Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Judy, Welcome! You'll find that we are an amazing group of people all trying to deal with this crummy diagnosis as best as we can. Of course, I'm a little biased because I LOVE this group. I hope you'll find what you are looking for here. Ask any questions, share any fears, this is a safe place to land. It was great talking to you the other day. We will stay in touch. Leanne uip 1/03 Illinois listed for single lung transplant 10-12-07judybrown63 wrote: I'm brand new to the group and looking forward to all it has to offer. Hopefully I will be able to contribute something as well! I'm not sure how it works yet so please bare with me. I have IPF, am married to Joe who is a great help with the housework and other things, but, emotionally, he is not there for me. My family all lives 6-10 hrs. away so I rarely see them. I need this group! Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Hi Judy Brown, Welcome. So sorry you need us BUT we are so happy to help. Tell us a little more about you, Yu will find we are a nosey bunch so ya might as well just putit all out there.LOL Feel free to ask or comment about anything.Again I am sorry you have this monster of a disease. I also have IPF,I was Dx in June 04. How long have you had it? Oh I have a million questions but I'll wait until you are comfortable enough to tell us.God Bless You. Love and Prayers, Peggy ipf 6/04 Florida"Worry looks around, Sorry looks back, Faith looks up." I'm brand new to the group and looking forward to all it has to offer. Hopefully I will be able to contribute something as well! I'm not sure how it works yet so please bare with me. I have IPF, am married to Joe who is a great help with the housework and other things, but, emotionally, he is not there for me. My family all lives 6-10 hrs. away so I rarely see them. I need this group! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Actually there is no blueprint as to how this group works. Oh there were dreams long ago and guidelines but the way it works is we all share a common disease and we jump in and say and ask anything we want. We let our personalities come out as they are on any day. We're insanely Aussie (oh I meant that just in a generic way as an attitude that can be held anywhere around the world) one day, cantankerous (and that can certainly be all of us) one day, are very verbose one day (ok, me all days), suffer from the grumpies another and cheer wildly when one of our members quits smoking. We welcome you to ask or speak as you're comfortable. Emotionally no one outside this group truly can understand. Now, you may learn to communicate more effectively with him, but its still different than having the disease. I don't imagine your family could help much more in that respect. In fact, denial and avoidance of the subject are common. We need you as well. We're ready for your tears and anger and ready to share laughter with you. You contribute by being here already and every time you even ask for help you make us all feel of value and you help us remind ourselves. We'll share your pain and your strength and successes. We're about living with this disease, the best we can. Most important you can say the things to us about your true feelings that you have difficulty saying even to your husband. Bruce Moreland 58 IPF 08/07 Dallas/Plano > > I'm brand new to the group and looking forward to all it has to offer. > Hopefully I will be able to contribute something as well! I'm not sure > how it works yet so please bare with me. I have IPF, am married to Joe > who is a great help with the housework and other things, but, > emotionally, he is not there for me. My family all lives 6-10 hrs. away > so I rarely see them. I need this group! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 I second all that Peggy and everyone else has said. Welcome!!! I'm fairly new myself, still finding my way about, but everyone has been so nice that I just know you'll feel comfortable here immediately. Hugs! Babs in Texas DX Nov. 1999 PF from Lupus/Scleroderma - In Breathe-Support , Peggy wrote: > > Hi Judy Brown, Welcome. So sorry you need us BUT we are so happy to > help. > Tell us a little more about you, Yu will find we are a nosey bunch so > ya might as well just put > it all out there.LOL Feel free to ask or comment about anything. > Again I am sorry you have this monster of a disease. I also have IPF, > I was Dx in June 04. > How long have you had it? > Oh I have a million questions but I'll wait until you are comfortable > enough to tell us. > God Bless You. > > Love and Prayers, Peggy > ipf 6/04 Florida > " Worry looks around, > Sorry looks back, > Faith looks up. " > > > > > > > I'm brand new to the group and looking forward to all it has to offer. > Hopefully I will be able to contribute something as well! I'm not sure > how it works yet so please bare with me. I have IPF, am married to Joe > who is a great help with the housework and other things, but, > emotionally, he is not there for me. My family all lives 6-10 hrs. away > so I rarely see them. I need this group! