Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 My ears ring non-stop too. My dr says that it is caused from nerve damage. Hugs, , My ears rings non-stop, I always thought it was my meds and did not ask. Recently I did ask they said it was not caused by my medications. Would have to investigate further.Thanks for asking I will be waiting on the answer. Connie ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 , My ears rings non-stop, I always thought it was my meds and did not ask. Recently I did ask they said it was not caused by my medications. Would have to investigate further.Thanks for asking I will be waiting on the answer. Connie Re: Question a-ringing? ears? Is, hey, is this why I have ringing in my ears? I have ringing sometimes, is there a connection here with lupus?> > Lupus patients with central nervous system involvement should be> > monitored for psychosis. Any time the brain is involved in any> > debilitating illness, psychosis or mental instability is going to > be a> > problem.> > > > Psychosis brought on by the use of antimalarials is very very rare, > but> > should be considered if a person begins to show signs of mental> > problems.> > > > Diagnosing the cause of the psychosis is hard for a doctor of a > patient> > with a life threatening disease. Not only is the patient dealing > with> > depression but the side effects from the medications needed to > control> > the disease.> > > > Antimalarials on top of a severe depression are more apt to cause> > psychosis. With the new dosages for antimalarials being much lower > now> > than in earlier years, plus better combinations of drugs, has > lowered> > the incident of psychosis to almost zero in Lupus patients.> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2003 Report Share Posted May 17, 2003 Re: Re: Question My ears ring non-stop too. My dr saysthat it is caused from nerve damage.Hugs, ,My ears rings non-stop, I always thought it was my meds and did not ask. Recently I did ask they said it was not caused by my medications. Would have to investigate further.Thanks for asking I will be waiting on the answer.Connie----- "The LUPIES Store" Come check out our store...http://www.cafepress.com/thelupies"The LUPIES Web Page"http://www.itzarion.com/lupusgroup.html"The LUPIES online photo albums!" Check out what your fellow Lupies look like...http://www.picturetrail.com/gallery/view?username=lupies Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 Kathy Keef wrote: >My husband was diagnosed T-2 just about a year ago. We haven't been able >to get his bg's down below 150 and keep them there. The Dr seems to feel >that 150 is a good number although he was just at 140 when he was first >diagnosed. > When is he testing to get these readings, fasting, after meals? >I'm trying to keep him on a strict diet of low carbs and he >takes glucophage (sp) > That sounds good. >He was recently reading a article that said >something vague about using cinnamon to help control and keep bg's down to >non-diabetic levels. He says he thinks they said 1tsp of cinnamon a day but >isn't sure. > Yes, articles seem to pop up every once in a while which say cinnamon is helpful. Some of us on this list have tried cinnamon, and while most of us agree it tastes pretty good, it's not clear how much it helps. But it probably can't hurt. I believe the most recent articles recommend about 1/2 teaspoon. I've heard that the beneficial constituent of cinnamon is water soluble. You can soak the cinnamon in a bit of water, and then consume the liquid and throw away the solid particles. Apparently there is something carcinogenic in the solid particles or some such danger. >Also read something about when men get older, he is almost 64 >they don't have enough of the testerone hormone and to much of the >Estergerine which causes the bg to be high, Have any of you heard or read >anything about this or know if it is a valid rumor. > Perhaps others can comment. I've never heard that estrogen in men causes increased BGs. As men age their testosterone levels lower, which makes their estrogen levels relatively higher. I understand the reverse happens in women. It's why men's sex drive tends to reduce with age and why women's increases. >DH has already problems >with neuropathy in his feet and it is starting in his hands now also so we >really want to get the blood levels down and keep them down before any >other problems develop. > Good idea. The best way to improve neuropathy is to lower BGs. Many diabetics also say alpha lipoic acid with Evening Primrose oil help. Good luck. Edd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2004 Report Share Posted February 20, 2004 Hi , Of course, that would scare me just as badly! I have heard of it, although my thoughts tend to run to " what can I do to PREVENT that from happening? " I am not an RSD expert, really, just know what has happened to me, but it appears that you do not have circulation, and you need to have the blood flowing to keep tissue, bone, etc. alive. Did your foot Dr. have any suggestions about improving circulation? I know that the RSD wreaks havoc upon our bodies, but there's got to be a way to fight this,. I will try and do some online research about things that you can take (supplements, etc) that will improve circulation. Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2004 Report Share Posted February 20, 2004 - Please check this out thoroughly. I can well imagine how frightened you must feel. Everything that I've heard and read has indicated that amputation is not a good option for RSD. One of the questions you might ask would be if they are seeing evidence of gangrene. My thoughts are with you....Please stay in touch. Barbarafishthatsmiles@... wrote: hello everyone. have a question. has the rsd gotten so bad in a limbthat the doctor has talked about amputating that limb. went to footdoctor today and the feet are so numb that she said it is from the rsdand they may have to be amputated. please let me know. this scares thebee jee bees out of me. cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2004 Report Share Posted February 20, 2004 , I have been taking grapeseed extract since beginning of January, it is an antioxidant that fights free radicals that destroy cappillariesthat bring oxygen to our limbs. There is no harm to taking antioxidants and most cardiac Drs will tell their patients to take these. Since I have been on them the temperature fluctuation has improved, instead of going icy cold 12-15 times a day the hand has maybe 5-7 episodes a day, and maybe 2 of those are icy, the rest are merely cool, I think because more oxygen is getting to the area, better blood flow. I wd start these at once as it can't hurt. I started at 200 mg and am at 500 mg now but have had no bad effects, with your situation you may want to just start at higher dose say 300 mg day? At WalMart they have GrapeSeed Extract Plus, has other antioxidant ingredients as well and is abt $6 a bottle. Are you doing Epsom salt baths? I wd do those several times a day to keep blood flowing and walking as much as possible, regardless of pain, you HAVE GOT to keep blood flowing!! Can you stand to have anyone massage you feet?? What abt water therapy or hot tub? Anything to keep increased circulation!! I wd ask if along with taking the antioxidants you could do HBOT therapy at the nearest hospital, but I don't know if insurance will cover it for RSD - still I wd find a way to arrange payment if it meant saving my feet versus amputation! HBOT is a way to bring enriched oxygen to the tissue, talk to your Dr abt this, they do it for burn victims all the time to promote new skin growth. I pray something works to save your feet, please keep us posted!! beth question > hello everyone. have a question. has the rsd gotten so bad in a limb > that the doctor has talked about amputating that limb. went to foot > doctor today and the feet are so numb that she said it is from the rsd > and they may have to be amputated. please let me know. this scares the > bee jee bees out of me. cathy > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2004 Report Share Posted March 1, 2004 i am running a temp from 100-102.because of this temp it seems like the rsd is firing really bad , Are you by chance on Duragesic (Fentanyl) Patches? I have run fevers before from the RSD but don't recall one that high. Take Care, Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2004 Report Share Posted March 2, 2004 So....in my opinion, ANYONE here that has the fevers with the RSD....should go and get the Popsicle Pedialyte, and keep them in the freezer. That way, no one gets dehydrated...which, with the RSD, we tend to dehydrate easier anyways. These are in the Baby Aisles....right next to the Formula for Babies. You can get the Pedialyte in liquids also....but, the flavors aren't that great. You can get Orange, grape, no flavor and in some places, Bubblegum. But, at least the Popsicles are in the Normal Popsicle flavors that we grew up with! Just an idea...for everyone. Tonia Tonia, I'm going to pick your brain cause mine is in reverse today, lol. Wasn't there a recipe floating around a while back (like 2 years or more) to make something like these? I use Duragesic Patches and have to be careful as they release more when I have a fever or am overheated. I've used the Popsicle Pedialyte before and it has helped, I'm allergic to asprin also. Hoping for Pain Free Days,Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Diane Don't automatically attribute it all to deterioration. Get to the doctor. It could well be pneumonia. Pain in ribs, lower sats. And, you might not have noticed the pain in the lungs due to the morphine. So, while it may be deterioration, don't assume that, please m'aam. Get checked out. > > Almost overnight, my sats have fallen drastically. I used to be able > to walk out and get a glass of water without any O2 but almost > overnight, that is no longer the case. I am dropping into low 80's > just walking a few steps. Also, with O2 on 4lpm, I am still dropping > to high 80's. Is this normal? I didn't think that deterioration > happened like this. Also, the pain in my ribs has intensified. I have > been taking morphine for the pain but didn't need to use it too much. > Now, I am taking it every 4 hours. Help! > > Diane > IPF June 07 > New Brunswick, Canada > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Diane, For me and for some others on this group, the disease tends to take a dive, then plateau, then dive....etc. What is causing the pain? You should call your doctor with this new information. He needs to find out pronto what is going on. God's blessings. Hugs, Joyce D.PULMONARY FIBROSIS/LUPUS 1997 BRONCHIECTASIS 2004 INDIANA 2 COR. 12:10 ....when I am weak, then I am strong.>> Almost overnight, my sats have fallen drastically. I used to be able > to walk out and get a glass of water without any O2 but almost > overnight, that is no longer the case. I am dropping into low 80's > just walking a few steps. Also, with O2 on 4lpm, I am still dropping > to high 80's. Is this normal? I didn't think that deterioration > happened like this. Also, the pain in my ribs has intensified. I have > been taking morphine for the pain but didn't need to use it too much. > Now, I am taking it every 4 hours. Help!> > Diane > IPF June 07> New Brunswick, Canada> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 Diane, I hope by now you've called your doctor. The last time that happened to me I had double pneumonia. I had chest pain but didn't feel like I was sick, just tired and low sats. You probably need an xray to be sure you are okay. Sarcoid/PF 3/2006 California Question Almost overnight, my sats have fallen drastically. I used to be able to walk out and get a glass of water without any O2 but almost overnight, that is no longer the case. I am dropping into low 80's just walking a few steps. Also, with O2 on 4lpm, I am still dropping to high 80's. Is this normal? I didn't think that deterioration happened like this. Also, the pain in my ribs has intensified. I have been taking morphine for the pain but didn't need to use it too much. Now, I am taking it every 4 hours. Help!Diane IPF June 07New Brunswick, Canada Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
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