Re: response to Mama Sher

[Guest guest]

Gwynne,

You are right on! .......and awesome......and lovely!

Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> Mama Sher,> Thanks for your comments on communication.> Responses? Be careful what you wish for:> I could write for days about my feelings on the need> to communicate honestly and clearly, ESPECIALLY with> those we love MOST. I don't know if our website keeps> people from sharing elsewhere, but maybe some people> hide behind it or use it as a stall tactic to avoid the greater> reality of sharing with their families. Or maybe some of> them don't HAVE friends or families. I don't know, but> maybe there are some who are afraid of living in the real> world with their diseases, who find it easier to spend time> online than risking the difficulties involved in the other.> After all, it's a huge challenge. On the other hand, there> are some who are genuinely homebound for whom this> may be their only blessed social outlet. And we do grow> to care so much for one another here.> > I believe the vast majority of men in the US are raised> to be babied and to bully, and the vast majority of> women are raised to be doormats and to keep quiet. I> think because this is all they KNOW, they keep doing it,> and justify it by saying that they're nurturers. In truth> they're clueless about how to set boundaries and treat> themselves with enough love to demand respect and ask> for help when needed. They're taught by example, and> most of them are taught to be miserable. I think it's one> of the greatest tragedies in the world, and the cause of> most misery, that most people don't realize that they are> worthy of more and deserve better. They don't get> it that there are real options to being miserable.> > My parents' unconditional love empowered me to be assertive> when it was called for. I believe many people think being> assertive is being aggressive, which it isn't. Many people> are taught that it's wrong to have real emotions such as> fear and anger, and for them maybe it's easier to be doormats> than to express real feelings. But I think we ROB our loved> ones anytime we fail to speak our truth or to be authentic.> I don't mean we have to blurt out every thought that enters> our heads, but we give an immeasurable gift of love when we> allow ourselves to be vulnerable and share our hearts. It's> how we learn and grow. Sometimes that means stepping> outside our comfort zones, but the reward is a real life> well-lived, without having to harbor anger and resentment> or make painful assumptions that only get us into trouble.> All we really have to give to anyone is ourselves. Why would> we want to do a half-ass job of it? I don't want to lie on my> deathbed wishing that someone had really understood me.> That idea really terrifies me. But it's my responsibility to> make sure that doesn't happen, by being honest with those> close to me.> > I'm feeling depressed and lonely now, but not alone. My> relationships with family, friends, and God prevent that.> It's always a challenge to walk our individual paths, but I> think it's all part of the rich tapestry that is our life's journey.> > I was in a bad marriage for years, trying to love someone> who loathed himself. Today I still feel a little bit like I've> been let out of jail. My family is close, but I have a rich, full> from apart from them. That's because I have real intimacy> in my life. To me, intimacy is sharing our innermost selves> with people we love who love us. It is listening to others,> and being HEARD, for who we really are.> > I won't live any other way, especially not now. Forget finding> the right time or place, or what's convenient... this is a lifestyle> for me. I don't wait hand and foot on those who don't> appreciate me or meet me half-way. I won't be accountable> to people who aren't accountable. I don't spend time with> people I can't be myself with. For me, to do otherwise is a> cop-out, and I don't have the time. I don't think anyone does.> As you can see, I'm passionate about this. It's really> important to me to leave this as a legacy to my children,> and at least one of them seems to have learned it so far.> > I'm grateful for your honest sharing on this board, and I> always appreciate your perspective. And NO, Sher, no one> would ever honestly accuse you OR that sweet Rosebud> of doing a lap dance. :-)> > Hugs,> Gwynne IPF 7/04 listed for transplant 3/07 Texas>

[Guest guest]

Gwynne,

Thanks for sharing so openly. All you say here I so agree with and goes straight to the point of us sharing with our loved ones off the board...if we can. I have faced the fact that I am dying and I don't want to 'waste' time with phony phrases, people or procrastinating. I've always been open with others and try to urge others to do the same. Now is the time.