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Hi Judy... welcome to our group. We're always sad to add another member to this disease but glad you are here with us. Tell us about you: age, where you live, kids? Read a lot and research our disease. Ask questions, there is always someone here to answer...especially Bruce! He was vaccinated with a phonograph needle. lol. I doubt there is anything you need to know that you won't find answers to here, and just like any family, you'll like some more than others. I'm one of the few older ones here...70 this year. I'm "Mama" 'cause I tend to tuck others under my wings and cluck to them. I was dx (diagnosed) March, '06 with IPF and have been fairly stable since. Keep coming back. When you sign off, add your diagnosis and when and in what state live...or anything else. Don't add personal info. It goes out all over the web. Mama-Sher, ipf 3-06, OR.Don't fret about tomorrow, God is already there! Hi everyone! I'm brand new to the group and looking forward to all it has to offer. Hopefully I will be able to contribute something as well! I'm not sure how it works yet so please bare with me. I have IPF, am married to Joe who is a great help with the housework and other things, but, emotionally, he is not there for me. My family all lives 6-10 hrs. away so I rarely see them. I need this group! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Mama Sher and everyone else who has already responded to me.. thank you for your warm welcome! I will write an email giving more info about me and after that you will all know me a little better. judybrown63 IPF 04-07 sc > > Hi Judy... welcome to our group. We're always sad to add another member to this disease but glad you are here with us. > Tell us about you: age, where you live, kids? > Read a lot and research our disease. Ask questions, there is always someone here to answer...especially Bruce! He was vaccinated with a phonograph needle. lol. I doubt there is anything you need to know that you won't find answers to here, and just like any family, you'll like some more than others. > I'm one of the few older ones here...70 this year. I'm " Mama " 'cause I tend to tuck others under my wings and cluck to them. I was dx (diagnosed) March, '06 with IPF and have been fairly stable since. > Keep coming back. > When you sign off, add your diagnosis and when and in what state live...or anything else. Don't add personal info. It goes out all over the web. > Mama-Sher, ipf 3-06, OR. > Don't fret about tomorrow, God is already there! > Hi everyone! > > > I'm brand new to the group and looking forward to all it has to offer. > Hopefully I will be able to contribute something as well! I'm not sure > how it works yet so please bare with me. I have IPF, am married to Joe > who is a great help with the housework and other things, but, > emotionally, he is not there for me. My family all lives 6-10 hrs. away > so I rarely see them. I need this group! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Welcome Judy, The good thing about this group is it doesn't matter HOW far away you live WE are HERE for you! Ask away & someone will answer & we'll ALL listen & CARE...A LOT in Australia (Aka in Oz) IPF; Fibrotic NSIP/UIP??? REynauds' may 2007>> I'm brand new to the group and looking forward to all it has to offer. > Hopefully I will be able to contribute something as well! I'm not sure > how it works yet so please bare with me. I have IPF, am married to Joe > who is a great help with the housework and other things, but, > emotionally, he is not there for me. My family all lives 6-10 hrs. away > so I rarely see them. I need this group!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Judy, Welcome to our group. We are so glad to have you join us, though not so glad that you are sick. We are here to provide some of the emotional support that you are needing. This is a good place to learn and to lean. Tell us something about your diagnosis and degree of illness. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> I'm brand new to the group and looking forward to all it has to offer. > Hopefully I will be able to contribute something as well! I'm not sure > how it works yet so please bare with me. I have IPF, am married to Joe > who is a great help with the housework and other things, but, > emotionally, he is not there for me. My family all lives 6-10 hrs. away > so I rarely see them. I need this group!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 Judy, I will add my Welcome to the many others you have read today. Please use this group for information, to rant and rave, laugh and cry if you need to. We all " get it" If one of us can't answer a question there is bound to be some very wise person who can and will We are very supportive of each other. Let us know something about you that you'd like to share. What are your interests? hobbies? Favorite musical groups or artists? It's a way to just start the connection that we have all found here. We sign off with our name ( however we wish to be addressed) our diagnosis and when we were first diagnosed. Some add the state too. I've added other areas that I feel indentify me. Just do what you are comfortable with. .. Z fibriotic NSIP/05 Z fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! Potter, reader,carousel lover and MomMom to Darah “I’m gonna be iron like a lion in Zion” Bob Marley judybrown63 wrote: I'm brand new to the group and looking forward to all it has to offer. Hopefully I will be able to contribute something as well! I'm not sure how it works yet so please bare with me. I have IPF, am married to Joe who is a great help with the housework and other things, but, emotionally, he is not there for me. My family all lives 6-10 hrs. away so I rarely see them. I need this group! No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.17.13/1209 - Release Date: 1/4/2008 12:05 PM Quote Link to comment Share on other sites More sharing options...
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