Re: Serious Thoughts on Group Purpose

[Guest guest]

, Delete you? No way! I think your posts are a nice shot of Valium each day-keeps me giggling and looking at life through glasses that are definitely rosy. OHHH and I like the word ameliorate. Take care- Sarcoid/PF 3/2006 California Serious Thoughts on Group Purpose

Bruce, Gwynne & Mama-Sher have set me thinking on the purpose of this group ...for ME....this group provides a safe place to allow my disease of IPF to be considered, discussed, supported, ameliorated as often as I like...there are NO limits on time, interest & capacity to respond to questions, anxieties & fear.

I CAN'T wear it out....people in my day-to-day life have all sorts of things they're dealing with too & I CAN wear THEM out if I truly let fly with all my feelings, questions, responses to finding myself with this disease..... .

On this Board if I don't feel I can help or I'm not taken up with a particular dilema Or I just plain don't want to participate in a current discussion or thread then I can use the DELETE button with no offence to anyone!

People in our lives can't do that...they live with our disease just as we do....this Board can take the pressure off them too!

There IS no DELETE button in real life!

As a member of this Board I've tended to use Humour as a way of 'leavening' a dire situation that many find themselves in. That's MY way of coping but I recognise that it's not for everyone. I apologise if I've distressed anyone who finds my humour distracting & unwarranted.

Cyber Parties were my way of attempting to make people more accessible to each other...we'll get to know each other in a different way & feel closer as a result. Once again there are some for whom this is not helpful ......I'll leave it to our wise List Moderator to judge whether these parties should occasionally happen ...the pre-Christmas Cooking Party was just an 'Off-the Cuff' idea while the New Year's Eve Party was actually suggested by other Board members & I responded in great glee!

I really appreciate this Board & hope that my contribution balances out what I gain from all of you......

Remember just use DELETE if I'm too much for some of you!

in Oz

IPF: Fibrotic NSIP/UIP???

Reynauds'

May 2007

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

You think 's on Valium? oh her posts are a shot of

valium......sorry

>

> ,

> Delete you? No way! I think your posts are a nice shot of

Valium each day-keeps me giggling and looking at life through glasses

that are definitely rosy. OHHH and I like the word ameliorate. Take

care-

>

> Sarcoid/PF 3/2006 California

>

>

> Serious Thoughts on Group Purpose

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> Bruce, Gwynne & Mama-Sher have set me thinking on the purpose of

this group ...for ME....this group provides a safe place to allow my

disease of IPF to be considered, discussed, supported, ameliorated as

often as I like...there are NO limits on time, interest & capacity to

respond to questions, anxieties & fear.

>

> I CAN'T wear it out....people in my day-to-day life have all sorts

of things they're dealing with too & I CAN wear THEM out if I truly

let fly with all my feelings, questions, responses to finding myself

with this disease..... .

>

> On this Board if I don't feel I can help or I'm not taken up with a

particular dilema Or I just plain don't want to participate in a

current discussion or thread then I can use the DELETE button with no

offence to anyone!

>

> People in our lives can't do that...they live with our disease just

as we do....this Board can take the pressure off them too!

>

> There IS no DELETE button in real life!

>

> As a member of this Board I've tended to use Humour as a way

of 'leavening' a dire situation that many find themselves in. That's

MY way of coping but I recognise that it's not for everyone. I

apologise if I've distressed anyone who finds my humour distracting &

unwarranted.

>

> Cyber Parties were my way of attempting to make people more

accessible to each other...we'll get to know each other in a

different way & feel closer as a result. Once again there are some

for whom this is not helpful ......I'll leave it to our wise List

Moderator to judge whether these parties should occasionally

happen ...the pre-Christmas Cooking Party was just an 'Off-the Cuff'

idea while the New Year's Eve Party was actually suggested by other

Board members & I responded in great glee!

>

> I really appreciate this Board & hope that my contribution balances

out what I gain from all of you......

>

> Remember just use DELETE if I'm too much for some of you!

>

> in Oz

>

> IPF: Fibrotic NSIP/UIP???

