Judy, Gwynne + showers

[Guest guest]

Hi Judy and Gwynne, I am not up to high levels yet on O2 and am fine showering but my sats go low when I wash my hair. I only wash my hair once a week now and I make sure I do it on a day I have nothing else scheduled. I am playing with the idea of going to one of the beauty schools to get my hair washed ( it costs 5-10 dollars) when it gets too hard for me. I know there are even some beauty schools that will send students to your house. Thought you two might want to try this. Take care- Sarcoid/PF 3/2006 California Judy

Hi Judy.

I can totally relate about the difficulty with baths and

showers. As we progress, more things that take upper

body strength sap our air. But I noticed you said

your 02 is "close by". Sounds to me like you need to

be wearing it. You're sats are probably dropping.

You're smart to have a stool. Some people dry off

while they're still sitting in the shower. I have to sit

before, during, and after I dry off. Some just put on

a thick terrycloth robe instead. It takes some

experimenting to find out what's best for you, but

it will still probably be a challenge. The sob is cruel.

When I wasn't up to a shower, sometimes I used to

wash my hair in the sink. Now that's a problem, as

is anything that involves bending over, even washing

my face. It's all royally inconvenient and frustrating.

I oxygenate at 98 or 99% on continuous air when I'm

sitting down, but it often falls into the 70's with any

activity, even on 15L. I'm sorry you're having to

experience the exhausting, scary, and sad feeling of

a decline. It's bad enough when it creeps up on you,

but it's especially scary when it hits you fast like a

brick in the head. You are absolutely right to

concentrate on what we CAN still do, though. Our

attitudes help us when all else fails, and I can tell

you have a great one. Hang in there!

Hugs and blessings,

Gwynne IPF 7/04 listed for transplant 3/07 Texas

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