Yes, I can read your passion for this. I have the same passion and my kids have pretty much learned what is really important to me.

I like what you say about intimacy and the rich tapestry of our lives.

A lot of what we are discussing here is co-dependent behavior and blaming others when our needs aren't met.

I...(all of us?) so need to be working on, working out and focusing on our disease and asking for help and...............

careful, I'll get on a roll again. lol

Hugs to you.

Mama-Sher, ild 3-06, OR.Don't fret about tomorrow, God is already there!

response to Mama Sher

Mama Sher,Thanks for your comments on communication.Responses? Be careful what you wish for:I could write for days about my feelings on the needto communicate honestly and clearly, ESPECIALLY withthose we love MOST. I don't know if our website keepspeople from sharing elsewhere, but maybe some peoplehide behind it or use it as a stall tactic to avoid the greaterreality of sharing with their families. Or maybe some ofthem don't HAVE friends or families. I don't know, butmaybe there are some who are afraid of living in the realworld with their diseases, who find it easier to spend timeonline than risking the difficulties involved in the other.After all, it's a huge challenge. On the other hand, thereare some who are genuinely homebound for whom thismay be their only blessed social outlet. And we do growto care so much for one another here.I believe the vast majority of men in the US are raisedto be babied and to bully, and the vast majority ofwomen are raised to be doormats and to keep quiet. Ithink because this is all they KNOW, they keep doing it,and justify it by saying that they're nurturers. In truththey're clueless about how to set boundaries and treatthemselves with enough love to demand respect and askfor help when needed. They're taught by example, andmost of them are taught to be miserable. I think it's oneof the greatest tragedies in the world, and the cause ofmost misery, that most people don't realize that they areworthy of more and deserve better. They don't getit that there are real options to being miserable.My parents' unconditional love empowered me to be assertivewhen it was called for. I believe many people think beingassertive is being aggressive, which it isn't. Many peopleare taught that it's wrong to have real emotions such asfear and anger, and for them maybe it's easier to be doormatsthan to express real feelings. But I think we ROB our lovedones anytime we fail to speak our truth or to be authentic.I don't mean we have to blurt out every thought that entersour heads, but we give an immeasurable gift of love when weallow ourselves to be vulnerable and share our hearts. It'show we learn and grow. Sometimes that means steppingoutside our comfort zones, but the reward is a real lifewell-lived, without having to harbor anger and resentmentor make painful assumptions that only get us into trouble.All we really have to give to anyone is ourselves. Why wouldwe want to do a half-ass job of it? I don't want to lie on mydeathbed wishing that someone had really understood me.That idea really terrifies me. But it's my responsibility tomake sure that doesn't happen, by being honest with thoseclose to me.I'm feeling depressed and lonely now, but not alone. Myrelationships with family, friends, and God prevent that.It's always a challenge to walk our individual paths, but Ithink it's all part of the rich tapestry that is our life's journey.I was in a bad marriage for years, trying to love someonewho loathed himself. Today I still feel a little bit like I'vebeen let out of jail. My family is close, but I have a rich, fullfrom apart from them. That's because I have real intimacyin my life. To me, intimacy is sharing our innermost selveswith people we love who love us. It is listening to others,and being HEARD, for who we really are.I won't live any other way, especially not now. Forget findingthe right time or place, or what's convenient... this is a lifestylefor me. I don't wait hand and foot on those who don'tappreciate me or meet me half-way. I won't be accountableto people who aren't accountable. I don't spend time withpeople I can't be myself with. For me, to do otherwise is acop-out, and I don't have the time. I don't think anyone does.As you can see, I'm passionate about this. It's reallyimportant to me to leave this as a legacy to my children,and at least one of them seems to have learned it so far.I'm grateful for your honest sharing on this board, and Ialways appreciate your perspective. And NO, Sher, no onewould ever honestly accuse you OR that sweet Rosebudof doing a lap dance. :-)Hugs,Gwynne IPF 7/04 listed for transplant 3/07 Texas