>

> Reynauds'

>

> May 2007

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> <!--

>

> #ygrp-mkp{

> border:1px solid #d8d8d8;font-family:Arial;margin:14px

0px;padding:0px 14px;}

> #ygrp-mkp hr{

> border:1px solid #d8d8d8;}

> #ygrp-mkp #hd{

> color:#628c2a;font-size:85%;font-weight:bold;line-

height:122%;margin:10px 0px;}

> #ygrp-mkp #ads{

> margin-bottom:10px;}

> #ygrp-mkp .ad{

> padding:0 0;}

> #ygrp-mkp .ad a{

> color:#0000ff;text-decoration:none;}

> -->

>

>

>

> <!--

>

> #ygrp-sponsor #ygrp-lc{

> font-family:Arial;}

> #ygrp-sponsor #ygrp-lc #hd{

> margin:10px 0px;font-weight:bold;font-size:78%;line-height:122%;}

> #ygrp-sponsor #ygrp-lc .ad{

> margin-bottom:10px;padding:0 0;}

> -->

>

>

>

> <!--

>

> #ygrp-mlmsg {font-size:13px;font-family:arial, helvetica, clean,

sans-serif;}

> #ygrp-mlmsg table {font-size:inherit;font:100%;}

> #ygrp-mlmsg select, input, textarea {font:99% arial, helvetica,

clean, sans-serif;}

> #ygrp-mlmsg pre, code {font:115% monospace;}

> #ygrp-mlmsg * {line-height:1.22em;}

> #ygrp-text{

> font-family:Georgia;

> }

> #ygrp-text p{

> margin:0 0 1em 0;}

> #ygrp-tpmsgs{

> font-family:Arial;

> clear:both;}

> #ygrp-vitnav{

> padding-top:10px;font-family:Verdana;font-size:77%;margin:0;}

> #ygrp-vitnav a{

> padding:0 1px;}

> #ygrp-actbar{

> clear:both;margin:25px 0;white-space:nowrap;color:#666;text-

align:right;}

> #ygrp-actbar .left{

> float:left;white-space:nowrap;}

> .bld{font-weight:bold;}

> #ygrp-grft{

> font-family:Verdana;font-size:77%;padding:15px 0;}

> #ygrp-ft{

> font-family:verdana;font-size:77%;border-top:1px solid #666;

> padding:5px 0;

> }

> #ygrp-mlmsg #logo{

> padding-bottom:10px;}

>

> #ygrp-vital{

> background-color:#e0ecee;margin-bottom:20px;padding:2px 0 8px 8px;}

> #ygrp-vital #vithd{

> font-size:77%;font-family:Verdana;font-weight:bold;color:#333;text-

transform:uppercase;}

> #ygrp-vital ul{

> padding:0;margin:2px 0;}

> #ygrp-vital ul li{

> list-style-type:none;clear:both;border:1px solid #e0ecee;

> }

> #ygrp-vital ul li .ct{

> font-weight:bold;color:#ff7900;float:right;width:2em;text-

align:right;padding-right:.5em;}

> #ygrp-vital ul li .cat{

> font-weight:bold;}

> #ygrp-vital a{

> text-decoration:none;}

>

> #ygrp-vital a:hover{

> text-decoration:underline;}

>

> #ygrp-sponsor #hd{

> color:#999;font-size:77%;}

> #ygrp-sponsor #ov{

> padding:6px 13px;background-color:#e0ecee;margin-bottom:20px;}

> #ygrp-sponsor #ov ul{

> padding:0 0 0 8px;margin:0;}

> #ygrp-sponsor #ov li{

> list-style-type:square;padding:6px 0;font-size:77%;}

> #ygrp-sponsor #ov li a{

> text-decoration:none;font-size:130%;}

> #ygrp-sponsor #nc{

> background-color:#eee;margin-bottom:20px;padding:0 8px;}

> #ygrp-sponsor .ad{

> padding:8px 0;}

> #ygrp-sponsor .ad #hd1{

> font-family:Arial;font-weight:bold;color:#628c2a;font-

size:100%;line-height:122%;}

> #ygrp-sponsor .ad a{

> text-decoration:none;}

> #ygrp-sponsor .ad a:hover{

> text-decoration:underline;}

> #ygrp-sponsor .ad p{

> margin:0;}

> o{font-size:0;}

> .MsoNormal{

> margin:0 0 0 0;}

> #ygrp-text tt{

> font-size:120%;}

> blockquote{margin:0 0 0 4px;}

> .replbq{margin:4;}

> -->

>

>

>

>

>

>

>

>

>

______________________________________________________________________

______________

> Never miss a thing. Make Yahoo your home page.

