pics

[Guest guest]

I LOVE ALL THE PICTURES.  Love and Prayers, Peggy  ipf 6/04 Florida"Worry looks around, Sorry looks back, Faith looks up."

[Guest guest]

Gwynne:

I can absolutely, positively guarantee that you will see lots of

pictures! I love taking pictures and so does my daughter (she's

better at it) and she's coming with me to San . I got my

flight papers signed by my pulm doctor today - never wait til the

last minute. I have to turn those in to Continental so that I will

have 02 on the plane. I have some more details to work out yet, but

so far everything is falling into place quite well. I was worried

that I would be coming by myself, but I am so glad 's able to

be with me. I think she will benefit from the Caregivers Support

Group too. I can't wait to meet everyone. I am so excited. Also,

this is the first thing that has come along to really make me happy

enough to want to leave the house! I have been soooooo couped up!

Other than doctors and pre-transplant stuff, I haven't left the

house for hardly anything. I wish I could being Kaleb too; I know

he would be a hoot to have along, but this trip is for me. I

haven't broke the news to him yet that I am going to be out of town

for a couple of days. I think I will wait a while yet to spring

that on him. I hope you are feeling well and that those people get

back to you! I hate being put off and not responded to! My pre-

transplant coordinator was so bad about not responding to my calls,

messages and emails! I really gave him heck over the last one, and

then he explained that his wife had a baby that week. I said

congratulations, but please answer my questions - dang it! I have a

life too, even though he seemed to forget I am living on borrowed

time! The ignorance of not responding at all is so frustrating to

me. I have worked in public service all of my life and I never

treated people this way. Even if my response was " i don't know " , at

least I responded. God Bless and I will pray for you and all the

others too.

Tina

IPF 04/07 PH 11/07 Ohio

>

> Typical - have been waiting for two days for my transplant

> nurse to call in a Rx. I was standing there when my doc

> said he wanted me to have it immediately - an antibiotic

> just to have on hand, like Joyce does. Couldn't get either

> nurse on the phone today, Dallas or San - also

> typical (one doesn't even have a direct line, and certainly

> neither has an assistant - well, besides ME!). I e-mailed

> the one in S.A. tonight with several questions. We'll see

> how long it takes her to respond (of course I'll be calling

> daily to leave voice mails if necessary). It's a wonder

> we don't all go stark-raving mad, even OFF Prednisone.

>

> You know what I'd really appreciate? If all those of you

> who are going to San would please post photos

> of yourself before then, if you haven't already. I want to

> have a mental image of those who will get to meet and

> hug each other. Of course, I wish everyone else would

> post photos as well! It is SO helpful when trying to keep

> names and information straight, along with the voices

> from chat nights. Pretty please?????

>

> Tammy,

> I'm sorry you're having to deal with multiple diagnoses.

> There are many on board who also deal with a number

> of illnesses, and yet they keep on moving forward and

> finding joy amid the fear and pain. It's very inspiring, to

> say the least. You've already done one big thing that

> improves your quality of life, and that's great! You have

> to take care of you when no one else will, along with

> doctors you can trust. It's a struggle, but you're worth it.

>

> Lou,

> It IS a full-time job!!!!!!!!!!!!!!!!!!!!!!!!!

> I'm jealous of you going to the beach. When was that?

> is a little doll - I can almost smell her sweet

> self by looking at the photo.

>

> Beth,

> What a lovely interior your new pad has. Love the ceilings!

> I know you're proud and happy. How's it going with the

> parents?

>

> Brud,

> You and your new bride look blissfully happy. It's such a

> blessing to have that at any age! I wish you many years

> together. Thanks for sharing.

>

> Hugs and blessings,

> Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas

>

[Guest guest]

Gwynne, I am so sorry your Dr. didn't give you the RX right then and there. I always get them from my Dr. at the end of out visit. I hope you get in touch of them early.  Will they call it to your pharmacy with refills?I think it would be so cool to come up through your area on the way home from San . Oh I just dream up some of the best ideas. I am not really sure we are going. I'll know in a week or so. I'll tell you one thing I'll have one BIG hissyfit if we don't. Take care of you.Love and Prayers, Peggyipf 6/04Worry looks around,Sorry looks back,Faith looks up. Typical - have been waiting for two days for my transplantnurse to call in a Rx. I was standing there when my docsaid he wanted me to have it immediately - an antibioticjust to have on hand, like Joyce does. Couldn't get eithernurse on the phone today, Dallas or San - alsotypical (one doesn't even have a direct line, and certainlyneither has an assistant - well, besides ME!). I e-mailedthe one in S.A. tonight with several questions. We'll seehow long it takes her to respond (of course I'll be callingdaily to leave voice mails if necessary). It's a wonderwe don't all go stark-raving mad, even OFF Prednisone.You know what I'd really appreciate? If all those of youwho are going to San would please post photosof yourself before then, if you haven't already. I want tohave a mental image of those who will get to meet andhug each other. Of course, I wish everyone else wouldpost photos as well! It is SO helpful when trying to keepnames and information straight, along with the voicesfrom chat nights. Pretty please?????Tammy,I'm sorry you're having to deal with multiple diagnoses.There are many on board who also deal with a numberof illnesses, and yet they keep on moving forward andfinding joy amid the fear and pain. It's very inspiring, tosay the least. You've already done one big thing thatimproves your quality of life, and that's great! You haveto take care of you when no one else will, along withdoctors you can trust. It's a struggle, but you're worth it. Lou,It IS a full-time job!!!!!!!!!!!!!!!!!!!!!!!!!I'm jealous of you going to the beach. When was that? is a little doll - I can almost smell her sweetself by looking at the photo. Beth,What a lovely interior your new pad has. Love the ceilings!I know you're proud and happy. How's it going with theparents?Brud,You and your new bride look blissfully happy. It's such ablessing to have that at any age! I wish you many yearstogether. Thanks for sharing.Hugs and blessings,Gwynne 56 IPF 7/04 listed for transplant 3/07 Texas