Re: Very low haemoglobin percentage

[Guest guest]

Lesa,

Thank you for sharing your story. Interesting that we both found

holistic MDs to help. I'm really impressed with ours.

And interesting that Prilosec seems to have played a role in both our cases.

Glad that you had such good results. I hope we can report a similar

increase - can't wait for my guy to have enough energy again to run

around like a normal teenager.

And four weeks (really 3 elapsed) is so much better than trying to get

the oral way to work over a very prolonged time, and even then with

minimal results due to absorption issues (at least in our cases).

Thanks again. Hope you maintain a good level.

Sally

sennott01@... wrote:

> Sally,

>

> I too suffered from a very low Ferritin level (13), after being on 10

> years of Prilosec resulting in low stomach acid and malabsorption of

> nutrients. While many doctors had checked me for years for anemia,

> it was only the sleep doctor who checked my ferritin, because low

> ferritin can result in restless legs. After a year of iron

> supplements, my ferritin never rose above 23 and so my holistic MD

> administered four iron infusions and my level is now 90. (Optimal

> level 100-150).

>

> Anyone is who suffering from relentless fatigue, especially after

> exercise or exertion, should be checked for low ferritin.

>

> Lesa

> IBS, 2 years

> SCD since 9/07

>

>

> In a message dated 3/10/2008 2:50:47 P.M. Eastern Daylight Time,

> beatty@... writes:

>

> Gitte,

>

> I don't know about whether this is exactly the same measure, but

> my son's ferratin level is a 3 (should be 10-105, and the doctor

> considers even that range low) and what he called hemoglobin is

> 8.5 (not sure of normal range, but this was low, so must be

> different scale than you refer to).

> He has the same type of fatigue you are describing.

>

> We finally started him on iron IV therapy last Thursday.

> Our pediatrician had suggested it in January, but wanted us to get

> it through the pediatric GI we were seeing. She (ped GI) then made

> it seem like such a risky thing - had to have it done in the

> hospital, could go into anaphylaxis shock, etc. - that it scared

> us into postponing it.

>

> Along the way, we found a holistic MD who is extremely

> knowledgeable about nutrition and explained that at least part of

> the cause in Mark's case is the fact that he was on Prilosec

> (prescribed by the same idiot pedicatric GI) for so long, that he

> had NO digestive acids being made. Without digestive acids, you

> cannot absorb iron (or many other nutrients). The doctor has this

> book in his waitng

>

room.http://www.amazon.com/Why-Stomach-Acid-Good-You/dp/0871319314/ref=sr_1_1?ie\

=UTF8 & s=books & qid=1205174840 & sr=1-1

> He feels Prilosec is more dangerous than prednisone. [OT:

> Apparently there are ways to administer prednisone to reduce the

> side effects. Unfortunately the ped GI didn't have a clue and my

> son suffered from horrid acne that is finally calming down after

> having tapered off at end of Jan.]

>

> This holistic doctor has a nurse come in his office twice a week

> to give various types of IV therapy, including iron. I was very

> concerned about having it done in the office after the scare the

> ped GI gave us. But he explained that he uses a safer version of

> iron and there was no risk.

>

> Of course when we went for the appt, I envisioned ambulances

> rushing to the office after the IV started and held my breath at

> first. But it went very smoothly with no complications.

>

> They explained it usually takes at least 4 IVs (one/week) to feel

> a difference. So we'll be going for #2 on Thursday.

>

> If you look into this, you may find these links helpful.

> http://www.fpnotebook.com/HEM169.htm

> http://www.thedrugmonitor.com/iron.html

>

> My son got the Sodium ferric gluconate version.

>

> Good luck to you.

>

> Sally

>

> gittealbertsen wrote:

>

>> Hi. I was at my doc today and found out I have a very low

>> haemoglobin

>> percentage. It's 5.9, whereas the normal is between 7 and 10 (I

>> don't

>> know if this is an intl. way of measuring it or this is only in

>> Denmark

>> and makes absolutely no sence to anybody else?). It's so low I can

>> hardly stand and I have to do something drastic about it right

>> away. I

>> would be very grateful to have some advice from some with that

>> experience too. I've read that iron supplements in general are

>> not SCD

>> legal? Could I use cod liver, for instance? Or...?

>> Thanks in advance!

>> Gitte

>> Denmark

>> CD 30y

>> SCD 1y

>>

>

>

>

>

>

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