> http://www.yahoo.com/r/hs

>

[Guest guest]

I couldnt imagine this board without , she brings such sunshine

to some of my dreary days! So no deleting here!

Sandie

suffering succotash, 2007 WI

>

>

> Bruce, Gwynne & Mama-Sher have set me thinking on the purpose of

this

> group ...for ME....this group provides a safe place to allow my

disease

> of IPF to be considered, discussed, supported, ameliorated as often

as I

> like...there are NO limits on time, interest & capacity to respond

to

> questions, anxieties & fear.

>

> I CAN'T wear it out....people in my day-to-day life have all sorts

of

> things they're dealing with too & I CAN wear THEM out if I truly

let fly

> with all my feelings, questions, responses to finding myself with

this

> disease......

>

> On this Board if I don't feel I can help or I'm not taken up with a

> particular dilema Or I just plain don't want to participate in a

current

> discussion or thread then I can use the DELETE button with no

offence to

> anyone!

>

> People in our lives can't do that...they live with our disease just

as

> we do....this Board can take the pressure off them too!

>

> There IS no DELETE button in real life!

>

> As a member of this Board I've tended to use Humour as a way of

> 'leavening' a dire situation that many find themselves in. That's

MY way

> of coping but I recognise that it's not for everyone. I apologise if

> I've distressed anyone who finds my humour distracting &

unwarranted.

>

> Cyber Parties were my way of attempting to make people more

accessible

> to each other...we'll get to know each other in a different way &

feel

> closer as a result. Once again there are some for whom this is not

> helpful ......I'll leave it to our wise List Moderator to judge

whether

> these parties should occasionally happen ...the pre-Christmas

Cooking

> Party was just an 'Off-the Cuff' idea while the New Year's Eve

Party was

> actually suggested by other Board members & I responded in great

glee!

>

> I really appreciate this Board & hope that my contribution balances

out

> what I gain from all of you......

>

> Remember just use DELETE if I'm too much for some of you!

>

> in Oz

>

> IPF: Fibrotic NSIP/UIP???

>

> Reynauds'

>

> May 2007

>

[Guest guest]

,

You could never appreciate me as much as I appreciate you. Humor is absolutely the very best medicine. My humor is usually cynical and sarcastic....but humor, nonetheless. Your sense of imagination is awesome.

A safe place is the very idea that Leanne had when she started this group. That is why I get so frustrated at people who get miffed at each other. This is not the place. Just let it go. We are all sick and grumpy. We say things that come from our own anger and frustration and someone takes offense because they also are sick, etc.

My prayer for 2008 is that we can have that "Safe Place" here. Let's try to be longsuffering with each other and a tad more compassionate. The last thing I need is to come here and find bickering. It has only happened a few times, but it is upsetting and we always end up losing members. We need each other too much to allow that to happen.

Sermon #1 for the New Year.

Gotta do something to deserve my mod. title.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> > Bruce, Gwynne & Mama-Sher have set me thinking on the purpose of this> group ...for ME....this group provides a safe place to allow my disease> of IPF to be considered, discussed, supported, ameliorated as often as I> like...there are NO limits on time, interest & capacity to respond to> questions, anxieties & fear.> > I CAN'T wear it out....people in my day-to-day life have all sorts of> things they're dealing with too & I CAN wear THEM out if I truly let fly> with all my feelings, questions, responses to finding myself with this> disease......> > On this Board if I don't feel I can help or I'm not taken up with a> particular dilema Or I just plain don't want to participate in a current> discussion or thread then I can use the DELETE button with no offence to> anyone!> > People in our lives can't do that...they live with our disease just as> we do....this Board can take the pressure off them too!> > There IS no DELETE button in real life!> > As a member of this Board I've tended to use Humour as a way of> 'leavening' a dire situation that many find themselves in. That's MY way> of coping but I recognise that it's not for everyone. I apologise if> I've distressed anyone who finds my humour distracting & unwarranted.> > Cyber Parties were my way of attempting to make people more accessible> to each other...we'll get to know each other in a different way & feel> closer as a result. Once again there are some for whom this is not> helpful ......I'll leave it to our wise List Moderator to judge whether> these parties should occasionally happen ...the pre-Christmas Cooking> Party was just an 'Off-the Cuff' idea while the New Year's Eve Party was> actually suggested by other Board members & I responded in great glee!> > I really appreciate this Board & hope that my contribution balances out> what I gain from all of you......> > Remember just use DELETE if I'm too much for some of you!> > in Oz> > IPF: Fibrotic NSIP/UIP???> > Reynauds'> > May 2007>

[Guest guest]

About time you earned those huge bucks that come with the

title....lol....

