it respresents. But, I would like to sleep occasionally. I slept 4 hours last night, been up since 4:30. Nothing much to do at this hour except watch infomercials....HATE THEM! Take care, my blonde friend. One more hug, please. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> > > > > > >> > > > > > > Well it was what i figured the appt was to be. I dont know> > I> > > > just> > > > > > > cant get my hopes up to much with these doctors. I suspect> > > > > whatever> > > > > > > I have will sit and drive me miserable for awhile before> > they> > > > are> > > > > > > able to see what it is and do something about. He was a > nice> > > > > > > doctor. Did an exam and said he wanted to check two things,> > > one> > > > a> > > > > > > blood test for emphasyma he said he does it on all his> > > patients> > > > > but> > > > > > > secondly he said your tests show you have the beginning of> > > > > emphasyma -> > > > > > > he said did they tell you that, I said no they didnt. So he> > > > said I> > > > > > > really quit smoking at the best time possible for me and to> > > not> > > > > > > start. he said this blood test will tell him if I have a> > > > genetic> > > > > it> > > > > > > gene for emphasyma if I do he said we want to know this now> > > and> > > > > not> > > > > > > in 20 years. He also ordered the exercise stress test. He> > > said> > > > > lets> > > > > > > see what you can do, lets see if its your heart or lungs or> > > if> > > > its> > > > > > > neither and rule some of this out for you so then you know.> > > > > > >> > > > > > > He said unfortunatly with people who have auto-immune> > issues> > > he> > > > > has> > > > > > > seen it take a few years up to five years before > anything of> > > > > > > signifigance shows up before they know what it is to treat.> > > > > > >> > > > > > > So I will go to that test, and see the GI doc at the end of> > > the> > > > > month> > > > > > > and then I will just see my regular GP until something > major> > > > > > > happens. And just document things there really isnt> > anything> > > I> > > > can> > > > > > > do about it. My GP called last night my other tests were> > > fine,> > > > > and I> > > > > > > told her about the lung appt she said yep this thing is> > going> > > > to> > > > > be> > > > > > > just like the RA and hide until its beyond miserable and> > then> > > > we> > > > > will> > > > > > > find it.> > > > > > >> > > > > > > So still no diagnosis and I still have to suffer. He did> > tell> > > > me> > > > > to> > > > > > > do some 40-80 minutes of cardio workout a day he said 9 out> > > of> > > > 10> > > > > > > people are out of shape. I just looked at him. I think I> > know> > > > if I> > > > > > > was out of shape I hardly think I am that out of shape. But> > > > > whatever> > > > > > > I will do my best.> > > > > > >> > > > > > > Thanks for listening!> > > > > > >> > > > > > > Sandie> > > > > > >> > > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > >> > >> > > ______________________________________________________________________> > > > __> > > > > Meet the new AOL.ca. Free radio, music, videos, news & > > > > entertainment â€" with a Canadian perspective.> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Hi Joyce, I'm sending you some ((((((((((((HUGS)))))))))). Since I can't be there to give them myself. Aren't those Infomercials just annoying (lol) Irene ---- Original Message ---- To: Breathe-Support Sent: Fri, 4 Jan 2008 9:39 pm Subject: Re: doctors Leanne, His name is Rodney Folz. info: http://www.uoflhealthcare.org/physician.aspx?id=1917 Hugs, Joyce > > > > > > > > > > > > > > > > Well it was what i figured the appt was to be. I dont know > > > I > > > > > just > > > > > > > > cant get my hopes up to much with these doctors. I suspect > > > > > > whatever > > > > > > > > I have will sit and drive me miserable for awhile before > > > they > > > > > are > > > > > > > > able to see what it is and do something about. He was a > > nice > > > > > > > > doctor. Did an exam and said he wanted to check two things, > > > > one > > > > > a > > > > > > > > blood test for emphasyma he said he does it on all his > > > > patients > > > > > > but > > > > > > > > secondly he said your tests show you have the beginning of > > > > > > emphasyma - > > > > > > > > he said did they tell you that, I said no they didnt. So he > > > > > said I > > > > > > > > really quit smoking at the best time possible for me and to > > > > not > > > > > > > > start. he said this blood test will tell him if I have a > > > > > genetic > > > > > > it > > > > > > > > gene for emphasyma if I do he said we want to know this now > > > > and > > > > > > not > > > > > > > > in 20 years. He also ordered the exercise stress test. He > > > > said > > > > > > lets > > > > > > > > see what you can do, lets see if its your heart or lungs or > > > > if > > > > > its > > > > > > > > neither and rule some of this out for you so then you