Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 What a horrible ordeal to go through! Sometimes it makes me wonder were did the dr's get their medical degree. I'm just glad you're home! Irene ---- Original Message ---- To: Breathe-Support Sent: Sat, 5 Jan 2008 4:25 pm Subject: Re: Pneumonia I think I know the source of mine. My lung never completely was pain free after the VATS but my high level of pain tolerance led me to dismiss it, until it hit very hard. There were a couple of things that weren't done well in the hospital as their attention was much more on those in extremely critical situations and those with heart bypasses and they are new and haven't worked out all the kinks. Its a Heart Hospital beside the regular one and does just Heart and Lung. First, which I didn't know until this week, the day of the surgery nothing was draining into the ccntainer from my tube remaining in. When my ex-wife pointed it out they realized they had failed to turn the suction on. The others were their delay in walking me which I finally persisted and got done but later than they should have and their failure to give me pain meds to make my breathing better even though I didn't require them for the pain and the doctor didn't discover that for a day or two. Their other screw ups including failing to take me down for an xray because they believed I'd been discharged when I was moved to a different floor. Oh, and they decided not to have the respiratory tech come in at night and let me sleep until my temperature rose and I insisted on her. Not the hospital I would choose again. My Primary physician agrees with my theory, particularly considering the area of the most pain originates right around the incision they biopsied through. > > > > > > > > Well, my name is Judy Brown and I am 63 yrs. old. I live in SC > > with > > > > my husband Joe and 3 dogs.(2 Goldens and a Lab) Every day they > > bring > > > > me great joy..the dogs!!! hahahah. My husband Joe tries but he > > isn't > > > > an emotional type person so he isn't someone I can talk to about > > most > > > > things. > > > > I have 5 grown, married kids who all live up north. Three of them > > > > came at Christmas with their families and I was completely > > > > overwhelmed. It made me realize how much I have slipped in a > > fairly > > > > short time. > > > > I was diagnosed this past April 07 but was previously mis- > > diagnosed > > > > for more than a year. The family Dr. kept insisting I had a bad > > case > > > > of asthma plus pneumonia and I needed to "ACCEPT IT." After 5 > > weeks > > > > of antibiotics with no change in me or my xray, he finally agreed > > to > > > > send me to a Pulmonologist. That changed my life for the good and > > > > bad. He did many tests, ruled out Asthma and sent me for a CT > > Scan. > > > > Also, he put me on oxygen 24/7 as my breathing was very labored. > > When > > > > he diagnosed me with IPF he said I was at the serious end of the > > > > disease. I do feel myself slipping and that scares me. > > > > We have no medical insurance and I can't get any. I was also > > denied > > > > Soc. Sec. Dis. and have a lawyer to fight it. I really need > > medical > > > > and a chance to get on the Transplant list. It doesn't look likely > > > > for me and that makes me feel depressed if I think about it too > > much. > > > > Still, I try very hard to keep a positive attitude and not dwell > > on > > > > the things I can't do anymore. Instead, I think about all the > > things > > > > I can still do and feel blessed. I need a support group. And > > > > hopefully, I can be support to others as well. I will always be > > > > available to talk whenever anyone needs a friend. I am one who > > likes > > > > to give back. So, again, thank you all for being here! > > > > judybrown63 > > > > 04-07 IPF SC > > > > > > > > > > Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Bruce...oh Lordy. I'm more convinced I don't want a VATS either! You poor guy. You could have had some real problems. Well, these were real but I mean really serious Mama-Sher, 69; IPF, 3-06, OR.Don't fret about tomorrow, God is already there! Re: Pneumonia I think I know the source of mine. My lung never completely was pain free after the VATS but my high level of pain tolerance led me to dismiss it, until it hit very hard. There were a couple of things that weren't done well in the hospital as their attention was much more on those in extremely critical situations and those with heart bypasses and they are new and haven't worked out all the kinks. Its a Heart Hospital beside the regular one and does just Heart and Lung. First, which I didn't know until this week, the day of the surgery nothing was draining into the ccntainer from my tube remaining in. When my ex-wife pointed it out they realized they had failed to turn the suction on. The others were their delay in walking me which I finally persisted and got done but later than they should have and their failure to give me pain meds to make my breathing better even though I didn't require them for the pain and the doctor didn't discover that for a day or two. Their other screw ups including failing to take me down for an xray because they believed I'd been discharged when I was moved to a different floor. Oh, and they decided not to have the respiratory tech come in at night and let me sleep until my temperature rose and I insisted on her. Not the hospital I would choose again.My Primary physician agrees with my theory, particularly considering the area of the most pain originates right around the incision they biopsied through.