I couldn't imagine it without you either, Joyce. We all need balance

in our lives and certainly here. I wouldn't change a thing about the

board. Now, I'd change everything if I could about our health. But

one of the greatest things here is our diversity. Its also the range

of emotions we allow ourselves to go through. As to bickering its

going to happen, especially with what many of us are going through.

We just need to not make it personal and when we really have

disagreements with someone talk to them offboard. A simple email will

work wonders.

I don't personally care how ugly a remark someone were to make to me,

I'm not about to give up something this important in my life because

my feelings were hurt or to make a stand on some principle of which

I'm not sure. I'll apologize for offending someone even when I didn't

intend to and am not sure what I did wrong. Yes, we all are fragile

over the disease but if we can deal with the disease certainly we can

deal with some remark we take the wrong way.

> >

> >

> > Bruce, Gwynne & Mama-Sher have set me thinking on the purpose of

this

> > group ...for ME....this group provides a safe place to allow my

> disease

> > of IPF to be considered, discussed, supported, ameliorated as

often as

> I

> > like...there are NO limits on time, interest & capacity to

respond to

> > questions, anxieties & fear.

> >

> > I CAN'T wear it out....people in my day-to-day life have all

sorts of

> > things they're dealing with too & I CAN wear THEM out if I truly

let

> fly

> > with all my feelings, questions, responses to finding myself with

this

> > disease......

> >

> > On this Board if I don't feel I can help or I'm not taken up with

a

> > particular dilema Or I just plain don't want to participate in a

> current

> > discussion or thread then I can use the DELETE button with no

offence

> to

> > anyone!

> >

> > People in our lives can't do that...they live with our disease

just as

> > we do....this Board can take the pressure off them too!

> >

> > There IS no DELETE button in real life!

> >

> > As a member of this Board I've tended to use Humour as a way of

> > 'leavening' a dire situation that many find themselves in. That's

MY

> way

> > of coping but I recognise that it's not for everyone. I apologise

if

> > I've distressed anyone who finds my humour distracting &

unwarranted.

> >

> > Cyber Parties were my way of attempting to make people more

accessible

> > to each other...we'll get to know each other in a different way &

feel

> > closer as a result. Once again there are some for whom this is not

> > helpful ......I'll leave it to our wise List Moderator to judge

> whether

> > these parties should occasionally happen ...the pre-Christmas

Cooking

> > Party was just an 'Off-the Cuff' idea while the New Year's Eve

Party

> was

> > actually suggested by other Board members & I responded in great

glee!

> >

> > I really appreciate this Board & hope that my contribution

balances

> out

> > what I gain from all of you......

> >

> > Remember just use DELETE if I'm too much for some of you!

> >

> > in Oz

> >

> > IPF: Fibrotic NSIP/UIP???

> >

> > Reynauds'

> >

> > May 2007

> >

>

[Guest guest]

... this sensitive post makes me feel really good to know you. I'm blessed to have at the ends of my finger tips so many great people. Sure we swing from profound to the ridiculous but we pull it together when we are needed.

Thanks for this post , you wrote such meaningful things and you surely have never offended me even for a moment!

Mama-Sher, ild 3-06, OR.Don't fret about tomorrow, God is already there!

Serious Thoughts on Group Purpose

Bruce, Gwynne & Mama-Sher have set me thinking on the purpose of this group ...for ME....this group provides a safe place to allow my disease of IPF to be considered, discussed, supported, ameliorated as often as I like...there are NO limits on time, interest & capacity to respond to questions, anxieties & fear.

I CAN'T wear it out....people in my day-to-day life have all sorts of things they're dealing with too & I CAN wear THEM out if I truly let fly with all my feelings, questions, responses to finding myself with this disease......

On this Board if I don't feel I can help or I'm not taken up with a particular dilema Or I just plain don't want to participate in a current discussion or thread then I can use the DELETE button with no offence to anyone!