know. > > > > > > > > > > > > > > > > He said unfortunatly with people who have auto-immune > > > issues > > > > he > > > > > > has > > > > > > > > seen it take a few years up to five years before > > anything of > > > > > > > > signifigance shows up before they know what it is to treat. > > > > > > > > > > > > > > > > So I will go to that test, and see the GI doc at the end of > > > > the > > > > > > month > > > > > > > > and then I will just see my regular GP until something > > major > > > > > > > > happens. And just document things there really isnt > > > anything > > > > I > > > > > can > > > > > > > > do about it. My GP called last night my other tests were > > > > fine, > > > > > > and I > > > > > > > > told her about the lung appt she said yep this thing is > > > going > > > > > to > > > > > > be > > > > > > > > just like the RA and hide until its beyond miserable and > > > then > > > > > we > > > > > > will > > > > > > > > find it. > > > > > > > > > > > > > > > > So still no diagnosis and I still have to suffer. He did > > > tell > > > > > me > > > > > > to > > > > > > > > do some 40-80 minutes of cardio workout a day he said 9 out > > > > of > > > > > 10 > > > > > > > > people are out of shape. I just looked at him. I think I > > > know > > > > > if I > > > > > > > > was out of shape I hardly think I am that out of shape. But > > > > > > whatever > > > > > > > > I will do my best. > > > > > > > > > > > > > > > > Thanks for listening! > > > > > > > > > > > > > > > > Sandie > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ______________________________________________________________________ > > > > > __ > > > > > > Meet the new AOL.ca. Free radio, music, videos, news & > > > > > entertainment â€" with a Canadian perspective. > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! Search. > Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 YOU KNOW I HAD TO CHECK HIM OUT TOO. caps -sorry. Yep I think he pretty much knows what he's doing.You do know you are loved and prayed for daily. Love and Prayers, Peggy ipf 6/04 Florida"Worry looks around, Sorry looks back, Faith looks up." Leanne,His name is Rodney Folz. info: http://www.uoflhealthcare.org/physician.aspx?id=1917Hugs, Joyce > > > > > > > >> > > > > > > > Well it was what i figured the appt was to be. I dont know> > > I> > > > > just> > > > > > > > cant get my hopes up to much with these doctors. I suspect> > > > > > whatever> > > > > > > > I have will sit and drive me miserable for awhile before> > > they> > > > > are> > > > > > > > able to see what it is and do something about. He was a > > nice> > > > > > > > doctor. Did an exam and said he wanted to check two things,> > > > one> > > > > a> > > > > > > > blood test for emphasyma he said he does it on all his> > > > patients> > > > > > but> > > > > > > > secondly he said your tests show you have the beginning of> > > > > > emphasyma -> > > > > > > > he said did they tell you that, I said no they didnt. So he> > > > > said I> > > > > > > > really quit smoking at the best time possible for me and to> > > > not> > > > > > > > start. he said this blood test will tell him if I have a> > > > > genetic> > > > > > it> > > > > > > > gene for emphasyma if I do he said we want to know this now> > > > and> > > > > > not> > > > > > > > in 20 years. He also ordered the exercise stress test. He> > > > said> > > > > > lets> > > > > > > > see what you can do, lets see if its your heart or lungs or> > > > if> > > > > its> > > > > > > > neither and rule some of this out for you so then you know.> > > > > > > >> > > > > > > > He said unfortunatly with people who have auto-immune> > > issues> > > > he> > > > > > has> > > > > > > > seen it take a few years up to five years before > > anything of> > > > > > > > signifigance shows up before they know what it is to treat.> > > > > > > >> > > > > > > > So I will go to that test, and see the GI doc at the end of> > > > the> > > > > > month> > > > > > > > and then I will just see my regular GP until something > > major> > > > > > > > happens. And just document things there really isnt> > > anything> > > > I> > > > > can> > > > > > > > do about it. My GP called last night my other tests were> > > > fine,> > > > > > and I> > > > > > > > told her about the lung appt she said yep this thing is> > > going> > > > > to> > > > > > be> > > > > > > > just like the RA and hide until its beyond miserable and> > > then> > > > > we> > > > > > will> > > > > > > > find it.> > > > > > > >> > > > > > > > So still no diagnosis and I still have to suffer. He did> > > tell> > > > > me> > > > > > to> > > > > > > > do some 40-80 minutes of cardio workout a day he said 9 out> > > > of> > > > > 10> > > > > > > > people are out of shape. I just looked at him. I think I> > > know> > > > > if I> > > > > > > > was out of shape I hardly think I am that out of shape. But> > > > > > whatever> > > > > > > > I will do my best.> > > > > > > >> > > > > > > > Thanks for listening!