Guest guest Posted March 19, 1999 Report Share Posted March 19, 1999 My name is , and I'm new to this list. Have been on it for over a day now and I haven't seen any emails yet. I was on the " cystic-l " list for awhile and got a little overwhelmed with the volume of emails I was getting every day. I have a 3 month old son, , who was diagnosed with CF at five weeks. He seems to be doing fine except for the fact that he's still quite small for his age (15th %ile). He sometimes seems congested to me, but not always. I don't think he's had a " real " cold yet. Hopefully, he inherited my excellent immune system. The biggest issue at this time is finding the appropriate enzyme/formula concentration to put some meat on his bones while avoiding puking. He pukes (not spit up - puking the whole bottle) fairly often, especially since we increased the density of his Pregestimil. The latest " experiment " (as of yesterday), per our nutritionist, is to add 1 Tbsp. Rice Cereal to his formula. He's so far kept 3 full bottles down. Who knows - maybe this is the key. I don't want to get my hopes up, though! It's really an emotional roller coaster for me still to deal with all of this. I was told through the whole pregnancy that the baby was perfectly normal and then BOOM. He's the light of our lives....what a sweetie! I hope to hear from you all out there... Here's hoping for that cure!! Quote Link to comment Share on other sites More sharing options...
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