People in our lives can't do that...they live with our disease just as we do....this Board can take the pressure off them too!

There IS no DELETE button in real life!

As a member of this Board I've tended to use Humour as a way of 'leavening' a dire situation that many find themselves in. That's MY way of coping but I recognise that it's not for everyone. I apologise if I've distressed anyone who finds my humour distracting & unwarranted.

Cyber Parties were my way of attempting to make people more accessible to each other...we'll get to know each other in a different way & feel closer as a result. Once again there are some for whom this is not helpful ......I'll leave it to our wise List Moderator to judge whether these parties should occasionally happen ...the pre-Christmas Cooking Party was just an 'Off-the Cuff' idea while the New Year's Eve Party was actually suggested by other Board members & I responded in great glee!

I really appreciate this Board & hope that my contribution balances out what I gain from all of you......

Remember just use DELETE if I'm too much for some of you!

in Oz

IPF: Fibrotic NSIP/UIP???

Reynauds'

May 2007

[Guest guest]

Bruce... well, some of us are waxing poetic posts. But. You fell down on the job -I like trying to keep Sher straight.--

when you allowed the "lap dances"...geeze, some friend. lol.

Mama-Sher, ild 3-06, OR.Don't fret about tomorrow, God is already there!

Re: Serious Thoughts on Group Purpose

I think the purpose of this group is whatever helps anyone who comes here and thats so broad but, in my mind, intentionally so. I think also we all will see things or hear things sometimes here that we don't like. One can skip posts, topics, whatever. I'm not offended in the least if one doesn't read my post. The more active the board gets the more selective many of us will have to be about posts. I'm going to be gone for a few days next week. I don't feel pressure to read everything that happens while gone when I return.I ask only that we all be tolerant. Don't try to change or inhibit anyone. We need it all. I was in pain during the New Years Eve Celebration but between some vicodin and the party didn't feel it. I feel pain when I read the struggles of some of our members and at times that gets heavy for me. That's why I find the balance so incredible. And so much sharing. How else would I know Rosebud and be able to feel good about 's move while at the same time learning more everyday about my disease and how to live the rest of my life.I'm too old to survive one of 's parties every weekend, although I do miss Kylie. But I think to periodically schedule a party, such as New Years Eve and we note all posts as party posts is a good balance. Maybe its twice a year, although I know July 4 isn't the favorite day of our Brits. Maybe its a summer bash and a New Years Eve Party and we use the protocol in our posts so anyone not interested can skip right over. But I appreciate every member here. I like to try to help Tina by sharing just a little of her pain. I like trying to keep Sher straight. And I do like the spice and life of and Zena. There is no where else I can go in a day where I get support for anything I'm going through, the chance to help others, educated about my disease, taught life lessons through example, and smiles and laughter. It's like a great group of friends all gathered in a room with people going in and out all day. I wouldn't wish anyone here ever change a thing. This is all real, life as it exists for us. Don't most of us every day feel some anger, some pain, some comfort, some joy? But this board sure is about living. We deal with the harshest realities and occasionally we escape to dream of the world we wish. I love you all.>> > Bruce, Gwynne & Mama-Sher have set me thinking on the purpose of this> group ...for ME....this group provides a safe place to allow my disease> of IPF to be considered, discussed, supported, ameliorated as often as I> like...there are NO limits on time, interest & capacity to respond to> questions, anxieties & fear.> > I CAN'T wear it out....people in my day-to-day life have all sorts of> things they're dealing with too & I CAN wear THEM out if I truly let fly> with all my feelings, questions, responses to finding myself with this> disease......> > On this Board if I don't feel I can help or I'm not taken up with a> particular dilema Or I just plain don't want to participate in a current> discussion or thread then I can use the DELETE button with no offence to> anyone!> > People in our lives can't do that...they live with our disease just as> we do....this Board can take the pressure off them too!> > There IS no DELETE button in real life!> > As a member of this Board I've tended to use Humour as a way of> 'leavening' a dire situation that many find themselves in. That's MY way> of coping but I recognise that it's not for everyone. I apologise if> I've distressed anyone who finds my humour distracting & unwarranted.> > Cyber Parties were my way of attempting to make people more accessible> to each other...we'll get to know each other in a different way & feel> closer as a result. Once again there are some for whom this is not> helpful ......I'll leave it to our wise List Moderator to judge whether> these parties should occasionally happen ...the pre-Christmas Cooking> Party was just an 'Off-the Cuff' idea while the New Year's Eve Party was> actually suggested by other Board members & I responded in great glee!> > I really appreciate this Board & hope that my contribution balances out> what I gain from all of you......> > Remember just use DELETE if I'm too much for some of you!> > in Oz> > IPF: Fibrotic NSIP/UIP???> > Reynauds'> > May 2007>