> > > > > > > >> > > > > > > > Sandie> > > > > > > >> > > > > > >> > > > > >> > > > > >> > > > > >> > > > > >> > > > > >> > > > > >> > > > >> > > >> > > > > ______________________________________________________________________> > > > > __> > > > > > Meet the new AOL.ca. Free radio, music, videos, news & > > > > > entertainment â€" with a Canadian perspective.> > > > > >> > > > >> > > >> > >> >> > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Yahoo! Search.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Joyce...this subject of dying, sooner or later, is so hard. We "know" you and I'm so sorry your progression brings what it brings now. Damnit! I can't even tell you to hang in there. I know you are doing all you can and even more. I do pray for you and your comfort and your tolerance. Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there! Re: doctors Bruce, I filed for a continuity of service due to terminal illness, and appealed. Got me nowhere. He saw me last week and spent an hour with me. He said he would handle the bill. ???? Whatever that means. I will just see him out of network and what it costs, it costs. I told my husband that I was not going to be around to spend my part of our retirement savings, so spend it on the doctor that I want. I asked Dr. O'Brien if he would be there for me when I died and he said he would. He will stick with me, regardless of insurance. But, it does present a problem for admitting to hospital. But, there is a way around. Just gotta play the game. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.> > > > > > > > >> > > > > > > > > Well it was what i figured the appt was to be. I dont > know> > > > I> > > > > > just> > > > > > > > > cant get my hopes up to much with these doctors. I > suspect> > > > > > > whatever> > > > > > > > > I have will sit and drive me miserable for awhile > before> > > > they> > > > > > are> > > > > > > > > able to see what it is and do something about. He was > a> > > nice> > > > > > > > > doctor. Did an exam and said he wanted to check two> > things,> > > > > one> > > > > > a> > > > > > > > > blood test for emphasyma he said he does it on all his> > > > > patients> > > > > > > but> > > > > > > > > secondly he said your tests show you have the > beginning of> > > > > > > emphasyma -> > > > > > > > > he said did they tell you that, I said no they didnt. > So> > he> > > > > > said I> > > > > > > > > really quit smoking at the best time possible for me > and> > to> > > > > not> > > > > > > > > start. he said this blood test will tell him if I > have a> > > > > > genetic> > > > > > > it> > > > > > > > > gene for emphasyma if I do he said we want to know > this> > now> > > > > and> > > > > > > not> > > > > > > > > in 20 years. He also ordered the exercise stress > test. He> > > > > said> > > > > > > lets> > > > > > > > > see what you can do, lets see if its your heart or > lungs> > or> > > > > if> > > > > > its> > > > > > > > > neither and rule some of this out for you so then you> > know.> > > > > > > > >> > > > > > > > > He said unfortunatly with people who have auto-immune> > > > issues> > > > > he> > > > > > > has> > > > > > > > > seen it take a few years up to five years before> > > anything of> > > > > > > > > signifigance shows up before they know what it is to> > treat.> > > > > > > > >> > > > > > > > > So I will go to that test, and see the GI doc at the > end> > of> > > > > the> > > > > > > month> > > > > > > > > and then I will just see my regular GP until something> > > major> > > > > > > > > happens. And just document things there really isnt> > > > anything> > > > > I> > > > > > can> > > > > > > > > do about it. My GP called last night my other tests > were> > > > > fine,> > > > > > > and I> > > > > > > > > told her about the lung appt she said yep this thing > is> > > > going> > > > > > to> > > > > > > be> > > > > > > > > just like the RA and hide until its beyond miserable > and> > > > then> > > > > > we> > > > > > > will> > > > > > > > > find it.> > > > > > > > >> > > > > > > > > So still no diagnosis and I still have to suffer. He > did> > > > tell> > > > > > me> > > > > > > to> > > > > > > > > do some 40-80 minutes of cardio workout a day he said > 9> > out> > > > > of> > > > > > 10> > > > > > > > > people are out of shape. I just looked at him. I > think I> > > > know> > > > > > if I> > > > > > > > > was out of shape I hardly think I am that out of > shape.> > But> > > > > > > whatever> > > > > > > > > I will do my best.> > > > > > > > >> > > > > > > > > Thanks for listening!> > > > > > > > >> > > > > > > > > Sandie> > > > > > > > >> > > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > > > ______________________________________________________________________> > > > > > __> > > > > > > Meet the new AOL.ca. Free radio, music, videos, news & > > > > > > entertainment â€" with a Canadian perspective.> > > > > > >> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.