Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Irene, it's rare that Raynaud's is the main disease. It is almost always secondary to another auto-immune disease. It is most likely that you DO have lupus, or scleroderma or rheumatoid. Stupid doctors. With an elevated ANA you can bet you have one of the above. Just my opinion, for what it's worth. Hang in there! Hugs! Babs in Texas DX Nov. 1999 PF due to Lupus/Scleroderma and also have Raynaud's, Sjogren's, Rheumatoid Arthritis, DM, and possibly Crohn's. > > > > > > > > > > > > > > Zena, > > > > > > > I know you won't see this for a bit because of the time > > > > > difference but > > > > > > I was wondering if you could share with me what kinds of > > > symptoms > > > > > you > > > > > > have/had from the dermatomyositis? How was it diagnosed? My > > > doctor > > > > > is > > > > > > planning a biopsy of the rash and blistering on my hands but I'm > > > > > having > > > > > > alot more fatigue recently and some muscle and joint pain. I was > > > > > > wondering if you had those kinds of symptoms? > > > > > > > Anything you'd care to share I would greatly appreciate. I > > > feel > > > > > like > > > > > > my body is revolting against me. LOL > > > > > > > > > > > > > > Beth in NC age 48 Fibrotic NSIP 06/06 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________________________________________________ > Meet the new AOL.ca. Free radio, music, videos, news & entertainment †" with a Canadian perspective. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Irene, sorry to keep being so pushy about this....a person can test false-negative for lupus or scleroderma and still very much have that disease. Seeing that you have Raynaud's and PF it makes sense that you have another AI disease at work. My last Pulmo ran blood work that showed NO elevated SED or anything to indicate any AI disease. Which is hilarious considering my long history of AI. My rheumy ran the tests in August and as usual, it was off the charts on all indicators. Pulmo said the lab must have messed up..... I'm fairly new to the board and not up on how ill everyone is, or at what stage of the disease they're all at. Please forgive me for my ignorance. I hope I'm not coming across as unsympathetic because that is so far from the empathy I have for you. I have had multiple AI's since I was 15, so I know the long, arduous and uphill battle that these diseases entail. But I also know that the Doc's aren't always correct. My own brother was a doctor. He felt unwell with self-diagnosed allergies. By the time he realized that something was seriously wrong on a Sunday night it was too late. He died on that Tuesday, at the age of 52, from Wegner's Granulamatosis. An AI disease. So, even the doctors can get it wrong, in a big way. Ask them to broaden the test spectrum and do more checking if you feel the need to know what the specific disease is. It may not matter to you at this point. I personally don't care to know if I have any more darn diseases. I'm tired of being told " interesting " ........ Big hugs to you! Babs in Texas > > > Hi Babs, > > Raynaud's Disease is not the main disease for me....it's secondary to the other stuff I have also....I've been checked for Lupus/Scleroderma/Sjogren's/Rheumatoid Arthritis....with further analysis why I have an elevated ANA...and it's negative of any of the above mentionned. > > Irene > Raynaud's Disease 09/07 PF 03/07 Canada Quote Link to comment Share on other sites More sharing options...
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