[Guest guest]

Brucey baby, I do hope you know when I say something about your information it is because it's so unbelievable  for anyone to post such thorough good information with such caring. WE do appreciate you and I apologize if I have offended you. It would NEVER be my intention.  Love and Prayers, Peggy  ipf 6/04 Florida"Worry looks around, Sorry looks back, Faith looks up." About time you earned those huge bucks that come with the title....lol....I couldn't imagine it without you either, Joyce. We all need balance in our lives and certainly here. I wouldn't change a thing about the board. Now, I'd change everything if I could about our health. But one of the greatest things here is our diversity. Its also the range of emotions we allow ourselves to go through. As to bickering its going to happen, especially with what many of us are going through. We just need to not make it personal and when we really have disagreements with someone talk to them offboard. A simple email will work wonders. I don't personally care how ugly a remark someone were to make to me, I'm not about to give up something this important in my life because my feelings were hurt or to make a stand on some principle of which I'm not sure. I'll apologize for offending someone even when I didn't intend to and am not sure what I did wrong. Yes, we all are fragile over the disease but if we can deal with the disease certainly we can deal with some remark we take the wrong way. > >> >> > Bruce, Gwynne & Mama-Sher have set me thinking on the purpose of this> > group ...for ME....this group provides a safe place to allow my> disease> > of IPF to be considered, discussed, supported, ameliorated as often as> I> > like...there are NO limits on time, interest & capacity to respond to> > questions, anxieties & fear.> >> > I CAN'T wear it out....people in my day-to-day life have all sorts of> > things they're dealing with too & I CAN wear THEM out if I truly let> fly> > with all my feelings, questions, responses to finding myself with this> > disease......> >> > On this Board if I don't feel I can help or I'm not taken up with a> > particular dilema Or I just plain don't want to participate in a> current> > discussion or thread then I can use the DELETE button with no offence> to> > anyone!> >> > People in our lives can't do that...they live with our disease just as> > we do....this Board can take the pressure off them too!> >> > There IS no DELETE button in real life!> >> > As a member of this Board I've tended to use Humour as a way of> > 'leavening' a dire situation that many find themselves in. That's MY> way> > of coping but I recognise that it's not for everyone. I apologise if> > I've distressed anyone who finds my humour distracting &  unwarranted.> >> > Cyber Parties were my way of attempting to make people more accessible> > to each other...we'll get to know each other in a different way &  feel> > closer as a result. Once again there are some for whom this is not> > helpful ......I'll leave it to our wise List Moderator to judge> whether> > these parties should occasionally happen ...the pre-Christmas Cooking> > Party was just an 'Off-the Cuff' idea while the New Year's Eve Party> was> > actually suggested by other Board members & I responded in great glee!> >> > I really appreciate this Board & hope that my contribution balances> out> > what I gain from all of you......> >> > Remember just use DELETE if I'm too much for some of you!> >> > in Oz> >> > IPF: Fibrotic NSIP/UIP???> >> > Reynauds'> >> > May 2007> >>

[Guest guest]

Sher....

I didn't want to remind you of this. I had little choice after you

cuffed and tied me.

> >

> >

> > Bruce, Gwynne & Mama-Sher have set me thinking on the purpose

of

> this

> > group ...for ME....this group provides a safe place to allow my

> disease

> > of IPF to be considered, discussed, supported, ameliorated as

often

> as I

> > like...there are NO limits on time, interest & capacity to

respond

> to

> > questions, anxieties & fear.

> >

> > I CAN'T wear it out....people in my day-to-day life have all

sorts

> of

> > things they're dealing with too & I CAN wear THEM out if I

truly

> let fly

> > with all my feelings, questions, responses to finding myself

with

> this

> > disease......

> >

> > On this Board if I don't feel I can help or I'm not taken up

with a

> > particular dilema Or I just plain don't want to participate in

a

> current

> > discussion or thread then I can use the DELETE button with no

> offence to

> > anyone!