> > > >> > > > Well, my name is Judy Brown and I am 63 yrs. old. I live in SC> > with> > > > my husband Joe and 3 dogs.(2 Goldens and a Lab) Every day they> > bring> > > > me great joy..the dogs!!! hahahah. My husband Joe tries but he> > isn't> > > > an emotional type person so he isn't someone I can talk to about> > most> > > > things.> > > > I have 5 grown, married kids who all live up north. Three of them> > > > came at Christmas with their families and I was completely> > > > overwhelmed. It made me realize how much I have slipped in a> > fairly> > > > short time.> > > > I was diagnosed this past April 07 but was previously mis-> > diagnosed> > > > for more than a year. The family Dr. kept insisting I had a bad> > case> > > > of asthma plus pneumonia and I needed to "ACCEPT IT." After 5> > weeks> > > > of antibiotics with no change in me or my xray, he finally agreed> > to> > > > send me to a Pulmonologist. That changed my life for the good and> > > > bad. He did many tests, ruled out Asthma and sent me for a CT> > Scan.> > > > Also, he put me on oxygen 24/7 as my breathing was very labored.> > When> > > > he diagnosed me with IPF he said I was at the serious end of the> > > > disease. I do feel myself slipping and that scares me.> > > > We have no medical insurance and I can't get any. I was also> > denied> > > > Soc. Sec. Dis. and have a lawyer to fight it. I really need> > medical> > > > and a chance to get on the Transplant list. It doesn't look likely> > > > for me and that makes me feel depressed if I think about it too> > much.> > > > Still, I try very hard to keep a positive attitude and not dwell> > on> > > > the things I can't do anymore. Instead, I think about all the> > things> > > > I can still do and feel blessed. I need a support group. And> > > > hopefully, I can be support to others as well. I will always be> > > > available to talk whenever anyone needs a friend. I am one who> > likes> > > > to give back. So, again, thank you all for being here!> > > > judybrown63> > > > 04-07 IPF SC> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 lol about the tape! ---- Original Message ---- To: Breathe-Support Sent: Sat, 5 Jan 2008 9:58 pm Subject: Re: Pneumonia You'd think another blanket would cost them a million dollars. It's like for giving blood, my lab always used elastic to wrap the cotton after. Now tape, because the elastic is too expensive. So, I always point to the elastic and demand it. Bad enough being poked but ripping hairs out removing the tape just isn't necessary. Oh, bet they are saving at least a penny on each person. > > > > > > > > > > > > Well, my name is Judy Brown and I am 63 yrs. old. I live in > SC > > > > with > > > > > > my husband Joe and 3 dogs.(2 Goldens and a Lab) Every day > they > > > > bring > > > > > > me great joy..the dogs!!! hahahah. My husband Joe tries but > he > > > > isn't > > > > > > an emotional type person so he isn't someone I can talk to > > about > > > > most > > > > > > things. > > > > > > I have 5 grown, married kids who all live up north. Three > of > > them > > > > > > came at Christmas with their families and I was completely > > > > > > overwhelmed. It made me realize how much I have slipped in a > > > > fairly > > > > > > short time. > > > > > > I was diagnosed this past April 07 but was previously mis- > > > > diagnosed > > > > > > for more than a year. The family Dr. kept insisting I had a > > bad > > > > case > > > > > > of asthma plus pneumonia and I needed to "ACCEPT IT." After > 5 > > > > weeks > > > > > > of antibiotics with no change in me or my xray, he finally > > agreed > > > > to > > > > > > send me to a Pulmonologist. That changed my life for the > good > > and > > > > > > bad. He did many tests, ruled out Asthma and sent me for a > CT > > > > Scan. > > > > > > Also, he put me on oxygen 24/7 as my breathing was very > > labored. > > > > When > > > > > > he diagnosed me with IPF he said I was at the serious end > of > > the > > > > > > disease. I do feel myself slipping and that scares me. > > > > > > We have no medical insurance and I can't get any. I was also > > > > denied > > > > > > Soc. Sec. Dis. and have a lawyer to fight it. I really need > > > > medical > > > > > > and a chance to get on the Transplant list. It doesn't look > > likely > > > > > > for me and that makes me feel depressed if I think about it > > too > > > > much. > > > > > > Still, I try very hard to keep a positive attitude and not > > dwell > > > > on > > > > > > the things I can't do anymore. Instead, I think about all > the > > > > things > > > > > > I can still do and feel blessed. I need a support group. And > > > > > > hopefully, I can be support to others as well. I will > always > > be > > > > > > available to talk whenever anyone needs a friend. I am one > who > > > > likes > > > > > > to give back. So, again, thank you all for being here! > > > > > > judybrown63 > > > > > > 04-07 IPF SC > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________ > __ > > Meet the new AOL.ca. Free radio, music, videos, news & > entertainment ? with a Canadian perspective. > > > > > > > > __________________________________________________________ __ > Meet the new AOL.ca. Free radio, music, videos, news & entertainment ? with a Canadian perspective. > Meet the new AOL.ca. Free radio, music, videos, news & entertainment – with a Canadian perspective. Quote Link to comment Share on other sites More sharing options...
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