> >

> > People in our lives can't do that...they live with our disease

just

> as

> > we do....this Board can take the pressure off them too!

> >

> > There IS no DELETE button in real life!

> >

> > As a member of this Board I've tended to use Humour as a way of

> > 'leavening' a dire situation that many find themselves in.

That's

> MY way

> > of coping but I recognise that it's not for everyone. I

apologise if

> > I've distressed anyone who finds my humour distracting &

> unwarranted.

> >

> > Cyber Parties were my way of attempting to make people more

> accessible

> > to each other...we'll get to know each other in a different way

&

> feel

> > closer as a result. Once again there are some for whom this is

not

> > helpful ......I'll leave it to our wise List Moderator to judge

> whether

> > these parties should occasionally happen ...the pre-Christmas

> Cooking

> > Party was just an 'Off-the Cuff' idea while the New Year's Eve

> Party was

> > actually suggested by other Board members & I responded in

great

> glee!

> >

> > I really appreciate this Board & hope that my contribution

balances

> out

> > what I gain from all of you......

> >

> > Remember just use DELETE if I'm too much for some of you!

> >

> > in Oz

> >

> > IPF: Fibrotic NSIP/UIP???

> >

> > Reynauds'

> >

> > May 2007

> >

>

[Guest guest]

If you ever offend me, I'll attribute it to oxygen deprivation. If

you do it badly i'll tell you in private. So far you've not been

successful so if you want to offend me going to have to try much

harder.

> > >

> > >

> > > Bruce, Gwynne & Mama-Sher have set me thinking on the purpose

of

> this

> > > group ...for ME....this group provides a safe place to allow my

> > disease

> > > of IPF to be considered, discussed, supported, ameliorated as

> often as

> > I

> > > like...there are NO limits on time, interest & capacity to

> respond to

> > > questions, anxieties & fear.

> > >

> > > I CAN'T wear it out....people in my day-to-day life have all

> sorts of

> > > things they're dealing with too & I CAN wear THEM out if I

truly

> let

> > fly

> > > with all my feelings, questions, responses to finding myself

with

> this

> > > disease......

> > >

> > > On this Board if I don't feel I can help or I'm not taken up

with

> a

> > > particular dilema Or I just plain don't want to participate in

a

> > current

> > > discussion or thread then I can use the DELETE button with no

> offence

> > to

> > > anyone!

> > >

> > > People in our lives can't do that...they live with our disease

> just as

> > > we do....this Board can take the pressure off them too!

> > >

> > > There IS no DELETE button in real life!

> > >

> > > As a member of this Board I've tended to use Humour as a way of

> > > 'leavening' a dire situation that many find themselves in.

That's

> MY

> > way

> > > of coping but I recognise that it's not for everyone. I

apologise

> if

> > > I've distressed anyone who finds my humour distracting &

> unwarranted.

> > >

> > > Cyber Parties were my way of attempting to make people more

> accessible

> > > to each other...we'll get to know each other in a different

way &

> feel

> > > closer as a result. Once again there are some for whom this is

not

> > > helpful ......I'll leave it to our wise List Moderator to judge

> > whether

> > > these parties should occasionally happen ...the pre-Christmas

> Cooking

> > > Party was just an 'Off-the Cuff' idea while the New Year's Eve

> Party

> > was

> > > actually suggested by other Board members & I responded in

great

> glee!

> > >

> > > I really appreciate this Board & hope that my contribution

> balances

> > out

> > > what I gain from all of you......

> > >

> > > Remember just use DELETE if I'm too much for some of you!

> > >

> > > in Oz

> > >

> > > IPF: Fibrotic NSIP/UIP???

> > >

> > > Reynauds'

> > >

> > > May 2007

> > >

> >

>

[Guest guest]

Good sermon Joyce. Amen!

Mama-Sher, ild 3-06, OR.Don't fret about tomorrow, God is already there!

Re: Serious Thoughts on Group Purpose

,

You could never appreciate me as much as I appreciate you. Humor is absolutely the very best medicine. My humor is usually cynical and sarcastic....but humor, nonetheless. Your sense of imagination is awesome.

A safe place is the very idea that Leanne had when she started this group. That is why I get so frustrated at people who get miffed at each other. This is not the place. Just let it go. We are all sick and grumpy. We say things that come from our own anger and frustration and someone takes offense because they also are sick, etc.

My prayer for 2008 is that we can have that "Safe Place" here. Let's try to be longsuffering with each other and a tad more compassionate. The last thing I need is to come here and find bickering. It has only happened a few times, but it is upsetting and we always end up losing members. We need each other too much to allow that to happen.

Sermon #1 for the New Year.

Gotta do something to deserve my mod. title.

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> > Bruce, Gwynne & Mama-Sher have set me thinking on the purpose of this> group ...for ME....this group provides a safe place to allow my disease> of IPF to be considered, discussed, supported, ameliorated as often as I> like...there are NO limits on time, interest & capacity to respond to> questions, anxieties & fear.> > I CAN'T wear it out....people in my day-to-day life have all sorts of> things they're dealing with too & I CAN wear THEM out if I truly let fly> with all my feelings, questions, responses to finding myself with this> disease......> > On this Board if I don't feel I can help or I'm not taken up with a> particular dilema Or I just plain don't want to participate in a current> discussion or thread then I can use the DELETE button with no offence to> anyone!> > People in our lives can't do that...they live with our disease just as> we do....this Board can take the pressure off them too!> > There IS no DELETE button in real life!> > As a member of this Board I've tended to use Humour as a way of> 'leavening' a dire situation that many find themselves in. That's MY way> of coping but I recognise that it's not for everyone. I apologise if> I've distressed anyone who finds my humour distracting & unwarranted.> > Cyber Parties were my way of attempting to make people more accessible> to each other...we'll get to know each other in a different way & feel> closer as a result. Once again there are some for whom this is not> helpful ......I'll leave it to our wise List Moderator to judge whether> these parties should occasionally happen ...the pre-Christmas Cooking> Party was just an 'Off-the Cuff' idea while the New Year's Eve Party was> actually suggested by other Board members & I responded in great glee!> > I really appreciate this Board & hope that my contribution balances out> what I gain from all of you......> > Remember just use DELETE if I'm too much for some of you!> > in Oz> > IPF: Fibrotic NSIP/UIP???> > Reynauds'> > May 2007>

[Guest guest]

Hear me talk! You deserve what ever you got. lol

Mama-Sher, ild 3-06, OR.Don't fret about tomorrow, God is already there!

Re: Serious Thoughts on Group Purpose

Sher....I didn't want to remind you of this. I had little choice after you cuffed and tied me.> >> > > > Bruce, Gwynne & Mama-Sher have set me thinking on the purpose of > this> > group ...for ME....this group provides a safe place to allow my > disease> > of IPF to be considered, discussed, supported, ameliorated as often > as I> > like...there are NO limits on time, interest & capacity to respond > to> > questions, anxieties & fear.> > > > I CAN'T wear it out....people in my day-to-day life have all sorts > of> > things they're dealing with too & I CAN wear THEM out if I truly > let fly> > with all my feelings, questions, responses to finding myself with > this> > disease......> > > > On this Board if I don't feel I can help or I'm not taken up with a> > particular dilema Or I just plain don't want to participate in a > current> > discussion or thread then I can use the DELETE button with no > offence to> > anyone!> > > > People in our lives can't do that...they live with our disease just > as> > we do....this Board can take the pressure off them too!> > > > There IS no DELETE button in real life!> > > > As a member of this Board I've tended to use Humour as a way of> > 'leavening' a dire situation that many find themselves in. That's > MY way> > of coping but I recognise that it's not for everyone. I apologise if> > I've distressed anyone who finds my humour distracting & > unwarranted.> > > > Cyber Parties were my way of attempting to make people more > accessible> > to each other...we'll get to know each other in a different way & > feel> > closer as a result. Once again there are some for whom this is not> > helpful ......I'll leave it to our wise List Moderator to judge > whether> > these parties should occasionally happen ...the pre-Christmas > Cooking> > Party was just an 'Off-the Cuff' idea while the New Year's Eve > Party was> > actually suggested by other Board members & I responded in great > glee!> > > > I really appreciate this Board & hope that my contribution balances > out> > what I gain from all of you......> > > > Remember just use DELETE if I'm too much for some of you!> > > > in Oz> > > > IPF: Fibrotic NSIP/UIP???> > > > Reynauds'> > > > May 2007> >>